According to a story from the Houston Chronicle, researchers are hoping that an immunotherapy treatment that was originally funded by an Ice Bucket Challenge grant could be a viable option…
According to a UVAToday report, researchers at UVA uncovered a new piece of the multiple sclerosis puzzle. The secret lies with what are known as lymphatic vessels. Lymphatic vessels normally…
A recently published study has highlighted the role of a sub-group of astrocytes (a type of brain cell) in brain inflammation, which can be a feature of multiple serious diseases,…
According to a report by The Telegraph, multiple sclerosis patients are being refused an important drug. The drug, known as ocrelizumab will not be funded by The National Institute for…
Researchers are looking for participants to take part in a study investigating whether a mobile app could benefit patients with multiple sclerosis. For more information about this study and how…
According to a story by The Health Pundit, one woman showed a bold new way to spread awareness for multiple sclerosis. Kate Langwine-Cooke filmed her experience of a seizure. The…
Too often we try to interpret the experiences of others without actually communicating with the very individuals we’re trying to better understand. This leads to false impressions and frequently creates…
According to a story from Multiple Sclerosis News Today, a recent case report suggests that switching from the immunotherapy drug Gilenya to another immunotherapy called Lemtrada could cause a severe…
A research team, funded in part by grants from the NIH and the National Multiple Sclerosis Society, say that they have discovered a new subtype of multiple sclerosis. The…
According to a story from Nevada Public Radio, in the early 1980s, Lisa Iezzoni was a medical student at Harvard University. Around that time she received a diagnosis of multiple…
According to a story from CheckOrphan, Durhane Wong-Rieger, the CEO of the Canadian Organization for Rare Disorders, says that the Canadian health system has been letting down the roughly three…
According to a story from wday.com, Paisley Forsell was what you might call a bit of an adrenaline junkie. She likes to live a high energy, active lifestyle. She loves…
Patient Worthy exists because there's just not enough visibility for the nearly 30 million Americans who have been diagnosed with disorders that are rare or have limited treatment options. So…
According to a story from UBC, a recent study has revealed that multiple sclerosis patients may start experiencing abnormal symptoms up to five years before they begin to manifest the…
Understanding diseases and the mechanisms behind them is a crucial step towards developing treatment. Many times, however, it's difficult to accomplish this due to the rarity of a condition, or…
According to a story from uk.news.yahoo.com, when Billy Caldwell, age 12, and his mother returned from traveling to Canada, the Home Office initially confiscated a substance that had been the…
According to a story from Newswise, a team of scientists and researchers have recently completed research that managed to reveal the genetic nature of the unusual rare disease neuromyelitis optica.…
According to UVA Today, a University of Virginia professor, Sarah Kucenas, is studying glia cells in the brain of fish that could potentially help spear the way for the creation of…
According to PRNewswire, Express Scripts announced a new program to benefit people living with rare diseases on May 31st. The program, called Second Opinion is part of the company’s larger…
A new partnership between two major players in autoimmune disease research recently hit the news. The American Autoimmune Related Disease Association (AARDA) announced a partnership with Allegheny Health Network (AHN).…
A new study looks at the impact of a drug to treat multiple sclerosis (MS) on children of patients who take it during pregnancy, reports News Wise. Some MS patients take…
According to a story from CBS Minnesota, legislation was recently filed in Minnesota that could end the practice of step therapy in the state. Step therapy is a common money…
According to a story from MD Magazine, the FDA has recently approved the first multiple sclerosis treatment catered to children with the disease. In this instance, the agency did not…
As someone who has suffered with chronic vertigo for the past year and a half, and who deals with a chronic vestibular condition, I know all too well how debilitating…
New research is showing that patients sometimes use crowdfund websites to pay for fake stem cell transplants and other dubious medical procedures, according to a story from medicalxpress.com. Crowdfunding websites…
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