ICYMI: Swimmer’s 100km Swim Raised Huntington’s Disease Awareness
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ICYMI: Swimmer’s 100km Swim Raised Huntington’s Disease Awareness

HTT gene mutations cause Huntington’s disease, a rare and inherited neurological condition. Those with a family history of Huntington’s disease may choose to undergo genetic testing to learn more, though…

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6 Myths About Ovarian Cancer Debunked
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6 Myths About Ovarian Cancer Debunked

Misconceptions exist about many rare diseases. In fact, the efforts of many advocates are focused on education and dispelling these myths. Recently, an article in the Hindustan Times did just…

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February is Turner Syndrome Awareness Month!
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February is Turner Syndrome Awareness Month!

February 1st marked the beginning of Turner Syndrome Awareness Month, which is an entire month dedicated to learning about this rare disease and raising awareness. The Turner Syndrome Foundation (TSF) has…

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It’s Congenital Heart Defect Awareness Week: Here’s What You Need to Know
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It’s Congenital Heart Defect Awareness Week: Here’s What You Need to Know

The week of February 7-14, 2022 is being recognized as Congenital Heart Defect Awareness Week, a time to help spread awareness about congenital heart defects. While individual heart defect conditions…

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