San Angelo Live reports Keelie Brydson first noticed something was wrong in the fourth grade when, she says, "my eyelid would be really droopy." Turns out that Keelie has myasthenia…
So this is kind of a bummer: Clinical trials looking into using Alexion Pharmaceutical’s drug Soliris for treatment-resistant generalized myasthenia gravis have just come up short of expectations. Soliris, which…
You know what a cool word is? Twibbon What is a Twibbon? Those things you see on people's profile pictures on Facebook and Twitter to show support for what they…
One of the hardest parts of living with a rare disease like myasthenia gravis is just finding someone else who lives with the disease. MG patients are few and far…
Jeff Joseph. Record Spotlight reports he’s not like every 24-year-old trying to figure their way through this so-called “real world.” He’s different—in challenging ways and in freakin’ cool ways. Joseph…
Happy Almost-Father's Day Patient Worthians! This week, we have some important information on the rare disease myasthenia gravis in the spirit of June being it's awareness month. Also, have you ever…
Quick question: What does multiple myeloma have to do with myasthenia gravis (MG)? On the surface, not much—one is a rare cancer of the blood, the other is an autoimmune…
Every day, millions of people wake up hoping that today will be a good day—that today, the pain will be at a bearable level. Myasthenia gravis (MG) patients know the high…
Happy June!—a month dedicated to spreading awareness about myasthenia gravis (MG) and other neuromuscular diseases. MG affects nearly 20 people in every 100,000 around the world. One of those people…
The Myasthenia Gravis Foundation of Illinois is hosting the 2016 Strides Against MG Walk. This will be the foundation's fourth year hosting, so needless to say, they know what they're doing.…
Myasthenia Gravis is a neuro-muscular autoimmune disease that can make the body go weak at any time. If you have Myasthenia or MG like me, you know that some days…
Between all the murder, betrayal, and Shakespearean-esque drama, no one would say Fox’s breakthrough, musical-hit Empire represents reality. But one can argue the show represents an important step forward for the…
Myasthenia Gravis (MG) can make it hard for its sufferers to function normally whatsoever, as is the case for Cathy Liner, a woman living in Salem, North Carolina. Cathy has dedicated her life to…
Congrats Patient Worthians! You made it to Friday! This week we have some interesting Myasthenia Gravis pain remedies. Additionally, we have a pretty sweet Acromegaly poster designed by one of our…
Myasthenia Gravis (MG) is a debilitating neuromuscular disease characterized by muscle weakness that gets worse during periods of activity and improves after resting. It is sometime fatal because the muscles…
The human body is still a mystery in so many ways to doctors and scientists. Despite having more knowledge and research to draw from, there are still illnesses that confound researchers and…
Myasthenia gravis (MG) is not exactly a common disease, but it affects young adult women most, so the question of pregnancy matters a lot. If you're noticing any unusual breathing problems,…
Have you ever thought about blinking? Right now, try not to blink for as long as you can... You blinked, didn't you? That's the function of an involuntary muscle. You…
Wheelchair pillow: $300 Monthly prescription costs: $400 The cost of having multiple autoimmune disorders? Exorbitant (and growing). On websites like PatientWorthy, we talk a lot about the physical tolls rare…
¿Tiene el nombre Miastenia Gravis un sonido un poco familiar? Probablemente no, pero si eres un fan de la serie #Empire, usted vino a través de ella cuando Lucious Lyon…
To read part 1 of Lisa's post, click here. These are some of my favorite online support for just about anything you need: Have a basic question? These forums are…
If you have a diagnosis of Myasthenia Gravis like me, here are a few things you probably already know: 1. They call us Snowflakes because none of our symptoms are…
Mi nombre es Lisa. Soy sobreviviente luchadora del cáncer 3 veces, y estoy viviendo con la enfermedad autoinmune rara Miastenia Gravis. Soy una madre, una esposa y un Consultor Integral…
Obtener un diagnóstico de cualquier tipo es aterrador. Conseguir un diagnóstico de una rara enfermedad autoinmune, que amenaza la vida que usted nunca ha oído hablar de es aterrador. Pero…
You want to know what the most popular position in bed is? Scroll down below to check out Lisa's most recent blog post to find out. For all of our…
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