The Alabama Rare Disease community has come together to host a special week in honor of the upcoming date February 28th, 2018, which is now the official International Rare Disease…
According to a story from PR Newswire, the pharmaceutical company Biohaven announced that they have received clearance from the Food and Drug Administration (FDA) to begin work on its clinical trials…
According to a story from ibtimes.co.uk, Sue Cox, a 65 year old Welsh woman from Cwmbran, has sought alternative methods for dealing with the worst symptoms of her multiple sclerosis.…
Reported by Strait Times, it was announced by Ministry of Health last week that there may be a potential fund developed to help children who suffer not only from a…
Tomorrow is Moebius Syndrome Awareness Day! Moebius Syndrome Awareness is celebrated globally each year - with the goal of raising awareness about this rare condition and to educate the many…
According to BBC News, a new universal blood test is receiving a lot of buzz due to it's potential to detect early stages of cancer. A research team at John…
According to an article from PRNewswire, the drug MVASI (biosimilar bevacizumab) was just granted marketing authorization by the European Commission. Developed by Amgen and Allergan, this treatment has been approved…
Reported by Fox 2, Anthony Anzell doesn’t let his rare genetic disease hold him back. Anthony is an extreme athlete who just swam 19 miles, the entire length of Torch…
Even though most in the medical field suggest that people think about their wishes as to how to handle end-of-life decisions, and complete the paperwork to be sure their wishes…
The Hempel family decided to take action against Vtesse and Sucampo Phamaceuticals who allegedly stole and sold their private information for profit, reported Forbes. The Hempel family has two twin…
A team of scientists recently developed an electronic nose that detects Crohn’s disease and ulcerative colitis. Continue reading below, or follow the original story to learn more about this intriguing…
TGIF, Patient Worthians! This week, kids went to bed wearing inside out pajamas and wishing for snow. Their wishes came true-- and so did the wishes of many rare disease…
I know you’re fighting hard//I see your battle scars It’s clear you’ve come so far//You’ll grow stronger Alone, these words may feel like just expressions of encouragement; a…
Coffee or tea is the preferred way for many people to start their morning. That extra boost of caffeine just seems to get things rolling. New research suggests that caffeine…
I have fantasized at times about living in a different era. How exciting to live in the times of knights in shining armor and ladies in fancy dresses in a…
CISCRP, The Center For Information & Study On Clinical Research Participation, is a unique and one-of-a-kind non-profit focused on clinical trial education. CISCRP is wants to bring the need for…
Blessings amongst the hardest time in Jessica Boesmiller's life came in the form on twins, reported News.am. 37-year-old Jessica is a mother of four and recently learned in November that…
Days in 2018, we have some great statistics on 2017! According to the United Network for Organ Sharing (UNOS), over 10,000 organ donations were made, marking the first year that number has been…
Deciphera Pharmaceuticals recently announced the initiation of a Phase 3 clinical study. The study aims to investigate the safety and effectiveness of a new drug targeting gastrointestinal stromal tumors. Keep…
The Loma Linda University Eye Institute in California performed its first-ever procedure using a FDA-approved procedure, which can deter the effects of keratoconus - a rare progressive disease of the cornea,…
According to a story from financialbuzz.com, the pharmaceutical company MabVax Therapeutics just announced initial dosing for patients and the completion of enrollment for its Phase I trial study. The study…
America first started noticing South African runner Annie Bothma at the Roy Griak invitational in 2015. She came in third! Not only is she talented, but her preferred running technique…
According an article from CityNews Toronto, an anti-psychotic medication is undergoing clinical trials in the treating of amyotrophic lateral sclerosis. In other studies, the treatment has shown to help slow…
Did you know estrogen can help protect the body from multiple sclerosis? A recent study by a team at UCLA solidified this finding and discovered how it works. Read on…
According to a story from wepclinical.com, the Creating and Restoring Equal Access to Equivalent Samples Act, also known as the CREATES Act, was introduced in 2017 in order to accelerate…
© Copyright 2024 Patient Worthy
Sign Up With a Patient Worthy Account and Share Your Rare Story
- OR -
Make a difference, share your experiences and get paid. Opt-in and join Patient Worthy's panel for paid opportunities such as surveys, market research, patient advisory panels and more.
- OR -
Make a difference, share your experiences and get paid. Opt-in and join Patient Worthy's panel for paid opportunities such as surveys, market research, patient advisory panels and more.
