This week is Congenital Heart Defect Awareness Week! A congenital heart defect (CHD) is a problem in the heart's structure that occurs when a baby is born. Heart defects can range…
According to a story from SWNS, a grandmother who had survived a battle with ovarian cancer came face to face with the doctor responsible for developing the treatment that saved…
Many people aren’t aware that even if they have their emergency medication with them, with instructions, that it may not be given to them. Their carefully labeled, lifesaving treatment could…
According to an announcement from The Amyloidosis Research Consortium (ARC), the organization has launched version two of the My Amyloidosis Pathfinder (MAP) tool. The tool was developed as a way for…
A new device called The Third Pole will soon be on the market to help newborns with pulmonary hypertension breathe better. Pulmonary hypertension is a type of high blood pressure…
Who said helping cure and treat rare diseases couldn't be fun?! Last week, Three Lake Partners - a venture firm that invests in healthcare and quality-of-life solutions for patients dealing…
According to a story from the Washington Post, Vanellope Hope Wilkins had to immediately be placed in sterile plastic when she was born. This was because her heart, while functional,…
The United Network for Organ Sharing recently altered the rules of the organ transplant system. Geography is no longer as crucial a factor in securing a needed organ. Some view…
Michael Mauti, a linebacker for the New Orleans Saints, had been struggling with ulcerative colitis for years, and it was getting worse. The thought of eating become one of great…
Every single day is life-threatening for Lauren Stribling, a 15-year-old girl suffering from a rare genetic disease called Marfan syndrome, reported Daily Mail. A simple fall, push, or physical aggression…
A 23-year-old NBC news anchor received the words that everyone fears, "you have cancer". Boston Globe Media Partners reported the experience that young Natasha Verma faced upon her diagnosis. While it's…
The first new treatment approved for amyotrophic later sclerosis (ALS) has generated a lot of excitement and enthusiasm in the ALS community since its approval in May of 2017, but…
According to a story from Health News and Information, The National Eye Institute presented Juergen Naggert, Ph.D., with a grant in order to study genetically connected changes that occur in…
It all started with extreme allergic reactions around her mouth when eating certain fruits, then overtime she grew to become allergic to just about everything, even her own tears and…
Happy Groundhog Day, Patient Worthians! It might not feel like it, but spring is its way! This week, we have a story of a family who copes with the challenges…
Start a conversation - and look a little snazzy while doing so! - by wearing purple today (February 2nd) to raise aware for neuroblastoma. Neuroblastoma is a rare cancer that…
All manner of microbes make their home in our intestines. This delicately balanced system is known as the microbiome. A recent study shows that certain cells in the intestines regulate…
According to Live Science, a new Netherlands study shows that women who get breast implants are more likely to develop a rare cancer known as anaplastic large cell lymphoma, also…
According to EurekAlert!, covering a study conducted by Oregon State University, individuals living with rare diseases are more likely to experience a poorer quality of life. They are at high…
New evidence suggests that home care agencies are not giving Medicare assistance to chronically ill people that legally qualify for it, according to an article from wuwf.org. Take the case…
Duke Health just reported that in a recent study, children with cerebral palsy may show improvements from an infusion of their own umbilical cord blood. Recently, a clinical trial including…
Researchers from Duke Health are hoping to discover new treatments for Lyme disease since the only way to currently manage the disease is by taking consistent antibiotics, which can be…
According to an article from GlobeNewswire, new clinical evidence supports the use of gelpaglutide as a once-weekly treatment for short bowel syndrome. Zealand Pharma completed a Phase I clinical trial…
15-year-old Jonathan Gutierrez might just be the youngest superhero to date. Recently, a video of him went viral showing how he's sacrificed a lot of his youth to take care…
A new fundraising challenge is sweeping all social media platforms once again for amyotrophic lateral sclerosis (ALS), first reported Mom.me. Back in 2014, the ice bucket challenge was a wild success, being…
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