Devan Demmons and Service Dog Duke Make Pageant History while Raising Awareness about Dysautonomia
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Devan Demmons and Service Dog Duke Make Pageant History while Raising Awareness about Dysautonomia

The 2018 Mrs. Maine International Pageant will be so much more than a celebration of poise and beauty. It will also make history when Devan Demmons will proudly walk on…

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Simple Bedside Test May Help Doctors Diagnose Certain Degenerative Brain Diseases
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Simple Bedside Test May Help Doctors Diagnose Certain Degenerative Brain Diseases

Neurologists working at the NYU School of Medicine have developed a test that can identify some rare degenerative brain diseases, reports NYU Langone Health. Published in the Annals of Neurology…

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Dallas, Texas will Light Up Its Tallest Skyscraper in Support for Dysautonomia Awareness Month
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Dallas, Texas will Light Up Its Tallest Skyscraper in Support for Dysautonomia Awareness Month

The Bank of America building in Dallas, Texas will light itself up in turquoise on Saturday October 28th to show support for Dysautonomia Awareness Month. Everything's bigger in Texas, including…

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Familial Dysautonomia Caregiver Shocks the Inclusion Debate
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Familial Dysautonomia Caregiver Shocks the Inclusion Debate

My girlfriend called me the other day—crying hysterically. I couldn’t understand her much, but it didn’t matter. I know she’s raising her first-born child with familial dysautonomia (FD). Problems related to…

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Editor’s Choice: Overcoming Obstacles and Fulfilling Dreams with Rare Disease

Happy Friday Patient Worthians! PW Contributor Tom Seaman talks about what it's like to overcome the mental toll of your rare disease diagnosis. Another PW Contributor suffering from TN, dysautonomia and…

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Editor’s Choice: Suddenly Sleepy and Beautifully Broken

Welcome back to Editor's Choice! This week we have an interesting take on Parkinson's treatment. We also have an empowering article from one of PW's rare disease contributors. We are all feeling the…

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