by Danielle Bradshaw from In The Cloud Copy Throughout the duration of the pandemic, it’s become abundantly clear that scientists still don't have a solid grasp on the diverse array…
by Lauren Taylor from In The Cloud Copy As the world continues to watch the effects of COVID-19 sweep around the world, many worry about getting infected. A study from…
Happy Friday! Monday, Sept. 7 is Duchenne Muscular Dystrophy Awareness Day. DMD is characterized by the inability to make the protein dystrophin in muscles and can result in heart and…
by Caitlin Seida from In The Cloud Copy Isolation as a result of COVID-19 precautions is necessary but can take its toll on your physical, mental, emotional, and spiritual well-being.…
By Lauren Taylor from In The Cloud Copy COVID-19 has flooded headlines daily since it first reared its head in late 2019 and early 2020. Some parts of the world…
A recent article in Med City News outlines the difficult choices patients must make regarding immune compromising but life-saving therapy during the 2020 pandemic. Do they postpone their treatment or…
According to a recent article in Genetic Engineering & Biotechnology News, researchers at the UofSC have presented data stating that the cannabis compound tetrahydrocannabinol (THC) is effective against respiratory distress syndrome…
There are over 24 million diagnosed cases of COVID-19 worldwide, with over 800,000 associated deaths. The viral pandemic certainly has people feeling upset, confused, and vulnerable. Unfortunately, some resources are…
What do microcephaly, Zika virus, Dengue fever, and COVID-19 have in common? According to a recent press release, HP163 could be a treatment for all four. Developed by biopharmaceutical company…
According to a story from BioSpace, a case study of a 33 year old man has confirmed that it is possible for humans to get infected with the virus responsible…
According to a story from ScienceBlog, a comprehensive study which focused on children diagnosed with coronavirus/COVID-19 produced some results that surprised scientists and suggested that children could play a greater…
In early June, PatientWorthy wrote about a group of patients called "long haulers." These people, some healthy and some with pre-existing conditions, experienced extended COVID-19 symptoms, sometimes for months after…
COVID-19 turned our worlds upside down back in March, and it has been the main focus for many medical professionals since. Because it is a novel coronavirus, we did not,…
In our 21st century world, we have become enveloped by technology. In the age of COVID-19, we are even more reliant. In an instant, so many of our every day…
If you had told me in March, when the viral pandemic began, that we'd still be staying inside 5 months later, I wouldn't believe you. Yet COVID-19 has become one…
An Australian royal commission is investigating claims that children with disabilities are being excluded from online learning, according to The Guardian. They are also looking into issues with the services…
Happy Friday! We're about halfway through Stevens-Johnson Syndrome Awareness Month. It's a type of severe skin reaction that often involves admission to a burn unit for treatment. Looking for ways…
Dr. Harvey Moldofsky Harvey Moldofsky is a professor emeritus at the University of Toronto. His area of focus is SARS, and since the onset of COVID-19, he has been fully…
Ross Douthat, a writer for the New York Times, was first diagnosed with Lyme disease and a Bartonella infection in 2015 from a deer tick bite. The effects have lingered…
by Danielle Bradshaw from In The Cloud Copy Information provided by the Michael J. Fox Foundation showed that the majority of patients that had Parkinson’s disease and also contracted COVID-19…
Happy Friday! We're about halfway through Stevens-Johnson Syndrome Awareness Month. It's a type of severe skin reaction that often involves admission to a burn unit for treatment. Looking for ways…
We have learned a lot, but still have much to learn about COVID-19. Researchers have seen a link between COVID-19 and chronic fatigue syndrome (myalgic encephalomyelitis) as well as Guillain-Barre syndrome, which…
Parkinson’s UK is nonprofit organization striving to help Parkinson's disease research continue amidst this global pandemic. Their goal is to get clinical research, and specifically studies that necessitate patients participating…
As COVID-19 continues to spread, the rush for a treatment or cure continues. Today, on August 4, there are 18.2 million diagnosed cases worldwide, with an associated 692,000 deaths.…
In 1986, Judy and Larry Pichon were married. The couple lived a happy life in Louisiana, though their days were sometimes complicated by Judy's health. She had granulomatosis with…
Sign Up With a Patient Worthy Account and Share Your Rare Story
- OR -
Make a difference, share your experiences and get paid. Opt-in and join Patient Worthy's panel for paid opportunities such as surveys, market research, patient advisory panels and more.
- OR -
Make a difference, share your experiences and get paid. Opt-in and join Patient Worthy's panel for paid opportunities such as surveys, market research, patient advisory panels and more.
