Si su hijo tiene una enfermedad rara, lo que necesita saber sobre el abuso infantil médica
If your child has a rare disease, you need to know about this broken system

Si su hijo tiene una enfermedad rara, lo que necesita saber sobre el abuso infantil médica

Cuando eres es un padre preocupado con un hijo enfermo y los médicos no pueden decirle lo que está mal, o darle respuestas que no conducen a soluciones, ¿qué se…

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What’s in a Name? These Rare Disease Patients are Finding Out
What's in a name? Dysautonomia patients are finding out.

What’s in a Name? These Rare Disease Patients are Finding Out

Dysautonomia (dis-aw-tuh-noh-mee-uh or dis-auto-noh-meeuh) is surprisingly common. Around the world, an estimated 70 million people are impacted by autonomic nervous system disorders. And while some forms are fairly rare, there are…

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Editor’s Choice Weekend Roundup: It’s mid-#NERVEmber!
Editor's choice for 11.13.15

Editor’s Choice Weekend Roundup: It’s mid-#NERVEmber!

We are mid-#NERVEmber and gearing up for the Thanksgiving season! As we continue covering chronic illnesses like CRPS/RDS that can greatly effect the nerves, we are also highlighting some helpful tips and stats to…

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The 6 Emotions of Your Neurological Disease Diagnosis
The emotions that come along with a chronic neurological illness can be a whirlwind.

The 6 Emotions of Your Neurological Disease Diagnosis

Being diagnosed with a chronic neurological illness can be vindication after years of countless specialist visits, tests and research. Yet, there is a still a type of bereavement period that…

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