According to a story from Nursing Times, Claire Naisbitt is one of three multiple sclerosis specialist nurses that treat patients that reside in the Teesside community. She first took the…
Multiple Sclerosis (MS) was long believed to be an illness that could only affect adults. In fact, the pediatric form of this disease was not discovered until just over 10…
For years the accepted estimate of multiple sclerosis (MS) patients living in the United States was 400,000. A recent study, funded by the National Multiple Sclerosis Society (NMSS) has confirmed that number is…
Last year, Patient Worthy featured actress Selma Blair after she announced her multiple sclerosis diagnosis. While no one is immune to the stresses and challenges of a medical diagnosis (Hollywood…
According to an article at UIC Today, scientists at the University of Illinois at Chicago have conducted experiments suggesting graphene might be useful in diagnosing amyotrophic lateral sclerosis (ALS) or…
According to an article at Multiple Sclerosis News Today, at least one doctor at U.K. Healthcare's Kentucky Neuroscience Institute wants more diversity in clinical trials. It's not just about social…
"I feel powerless to help them. There needs to be a change. And change ought to begin in the form of a policy shift." These are Jay Avasarala's words in…
Purdue University just reported that researchers have identified a biomarker (a measurable substance in an organism whose presence is indicative of disease or infection) that could be an early sign…
Spinocerebellar Ataxia (SCA) refers to a group of neurodegenerative disorders. Ataxias are a component of the nervous system which control movement. SCA occurs when the ataxias in the brain or spinal…
The Heritage Florida Jewish News reported a story about one sister's journey to her Gaucher Disease diagnosis, thanks to her older sister's wedding prep. What is Gaucher Disease? Gaucher disease…
According to a story from Dallas News, Shereese Hickson is a 39-year-old single mother. She has multiple sclerosis, and it seemed like her symptoms were starting to flare up again.…
According to a story from Medical Xpress, the US Food and Drug Administration has recently issued a new warning for the multiple sclerosis drug alemtuzumab (marketed as Lemtrada). This warning…
Join us into the future for a moment as we take you through some exciting new developments in health tech! Just last week, the FDA cleared reSET, a mobile app that…
In 2013 researchers discovered something interesting about the protein BH4. They found that by inhibiting the protein they could reduce patient's pain. A drug was created called Quartet, and it…
According to the Des Moines Register, Iowa has a new medical marijuana program rolling out on December 1st, but many doctors in the state have reservations about enrolling patients. Iowa's…
In the movie "Dallas Buyers Club" the main character, Ron Woodroof, contracts HIV/AIDs and starts getting drugs from an organization that imports medicine from Mexico. Similarly, many London patients are…
According to a story from Fierce Healthcare, the decision by the Trump administration to curtail planned efforts to update standards of care for people with disabilities means that this community…
According to a story from Medical Xpress, a team of researchers from the American Association of Ophthalmology recently released a study that highlights the dangers of unapproved stem cell therapy.…
According to a story from Business Insider, two researchers from Stanford University, Lawrence Steinman and Jonathan Rothbard, have decided to start a new company called Katexco Pharmaceuticals. This startup will…
According to a story from Multiple Sclerosis News Today, Dr. Robert Fox and Dr. Robert Bermel, both of the Cleveland Clinic, recently spoke about new treatment improvements that are needed…
According to a story from pm360online.com, the biopharmaceutical company Principia Biopharma recently announced that they had achieved $10 million in milestones that are related to the development of its experimental…
You may know her from movies like Legally Blonde, Cruel Intentions, and Hellboy - but now Hollywood star Selma Blair has a new role she's tackling: multiple sclerosis advocate. Just…
Multiple sclerosis is a disease that can effect every aspect of daily life. However, symptoms vary on a day to day basis and the lack of predictability makes the disease…
According to a story from EurekAlert!, a recent study from the University of Zurich has illuminated the connection between the gastrointestinal flora and multiple sclerosis. The discovery illuminates the potential…
What is PML? PML stands for progressive multifocal leukoencephalopathy. It’s a brain infection caused by the JC virus. The JC virus itself isn’t all that rare. In fact, its pretty…
Sign Up With a Patient Worthy Account and Share Your Rare Story
- OR -
Make a difference, share your experiences and get paid. Opt-in and join Patient Worthy's panel for paid opportunities such as surveys, market research, patient advisory panels and more.
- OR -
Make a difference, share your experiences and get paid. Opt-in and join Patient Worthy's panel for paid opportunities such as surveys, market research, patient advisory panels and more.
