Let's take a stroll down memory lane to gain some perspective on Tourette’s syndrome… Years ago, when the famed comedian and director, Larry David, produced an episode of Curb Your Enthusiasm, which…
The human body is an amazing system, when you really stop to think about it. Just taking a breath takes millions of processes—from chemical reactions to mechanical activities and more—working…
I was sitting across the table from my biology study partner on a Saturday afternoon, when I noticed he was awfully quiet all of a sudden. I looked up from…
Carcinoid tumors are very rare tumors that develop slowly in the digestive tract or in the lungs. In its early stages, there are no symptoms, but as the tumor gets…
Given how Tourette Syndrome is so wildly misunderstood, you’d be forgiven for thinking that it’s an ultra-rare disease, and that people living with it are as elusive as a Bigfoot.…
Básicamente todo el mundo ha visto afectada por los altos costos de la atención médica en algún momento de su vida, y para muchos, no mucho cambió cuando Obamacare (Affordable…
Let's talk cholesterol—the bad kind, 'cause there're different kinds. LDL cholesterol, or low-density lipoprotein cholesterol, is the kind you DON'T want, because it can lead to a whole host of…
A few months ago, I went on a rant about the FDA's failure to approve a drug that would benefit children with Duchenne muscular dystrophy, or DMD, a muscle-wasting disease.…
My cousin, Richard, lost his sight to retinitis pigmentosa when he was 35 years old. He adjusted considerably well due to his vision loss being so gradual. He had already…
No hace mucho tiempo, leí un artículo sobre la lucha heroica de un padre para luchar contra la injusticia de su hijo que está viviendo con una enfermedad autoinmune genética…
What do we deserve? If we're unwilling to take care of ourselves, should we expect others to take care of us instead? For example: If we're eating large portions of unhealthy…
Being that the month of November is upon us (can you believe it?), I want to take a moment to express what I'm thankful for. I am thankful to live…
Dear Moms Dealing with Narcolepsy, Just because all the other moms do it, doesn’t mean you have to. Too often, moms feel like they have to be given permission. For…
It's no fun when you're plagued with back pain; you know, the kind of pain that just doesn't go away. People who have ankylosing spondylitis, or AS, know this all…
Okay, yes, so this study was published in 2011, but time is obsolete, am I right? Especially when it comes to information as important as this. Listen closely. Remember leprosy?…
5 años de edad, Hadley Alexander no es normal. Cada mañana, su día comienza oficialmente a las 7 a.m. Ella convenció despierto por sus padres y, a través de un…
Para aquellos que tienen el síndrome de Sjögren, que no necesita toda la verdad. Pero para aquellos que no conocen, se asocia comúnmente con los ojos dos principales síntomas-secos y…
Happy Pre-Thanksgiving Week Friends! It is almost Thanksgiving which is one of our FAVORITE holidays here at Patient Worthy. Why? Because on this holiday, we are focused on gratitude, family and…
Immune thrombocytopenia purpura, or ITP, is a bleeding disorder caused by a lower than normal number of platelets, otherwise known as thrombocytes. Platelets are made in the bone marrow and when…
Mastocytosis is a rare immune disorder that is broken down into two categories: cutaneous (CM) systemic (SM) It affects men, women, and children in equal numbers. Children are more likely to have…
When the pituitary gland overproduces growth hormone (GH), its usually because a pituitary adenoma has formed. An adenoma is a benign tumor that causes the patient to continue to grow. Hands and feet…
Gaining 51 pounds in three years may not seem like a lot, but for Amber Mickley it meant doubling in size. When she was nine years old, Amber was small for…
Talk about rare diseases/ disorders/ conditions/ syndromes... there are only seven (SEVEN!!) documented cases of Gorlin Chaudhry Moss syndrome (GCM) in the world. All females. So, does as it come…
Fabry Disease is the number number two Lysosomal Storage disease in terms of numbers affected. It is an X-linked disease, with males passing on the mutated allele to all of their…
Todos sabemos lo que es tener un mal día, una mala semana, o incluso un mal año. Pero la cosa es que, con el tiempo, las cosas suelen trabajar fuera;…
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