Why Texas Parents are Pushing State to Screen Newborns for Spinal Muscular Atrophy
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Why Texas Parents are Pushing State to Screen Newborns for Spinal Muscular Atrophy

Spinal muscular atrophy (SMA) is the leading genetic cause of infant mortality in the USA. So why aren't hospitals in Texas screening newborns for it? That's what a group of…

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Scientists Grow Motor Neurons in the Lab, Offering New Hope to ALS and SMA Communities

Rare diseases like ALS and SMA cause damage to motor neurons. Often, these conditions lead to death, in part because muscles in the chest are wasted away and the patient…

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Not Your Average Joe: This Man is Debunking Myths for SMA Awareness Month

In recognition of Spinal Muscular Atrophy Awareness Month, Joe Akmakjian, an SMA warrior/blogger, is promoting a unique understanding of his rare disedsase. Originally published on the Muscular Dystrophy Association's Strongly…

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Boy with SMA Chosen as State Ambassador for Muscular Dystrophy Association
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Boy with SMA Chosen as State Ambassador for Muscular Dystrophy Association

According to Seacoast Online early this year, Cohl Capparelli was diagnosed with spinal muscular atrophy (SMA) about two years ago. SMA is one of the diseases that the Muscular Dystrophy Association…

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You Won’t Believe Kumail’s Success with SMA Drug Spinraza!
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You Won’t Believe Kumail’s Success with SMA Drug Spinraza!

Kumail was diagnosed with spinal muscular atrophy (SMA) and started Spinraza in an international trial. As The Herald Sun reports, he began the treatment at six weeks old before he…

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Cure SMA Produces a Booklet on Insurance Coverage to Help You
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Cure SMA Produces a Booklet on Insurance Coverage to Help You

Some good news for patients with Spinal Muscular Atrophy (SMA) and their families! There's a new booklet out with detailed information on how to navigate the increasingly complex health insurance…

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World of Robotics Sees First Steps Toward Spinal Muscular Atrophy Exoskeleton
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World of Robotics Sees First Steps Toward Spinal Muscular Atrophy Exoskeleton

When Ellen Ripley used the Caterpillar P-5000 Work Loader to pick up the xenomorph queen in the 1986 science-fiction masterpiece Aliens, who would've known the suit was inspiring the next…

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Harsh News Steals SMA Community Thunder
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Harsh News Steals SMA Community Thunder

The U.S. Food and Drug Administration (FDA) approved Biogen’s SPINRAZA™ (nusinersen) under Priority Review for the treatment of spinal muscular atrophy (SMA) in pediatric and adult patients. SPINRAZA is the first and only…

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Man With SMA Gets Stuck When Airline Leaves His Wheelchair Behind
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Man With SMA Gets Stuck When Airline Leaves His Wheelchair Behind

Spinal muscular atrophy (SMA) occurs when the immune system attacks motor neurons, resulting in the muscles surrounding the spinal cord atrophying (degenerating). SMA is an inherited disorder that disables the…

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World’s First Attempt at Human Head Transplantation for Rare SMA
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World’s First Attempt at Human Head Transplantation for Rare SMA

The line between genius and madness is often closer than people realize. Don’t tell Dr. Sergio Canavero that he can’t help his patient with spinal muscular atrophy (SMA). How many…

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This Organization Helps Those with SMA AND Holds Cool Concerts
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This Organization Helps Those with SMA AND Holds Cool Concerts

Adyn’s Dream is a charity in Athens, Ohio. The organization provides live events that benefit families and their children that have received a diagnosis of spinal muscular atrophy (SMA). The…

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Una comunità che si riunisce per aiutare un ragazzo locale con sma
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Una comunità che si riunisce per aiutare un ragazzo locale con sma

Alexander Davis è di Tipton, Indiana. Ha vissuto con atrofia muscolare spinale (SMA). SMA lo impedisce di muoversi molto e non è in grado di camminare. Pertanto, ha bisogno di…

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