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Opinion

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6 Non-motor Symptoms of Parkinson’s Told Through GIFs

6 Non-motor Symptoms of Parkinson’s Told Through GIFs

  • Post author:PW Blogger
  • Post published:June 27, 2016
  • Post category:Parkinson's Disease/Rare Disease

Not many diseases affect the nervous system like Parkinson Disease. Millions of people had no idea what Parkinson Disease was, or how life-changing it could be, until one of America’s…

Continue Reading 6 Non-motor Symptoms of Parkinson’s Told Through GIFs
6 Annoying POTS Symptoms Explained in GIFs

6 Annoying POTS Symptoms Explained in GIFs

  • Post author:Patient Worthy Contributor
  • Post published:June 23, 2016
  • Post category:Dysautonomia/POTS/Rare Disease

If you have Postural Orthostatic Tachycardia Syndrome (POTS) then you are familiar with its on-and-off symptoms and living with generally unreliable health. What's more, is you may try to explain it…

Continue Reading 6 Annoying POTS Symptoms Explained in GIFs
On A Scale From Kim K to 10, How Well Do You Know Your Rare Disease?

On A Scale From Kim K to 10, How Well Do You Know Your Rare Disease?

  • Post author:Lady Kehveen Abernathy
  • Post published:June 10, 2016
  • Post category:Acromegaly/Behçet's/Dysautonomia/HAE/Homozygous Familial Hypercholesterolemia/POTS/Rare Disease

Kim Kardashian: one of the most famous women in the world. Why, you ask? I honestly don't know. But due to that fact that so many people know and seem to…

Continue Reading On A Scale From Kim K to 10, How Well Do You Know Your Rare Disease?
How to Avoid Getting Lyme Disease In 4 Easy Steps
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How to Avoid Getting Lyme Disease In 4 Easy Steps

  • Post author:Alisha Stone
  • Post published:June 2, 2016
  • Post category:Lyme Disease

I’m not sure I’m completely tracking this article on how to stay safe from Lyme disease. Don’t get me wrong, I totally get that she’s writing an article about how…

Continue Reading How to Avoid Getting Lyme Disease In 4 Easy Steps
Should You Participate in a Clinical Trial?

Should You Participate in a Clinical Trial?

  • Post author:Patient Worthy Contributor
  • Post published:June 1, 2016
  • Post category:Rare Disease

Sometimes I hear people say “I don’t want to be a guinea pig”, “They are not going to experiment on me!”,  or similar sentiments regarding medical trials. On the one…

Continue Reading Should You Participate in a Clinical Trial?
What Profound Truth Bombs Did Empire Drop About Rare Disease?
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What Profound Truth Bombs Did Empire Drop About Rare Disease?

  • Post author:Kiki Jones
  • Post published:May 31, 2016
  • Post category:Myasthenia Gravis/Rare Disease

Between all the murder, betrayal, and Shakespearean-esque drama, no one would say Fox’s breakthrough, musical-hit Empire represents reality. But one can argue the show represents an important step forward for the…

Continue Reading What Profound Truth Bombs Did Empire Drop About Rare Disease?
If You See Something, Say Something To Avoid Medical Errors
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If You See Something, Say Something To Avoid Medical Errors

  • Post author:Erica Zahn
  • Post published:May 19, 2016
  • Post category:Rare Disease

A new study by pediatric researchers at Harvard Medical School and Boston Children’s Hospital shows that about one in 10 parents catch mistakes that physicians miss. The study suggests that parents and…

Continue Reading If You See Something, Say Something To Avoid Medical Errors
What Happens When Money and Influence Clash with Lyme Disease

What Happens When Money and Influence Clash with Lyme Disease

  • Post author:Ronald Ledsen
  • Post published:May 12, 2016
  • Post category:Lyme Disease/Rare Disease

In March, Delaware became the latest state to propose bills aimed at either combating Lyme disease or requiring expanded insurance coverage for the disease. Leaders in the state—which has one of…

Continue Reading What Happens When Money and Influence Clash with Lyme Disease
Lyme Gave Me a New Appreciation for “Scrubs”

Lyme Gave Me a New Appreciation for “Scrubs”

  • Post author:Patient Worthy Contributor
  • Post published:May 11, 2016
  • Post category:Lyme Disease/Rare Disease

You never get warned about how boring being sick is. And when I was on treatment for chronic Lyme last year, that's exactly what is was. And also excruciating, pathetic,…

Continue Reading Lyme Gave Me a New Appreciation for “Scrubs”
That Time Glenn From The Walking Dead Found a Tick in His Pants

That Time Glenn From The Walking Dead Found a Tick in His Pants

  • Post author:Patient Worthy Contributor
  • Post published:May 9, 2016
  • Post category:Lyme Disease/Rare Disease

Conan O'Brien is just a big a Walking Dead fan as I am. If you're fan of the show as well, you know they are in the back woods of…

Continue Reading That Time Glenn From The Walking Dead Found a Tick in His Pants
Compassion is the Best Drug for the Body and the Soul
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Compassion is the Best Drug for the Body and the Soul

  • Post author:Patient Worthy Contributor
  • Post published:May 6, 2016
  • Post category:Myasthenia Gravis/Rare Disease

There are treatments out there to help manage living with Myasthenia Gravis (MG). Whether your infant was born with Congential Myasthenia Gravis or you are an adult who showed a positive result…

Continue Reading Compassion is the Best Drug for the Body and the Soul
Why Mother’s Day is a Great Day for Reflection

Why Mother’s Day is a Great Day for Reflection

  • Post author:Patient Worthy Contributor
  • Post published:May 6, 2016
  • Post category:CAPS/POTS/Rare Disease

I am a Rare Mom! I love that term, because it covers so many different parts of my life. I’m unique, an individual, a working mom, and I’m also a…

Continue Reading Why Mother’s Day is a Great Day for Reflection
Still Floating Like a Butterfly: Muhammad Ali
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Still Floating Like a Butterfly: Muhammad Ali

  • Post author:PW Blogger
  • Post published:May 3, 2016
  • Post category:Parkinson's Disease/Rare Disease

Muhammad Ali is known for many things, including being the Heavyweight Boxing Champion of the World, the Rumble in the Jungle and his fight against the Vietnam War. Diagnosed with…

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In the Voice of Arnold Schwarzenegger, “I HAVE A TUMAAA!”

In the Voice of Arnold Schwarzenegger, “I HAVE A TUMAAA!”

  • Post author:Patient Worthy Contributor
  • Post published:May 2, 2016
  • Post category:Cushing Disease/Rare Disease

We introduced Patient Worthy's newest and first Contributor living with Cushing's Disease in, On a Mission to be Fit and Fabulous, Meet Liz. If you are new to Liz's series about…

Continue Reading In the Voice of Arnold Schwarzenegger, “I HAVE A TUMAAA!”
Why Rob Loves the Ancient Art of Cupping

Why Rob Loves the Ancient Art of Cupping

  • Post author:Patient Worthy Contributor
  • Post published:April 29, 2016
  • Post category:Rare Disease

This post is a follow-up to The Chronic Pain Therapies A-Listers Swear By. If you haven't already read it for an overview of what cupping is and it's therapeutic effects, be sure…

Continue Reading Why Rob Loves the Ancient Art of Cupping
The Day I Met My Pituitary Tumor

The Day I Met My Pituitary Tumor

  • Post author:Patient Worthy Contributor
  • Post published:April 29, 2016
  • Post category:Cushing Disease/Rare Disease

We introduced Patient Worthy's newest and first Contributor living with Cushing's Disease in, On a Mission to be Fit and Fabulous, Meet Liz. This is Part 2 of Liz's official interview. Part…

Continue Reading The Day I Met My Pituitary Tumor
The Chronic Pain Therapies A-Listers Swear By

The Chronic Pain Therapies A-Listers Swear By

  • Post author:Patient Worthy Contributor
  • Post published:April 28, 2016
  • Post category:Rare Disease

Chronic Pain and the Ancient Art of Cupping For those of you who have enough pills to take, you could talk to your physical therapist like Rob and opt for…

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The Secret To Surviving When You Have A Tyrosinemia Newborn
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The Secret To Surviving When You Have A Tyrosinemia Newborn

  • Post author:Alisha Stone
  • Post published:April 26, 2016
  • Post category:Rare Disease/Tyrosinemia

Carri Levy’s article about a New Jersey couple John and Amanda Miller, is one of many articles and blogs I’ve read about the Millers; it’s really struck a chord with…

Continue Reading The Secret To Surviving When You Have A Tyrosinemia Newborn
You Have Dystonia and No Money? Politicians say, So What?

You Have Dystonia and No Money? Politicians say, So What?

  • Post author:Erica Zahn
  • Post published:April 25, 2016
  • Post category:Dystonia/Rare Disease

I read an article about several people in Norfolk who were having their benefits cut by the government, and silly me, I assumed I was reading about people located in…

Continue Reading You Have Dystonia and No Money? Politicians say, So What?
Donald Trump Taught Me How To Be Less Sucky To Narcoleptics

Donald Trump Taught Me How To Be Less Sucky To Narcoleptics

  • Post author:Lady Kehveen Abernathy
  • Post published:April 19, 2016
  • Post category:Narcolepsy/Rare Disease

It's hard to relate. It's hard to relate to people trying to relate. I always like to say, "Perspective is reality." Now, you're probably thinking, No, reality is reality. Yes,…

Continue Reading Donald Trump Taught Me How To Be Less Sucky To Narcoleptics
How to Survive in a Blog-Eat-Blog World: Be Like Sjodry & Parched

How to Survive in a Blog-Eat-Blog World: Be Like Sjodry & Parched

  • Post author:EmpatheticBadass
  • Post published:April 19, 2016
  • Post category:Rare Disease/Sjogren's Syndrome

Nothing beats a live, in-person connection when it comes to feeling understood—especially when you just want to meet someone who understands your disease because, “YOU HAVE IT, TOO!?!” But, let’s…

Continue Reading How to Survive in a Blog-Eat-Blog World: Be Like Sjodry & Parched
My Illness and Your Illness Could Kill Me

My Illness and Your Illness Could Kill Me

  • Post author:Patient Worthy Contributor
  • Post published:April 15, 2016
  • Post category:Primary Immunodeficiencies

Excuse me. You’re sneezing and wiping your nose, and that makes me very uncomfortable. I have Primary Immunodeficiency Syndrome. That, in combination with whatever you have, could make me very…

Continue Reading My Illness and Your Illness Could Kill Me
Is A Vegan Diet The Best Way To Fight Sjogren’s Syndrome?
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Is A Vegan Diet The Best Way To Fight Sjogren’s Syndrome?

  • Post author:Ronald Ledsen
  • Post published:April 13, 2016
  • Post category:Rare Disease/Sjogren's Syndrome

When you’re living with a rare condition like Sjögren’s syndrome, sharing your diagnosis with a famous name can be both a blessing and a curse. Obviously, it’s helpful to be…

Continue Reading Is A Vegan Diet The Best Way To Fight Sjogren’s Syndrome?
Why I Think The Name “Bubble Boy” Has Overstayed Its Welcome

Why I Think The Name “Bubble Boy” Has Overstayed Its Welcome

  • Post author:Lady Kehveen Abernathy
  • Post published:April 12, 2016
  • Post category:Rare Disease/SCID

  Severe combined immunodeficiency (SCID)—one of the many forms of primary immune deficiencies. You may also know it as the "Bubble Boy" disease. Here at Patient Worthy, we've talked a…

Continue Reading Why I Think The Name “Bubble Boy” Has Overstayed Its Welcome
Acromegaly, Goliath and the Book that Inspired Me

Acromegaly, Goliath and the Book that Inspired Me

  • Post author:Patient Worthy Contributor
  • Post published:April 11, 2016
  • Post category:Acromegaly/Rare Disease

I am a huge Malcolm Gladwell fan. Published in 2013, Gladwell's David and Goliath: Underdogs, Misfits, and the Art of Battling Giants speaks to those who are at a cross roads, feeling defeated,…

Continue Reading Acromegaly, Goliath and the Book that Inspired Me
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Finding Light Through Story-The Power of Ambassadorship in the Endometrial Cancer Community
*cancer that cannot be removed with surgery or has spread to other parts of the body. GEJ= gastroesophageal junction (where the esophagus joins the stomach)
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