New Bill Could Allow Easier Access to Complex Rehabilitation Technology for Rare Disease Patients

H.R. 2408 H.R. 2408 is a new piece of federal legislation otherwise known as the "Ensuring Access to Quality Complex Rehabilitation Technology Act." Essentially, this act creates a new category…

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This Neurologist is Committed to Developing New Therapies for Multiple Sclerosis, but Challenges Lie Ahead
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This Neurologist is Committed to Developing New Therapies for Multiple Sclerosis, but Challenges Lie Ahead

According to a story from CityScene, Ohio State University's Dr. Michael Racke is considered one of the country's cutting edge researchers in the field of multiple sclerosis treatment. He is…

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2019 Marks the 10 Year Anniversary of the Multiple Sclerosis Association of America’s Art Showcases
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2019 Marks the 10 Year Anniversary of the Multiple Sclerosis Association of America’s Art Showcases

According to a story from Multiple Sclerosis News Today, 2019 is the tenth year that the Multiple Sclerosis Association of America (MSAA) has conducted its Art Showcases initiative. The program…

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Sisters with Multiple Sclerosis Share Their Scary Stevens-Johnson Syndrome Story In an Effort to Spread Awareness

An Unexpected Emergency Kristin Hardy and her sister Margaret are no strangers to rare disease. Kristin has primary progressive multiple sclerosis (MS) and Margaret has relapsing-remitting multiple sclerosis. Margaret also…

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The Struggles of being a Rare Disease Patient in China

The State of Rare Diseases in China The Illness Challenge Foundation (ICF) is an organization devoted to easing the burdens that rare disease patients living in China face. They accomplish this…

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How Changing to Outcome-Based Reimbursement Models is Better for Rare Disease Patients

Shifting Contracts Over the years the United States healthcare system has shifted more toward reimbursement models that are outcome-based instead of service-based. In essence, this means that instead of paying…

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First Patient Enrolled in Phase 2 Trial for Experimental RRMS Drug
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First Patient Enrolled in Phase 2 Trial for Experimental RRMS Drug

According to a publication from Multiple Sclerosis News Today, German biotechnology company Immunic Therapeutics has successfully enrolled the first participant for its phase 2 clinical trial for experimental relapsing-remitting multiple…

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Study Shows We Need Better Awareness of Pediatric Onset Multiple Sclerosis to Improve Patient Care
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Study Shows We Need Better Awareness of Pediatric Onset Multiple Sclerosis to Improve Patient Care

Multiple Sclerosis (MS) was long believed to be an illness that could only affect adults. In fact, the pediatric form of this disease was not discovered until just over 10…

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