This New Program Can Help Make Life Easier for Rare Disease Patients
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This New Program Can Help Make Life Easier for Rare Disease Patients

According to a story from CheckOrphan, Express Scripts has prepared a Rare Conditions Care Value (RCCV) program. This program is designed to help make the diagnosis and treatment process for…

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Express Scripts Makes Diagnosis Easier with Second Opinion
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Express Scripts Makes Diagnosis Easier with Second Opinion

According to PRNewswire, Express Scripts announced a new program to benefit people living with rare diseases on May 31st. The program, called Second Opinion is part of the company’s larger…

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Midatech Pharma Gets Verbal Approval For MTD201 Continued Development
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Midatech Pharma Gets Verbal Approval For MTD201 Continued Development

Midatech Pharma just received verbal confirmation from Polish regulators to conduct the first European in-human study for a treatment that could potential aid those with carcinoid cancer and acromegaly, reported…

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The First International Acromegaly Conference in Honor of Acromegaly Awareness Day

It is Patient Worthy’s pleasure to report on the first International Acromegaly conference which brought together acromegaly support groups from East and West Canada,- The Vancouver and Atlantic Acromegaly support…

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Become Part of the Project That Could Save Lives from Genetic Disorders

Causation vs. correlation. What does that even mean? If you ask your friend who majored in philosophy for a semester-and-a-half in college, you’ll probably get an explanation that sounds more…

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$2.8 Million is Going Towards This New Acromegaly Treatment
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$2.8 Million is Going Towards This New Acromegaly Treatment

Crinetics Pharmaceuticals, Inc. is a pharmaceutical/therapeutics company that focuses on rare endocrine-related disorders and cancers. This past month, excitingly, the pharmaceutical company announced that it had been awarded a Phase IIB…

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Running to the Future: Even Acromegaly Cannot Stop This Man
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Running to the Future: Even Acromegaly Cannot Stop This Man

Runner’s high: the euphoric sensation that endurance athletes feel when they exercise for an extended period of time. For those who have never felt it, it sounds like the Fountain…

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