Rose became acquainted with Patient Worthy after her husband was diagnosed with Acute Myeloid Leukemia (AML) six years ago. During this period of partial remission, Rose researched investigational drugs to be prepared in the event of a relapse. Her husband died February 12, 2021 with a rare and unexplained occurrence of liver cancer possibly unrelated to AML.

    Compassion Corner: Compassion Should be Reciprocal: The Rising Suicide Rate of Physicians and Nurses
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    Compassion Corner: Compassion Should be Reciprocal: The Rising Suicide Rate of Physicians and Nurses

    Compassion [kuhm-pash-uhn] noun A feeling of deep sympathy and sorrow for another who is stricken by misfortune, accompanied by a strong desire to alleviate the suffering. Compassion Corner is a…

    Continue Reading Compassion Corner: Compassion Should be Reciprocal: The Rising Suicide Rate of Physicians and Nurses
    Non-Alcoholic Fatty Liver Disease (NAFLD) in Pregnancy has Nearly Tripled in the Past Ten Years
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    Non-Alcoholic Fatty Liver Disease (NAFLD) in Pregnancy has Nearly Tripled in the Past Ten Years

      In the last decade, NAFLD in pregnancy has nearly tripled in concert with the worldwide increase in diabetes. Mayo Clinic reports that NAFLD in general affects one-fourth of the…

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    Advanced Leukemia: Test of Oral Revumenib Brought Impressive Results
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    Advanced Leukemia: Test of Oral Revumenib Brought Impressive Results

      For patients with refractory or relapsed KMT2A rearrangement or NPM1-mutations, the AUGMENT 101 study of the investigational menin inhibitor revumenib yielded impressive results. According to an article in MedicalXpress,…

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    May is Cystic Fibrosis (CF) Month and Some Patients Are Living Past Middle Age Due to Treatment Advances
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    May is Cystic Fibrosis (CF) Month and Some Patients Are Living Past Middle Age Due to Treatment Advances

    There is no cure for cystic fibrosis. That is the reason the Cystic Fibrosis Research Institute (CFRI) is very vocal and makes it clear that cooperation is needed from the…

    Continue Reading May is Cystic Fibrosis (CF) Month and Some Patients Are Living Past Middle Age Due to Treatment Advances
    Compassion Corner: An Honest Account by an Orthopedic Surgeon Who Found the Key to Compassion
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    Compassion Corner: An Honest Account by an Orthopedic Surgeon Who Found the Key to Compassion

    Compassion [kuhm-pash-uhn] noun A feeling of deep sympathy and sorrow for another who is stricken by misfortune, accompanied by a strong desire to alleviate the suffering. Compassion Corner is a…

    Continue Reading Compassion Corner: An Honest Account by an Orthopedic Surgeon Who Found the Key to Compassion
    A New National Analysis Indicates that Higher Levels of Black Primary Care Physicians Means Longer Life Expectancy for Black Patients
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    A New National Analysis Indicates that Higher Levels of Black Primary Care Physicians Means Longer Life Expectancy for Black Patients

      Over the years, there has been minimal improvement in the life expectancy differences between white and black people living in the United States. Yet, according to an article featured…

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    Amyotrophic Lateral Sclerosis Drug Developers Set Their Sights on a New Treatment Target
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    Amyotrophic Lateral Sclerosis Drug Developers Set Their Sights on a New Treatment Target

    On March 22, 2023, via PRNewswire, the FDA announced that its CNS Drugs Advisory Committee voted unanimously in favor of a potential accelerated approval of tofersen to treat people with…

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    For Patients Under Consideration for CAR-T Therapy The Cancer Support Community/Gilda’s Club Has A Free Program

    No One Should Face Cancer Alone. That is the mission of the non-profit Cancer Support Community (CSC). It offers emotional support and hope via programs designed for cancer patients, cancer…

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    The Chan Zuckerberg Initiative is Providing Financial Support for Patient-Centered Rare Disease Research
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    The Chan Zuckerberg Initiative is Providing Financial Support for Patient-Centered Rare Disease Research

     In 2003 Ricky Safer was diagnosed with primary sclerosing cholangitis (PSC). Her doctors were not able to tell her much about the origin of her disease. Nor were they able…

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    Ampreloxetine Failed the First Time but Emerged a Winner for Multiple System Atrophy
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    Ampreloxetine Failed the First Time but Emerged a Winner for Multiple System Atrophy

      Theravance Biopharma’s late-stage failure suddenly became a jump-off point for treating multiple system atrophy (MSA) according to a recently published article in Neurology Live. After the failure of two…

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    A Research Group Finds Most Ovarian Cancers Begin in the Fallopian Tubes. Should They Be Removed?
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    A Research Group Finds Most Ovarian Cancers Begin in the Fallopian Tubes. Should They Be Removed?

      The Ovarian Cancer Research Alliance stated in new guidance that evidence indicates the majority of ovarian cancers begin in fallopian tubes. The president of the alliance, Audra Moran, was…

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    Mutual Trust Between Doctors and Parents of Children with Rare Diseases Means Optimum Care for the Child

    The complexity of rare diseases makes communication between adults involved with the care of these children a vital tool. Communication and mutual trust are of the utmost importance. About the…

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