The Hempel family decided to take action against Vtesse and Sucampo Phamaceuticals who allegedly stole and sold their private information for profit, reported Forbes. The Hempel family has two twin…
A team of scientists recently developed an electronic nose that detects Crohn’s disease and ulcerative colitis. Continue reading below, or follow the original story to learn more about this intriguing…
TGIF, Patient Worthians! This week, kids went to bed wearing inside out pajamas and wishing for snow. Their wishes came true-- and so did the wishes of many rare disease…
I know you’re fighting hard//I see your battle scars It’s clear you’ve come so far//You’ll grow stronger Alone, these words may feel like just expressions of encouragement; a…
Coffee or tea is the preferred way for many people to start their morning. That extra boost of caffeine just seems to get things rolling. New research suggests that caffeine…
I have fantasized at times about living in a different era. How exciting to live in the times of knights in shining armor and ladies in fancy dresses in a…
CISCRP, The Center For Information & Study On Clinical Research Participation, is a unique and one-of-a-kind non-profit focused on clinical trial education. CISCRP is wants to bring the need for…
Blessings amongst the hardest time in Jessica Boesmiller's life came in the form on twins, reported News.am. 37-year-old Jessica is a mother of four and recently learned in November that…
Days in 2018, we have some great statistics on 2017! According to the United Network for Organ Sharing (UNOS), over 10,000 organ donations were made, marking the first year that number has been…
Deciphera Pharmaceuticals recently announced the initiation of a Phase 3 clinical study. The study aims to investigate the safety and effectiveness of a new drug targeting gastrointestinal stromal tumors. Keep…
The Loma Linda University Eye Institute in California performed its first-ever procedure using a FDA-approved procedure, which can deter the effects of keratoconus - a rare progressive disease of the cornea,…
According to a story from financialbuzz.com, the pharmaceutical company MabVax Therapeutics just announced initial dosing for patients and the completion of enrollment for its Phase I trial study. The study…
America first started noticing South African runner Annie Bothma at the Roy Griak invitational in 2015. She came in third! Not only is she talented, but her preferred running technique…
According an article from CityNews Toronto, an anti-psychotic medication is undergoing clinical trials in the treating of amyotrophic lateral sclerosis. In other studies, the treatment has shown to help slow…
Did you know estrogen can help protect the body from multiple sclerosis? A recent study by a team at UCLA solidified this finding and discovered how it works. Read on…
According to a story from wepclinical.com, the Creating and Restoring Equal Access to Equivalent Samples Act, also known as the CREATES Act, was introduced in 2017 in order to accelerate…
On January 5th the NFL announced it will be contributing just over $16 million to research. The money will be split among three different programs that focus on neurodegenerative diseases.…
As a wave of female empowerment cascades our nation - like the Time's Up and #MeToo movements - let's also turn our attention to Cervical Health Awareness Month. Cervical Health…
Midatech Pharma just received verbal confirmation from Polish regulators to conduct the first European in-human study for a treatment that could potential aid those with carcinoid cancer and acromegaly, reported…
According to a story from Syosset Jericho Tribune, the charity basketball fundraiser called Hoops for Harrison is back again this year. The tournament was named after Harrison Gillman, who now…
Although it never should have happened, at least the right course of action was taken! Reggie Bibbs of Houston, Texas was turned away from his Uber driver when he requested…
REGENXBIO announced last month that the Investigational New Drug application (IND) is active for a Phase I/II clinical trial of RGX-121 for the treatment of Mucopolysaccharidosis Type II (MPS II)…
At only six years old, Simeon Augustus Peterson, also referred to as "Mr. Pete," was diagnosed with Hansen's disease. From then on, he lived the rest of his life cut…
January 5th was not only a great day for the Butler basketball community, it was a dream come true for the bulldog fan Seth Dennison, reported Fox 59. The 7-year-old…
According to a story at medpagetoday.com, a recent study showed that stem cell transplant could be a viable new method for treating scleroderma, and could be more effective than previous…
© Copyright 2024 Patient Worthy
Sign Up With a Patient Worthy Account and Share Your Rare Story
- OR -
Make a difference, share your experiences and get paid. Opt-in and join Patient Worthy's panel for paid opportunities such as surveys, market research, patient advisory panels and more.
- OR -
Make a difference, share your experiences and get paid. Opt-in and join Patient Worthy's panel for paid opportunities such as surveys, market research, patient advisory panels and more.
