Screening Test for Navajo Newborns Saves Babies Suffering from Severe Combined Immunodeficiency (SCID)
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Screening Test for Navajo Newborns Saves Babies Suffering from Severe Combined Immunodeficiency (SCID)

Joy Littlesunday is just one of many Navajo newborns who were screened and thus saved from severe combined immunodeficiency by a successful bone marrow transplant at UC San Francisco, reported UCSF…

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CGD News: Genetic Code Editing Makes Animal Testing More Accurate

There is a long-standing debate on the ethical ramifications of testing medical procedures and drug treatments on animals. One side argues that nothing can replace the valuable information gathered from…

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Countdown to Cleveland: Why Walking Can Make a Difference This Year for the PI Community
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Countdown to Cleveland: Why Walking Can Make a Difference This Year for the PI Community

Primary immunodeficiency diseases (PI) are a group of more than 300 rare and chronic disorders where part of the body's immune system is missing or does not function properly. Since…

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Clear Your Fall Schedule and Join a Walk for the Immunodeficiency Foundation
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Clear Your Fall Schedule and Join a Walk for the Immunodeficiency Foundation

When you have an immunodeficiency disease, you’re very much at risk of getting an opportunistic infection because your immune system isn’t “scanning” your body’s cells to kill off abnormal or…

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Got Primary Immunodeficiency? Get Out of Town in July, Teenager!
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Got Primary Immunodeficiency? Get Out of Town in July, Teenager!

Chances are if you have a primary immunodeficiency disorder, you don’t live near other teens with your same diagnosis. No one else gets what you’re going through. You may have…

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Editor’s Choice: IDF Sessions on CGD, IPF Progress and FDA Approval

Happy Friday Patient Worthians! You might notice that the headline has a lot of acronyms in it... ah, welcome to the rare disease world! We DO have answers for what all of that…

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Insurance Company’s Treatment of Immune Deficiency Patient Earns Them a Big Middle Finger
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Insurance Company’s Treatment of Immune Deficiency Patient Earns Them a Big Middle Finger

While the national conversation on healthcare has recently and rightly focused on the political debate over the Affordable Care Act’s future, it’s worth remembering what’s happening on the “street level”…

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Get Ready for World PID Week – April 22 – 29, 2017!
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Get Ready for World PID Week – April 22 – 29, 2017!

Common variable immune deficiency is just one of a cluster of disorders under the primary immunodeficiency diseases (PID) umbrella. People with this rare condition are often repeatedly misdiagnosed because there is a…

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Here’s Why You Should “Think Zebra!” Throughout April
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Here’s Why You Should “Think Zebra!” Throughout April

What do zebras have to do with primary immunodeficiency (PI)? Nothing and everything, it seems. Apparently, there’s a saying in medical school that goes: “When you hear hoof beats, think…

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