Phase 3 Clinical Trial for Amyotrophic Lateral Sclerosis Has Completed Enrollment
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Phase 3 Clinical Trial for Amyotrophic Lateral Sclerosis Has Completed Enrollment

BrainStorm Cell Therapeutics has just announced that they have completed enrollment in their Phase 3 clinical trial for amyotrophic lateral sclerosis (ALS). Enrollment was initiated way back in October of…

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Grant to Fund Critical International Amyotrophic Lateral Sclerosis Research
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Grant to Fund Critical International Amyotrophic Lateral Sclerosis Research

According to a story from med.miami.edu, an international research consortium known as Clinical Research in ALS and Related Disorders for Therapeutic Development (CReATe) has just been awarded a renewal grant from…

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Personalized Medicine: A Drug Tailored for a Six Year Old With Batten Disease May Serve as a Template for Similar Rare Disorders

  Mila Makovec began her life as a normal, healthy infant, and according to a recent article in Science Magazine, she continued along this path until reaching the age of…

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Company Awarded Grant to Conduct Amyotrophic Lateral Sclerosis Clinical Trial
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Company Awarded Grant to Conduct Amyotrophic Lateral Sclerosis Clinical Trial

According to a story from PR Newswire, the biopharmaceutical company Clene Nanomedicine, Inc., has issued an announcement in regards to its Australian subsidiary. This subsidiary has been awarded a grant…

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Expectations For This Clinical Trial Were to Slow Down ALS Progression; Instead it Reversed One Man’s Symptoms

  According to a recent article published in News NWA, in 2017 Mark Bedwell, of Fort Smith, Arkansas had been told that based upon the rapid progression of his amyotrophic…

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Electroencephalography Study Reveals The Impact of Amyotrophic Lateral Sclerosis on Neural Networks

According to a story from Trinity News, a team of researchers with the Academic Unit of Neurology at Trinity College Dublin have recently conducted a study that maps the ways…

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A Brief Discussion of How Cell and Gene Therapies are Being Improved for Future Generations

  While the last few years have seen major advances in all areas of the pharmaceutical industry, some of the newest and brightest talents are now focusing on cell and…

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DNA Sequencing Took Years, Now it Takes Hours; As a Result, Researchers Have Discovered The Cause of Four Rare Diseases

Researchers at the University of Tokyo have discovered that one segment of DNA is responsible for four rare diseases. As reported in Science Daily, the university team also believes that…

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Patients with Amyotrophic Lateral Sclerosis Can Now Change the TV Channel with Just Their Eyes

For rare disease patients who face physical disabilities, even seemingly simple tasks can pose extreme difficulties. For instance, changing the channel on the television. Comcast Corp. previously created a voice…

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How do You Find Strength as Amyotrophic Lateral Sclerosis Causes Your Body to Weaken?

According to a story from princetoninfo.com, Sara Cooper was diagnosed last November with amyotrophic lateral sclerosis. Sara has had an active career as an event planner, marketing consultant, and real…

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A New Way to Study Disease: Scientists Have Recreated a Blood-Brain Barrier Outside the Body
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A New Way to Study Disease: Scientists Have Recreated a Blood-Brain Barrier Outside the Body

  The blood-brain barrier is a “gatekeeper” that prevents toxins and foreign matter in the bloodstream from traveling to the brain. Check Orphan recently carried an article that had been…

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Scholarships are Available for the 2019 International Pain Summit Which Will be Held in LA this November

IPain The International Pain Foundation (IPain) is a nonprofit organization dedicated to supporting those with chronic pain due to neurological, musculoskeletal, inflammatory, degenerative, and emotional conditions. They aim to improve…

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New Partnership Aims to Develop New Mobility Controls for Amyotrophic Lateral Sclerosis Patients
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New Partnership Aims to Develop New Mobility Controls for Amyotrophic Lateral Sclerosis Patients

According to a story from ucf.edu, a new partnership between Mayo Clinic and Limbitless Solutions is planning initiate a new clinical trial that aims to improve mobility options for patients…

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Critical Research Into Amyotrophic Lateral Sclerosis Therapies Gets Funding Boost
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Critical Research Into Amyotrophic Lateral Sclerosis Therapies Gets Funding Boost

According to a story from Alabama News Center, a scientist affiliated with Southern Research, Dr. Rita Cowell, has been hard at work researching new potential treatments for amyotrophic lateral sclerosis,…

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The FDA, Congress, A Young Woman Dying of ALS, Her Physician, and Her Parents Are All Struggling Over Access to an Untested Therapy

  The Hermstads of Spencer, Iowa lost Jaci’s twin to ALS and now they must watch Jaci, rapidly descend into the depths of the same disease. Jaci has a rare…

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Senator Cruz Encourages FDA to Expand Number of Conditions Covered by Parallel Track Policy
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Senator Cruz Encourages FDA to Expand Number of Conditions Covered by Parallel Track Policy

In a letter to Dr. Norman Sharpless, the acting commissioner of the Food and Drug Administration since April 5, Senator Ted Cruz encouraged the federal agency to expand the number…

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Experimental Treatment for Genetic Amyotrophic Lateral Sclerosis Shows Potential in Trial

According to a story from BioSpace, the drug developer Biogen recently released interim results from a Phase 1/2 clinical trial. This clinical trial is testing the drug tofersen, which is…

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