Scotch Plains, NJ Names September 18 as Usher Syndrome Awareness Day
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Scotch Plains, NJ Names September 18 as Usher Syndrome Awareness Day

At Patient Worthy, we love to see patient advocates and the impact that these advocates have on their communities. For example, brothers Ethan and Gavin Morrobel have worked tirelessly as…

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Doctors Are Unable to Diagnose Many Rare Diseases. Genome Sequencing is Changing That Scenario

After twenty-two years physician Huang Chun-jung finally learned why his vision and hearing have fallen to thirty percent of normalcy, thanks to research conducted by the National Health Research Institutes…

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LEGO to Introduce Braille Bricks for Children who are Blind! Coming to Stores in 2020

The Importance of Braille For any child with a rare disease that leads to blindness or visual impairment such as Stargardt disease, Usher Syndrome, Alström syndrome, or Retinal Blindness life…

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