Meet Hannah: a 27-Year-Old with EDS, POTS, MCAS, and Blood Cancer Fundraising for Treatment in the USA

Hannah Evans, a 27-year-old woman from South Wales with several rare diseases, has reached her £37,500 fundraising goal that will support her trip to America to access an experimental and…

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Raising a Son While Managing POTS, EDS, and Gastroparesis: Lindsay’s Story
Photo courtesy of Lindsay Fogarty

Raising a Son While Managing POTS, EDS, and Gastroparesis: Lindsay’s Story

My name is Lindsay Fogarty. I am a 25-year-old single mother to a wonderful 6, almost 7-year-old son, named Andrew. As I am writing this I am listening to the…

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High Schooler Spreads Awareness by Sharing Her Rare Disease Story
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High Schooler Spreads Awareness by Sharing Her Rare Disease Story

I'm Celeste, and I'm sharing my story because too many ill people go undiagnosed and too many healthy people know nothing of it. Being chronically ill is like (for lack…

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Devan Demmons and Service Dog Duke Make Pageant History while Raising Awareness about Dysautonomia
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Devan Demmons and Service Dog Duke Make Pageant History while Raising Awareness about Dysautonomia

The 2018 Mrs. Maine International Pageant will be so much more than a celebration of poise and beauty. It will also make history when Devan Demmons will proudly walk on…

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From Lemons to Lemonade: How Kay Pursues Her Dreams After a Rare Disease Diagnosis
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From Lemons to Lemonade: How Kay Pursues Her Dreams After a Rare Disease Diagnosis

Khadeeja Munchi - Kay for short! - of South Africa may only be 21 years old, but her spirit and tenacity would confuse anyone into thinking she's decades older. "Life…

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Simple Bedside Test May Help Doctors Diagnose Certain Degenerative Brain Diseases
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Simple Bedside Test May Help Doctors Diagnose Certain Degenerative Brain Diseases

Neurologists working at the NYU School of Medicine have developed a test that can identify some rare degenerative brain diseases, reports NYU Langone Health. Published in the Annals of Neurology…

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