For Part 1 of Laurie's Life with Dysautonomia, click here. For anyone who is still doubting Dysautonomia and POTS, I've come up with what I call the Dysautonomia Party Trick Challenge.…
I am thankful that I have been able to embrace the fight I have against the crippling disease of ankylosing spondylitis (AS) and I am thankful that in the process,…
Have you read the first part of Kathryn's interview? Check out This Honest Mom Doesn't Want You to be Ashamed of Your Rare Disease. “Moving to the west coast has…
I may look "fine" to you on the outside but what I'm experiencing on the inside is not "fine". I have a couple of different forms of an incurable invisible…
Low Starch Roasted Fall Veggies a Side Dish for Thanksgiving Servings: 2 to 4 2 large golden beets 1 bulb fennel 1 small red onion optional: 1 to 2 kohlrabi…
Okay, all of you dog lovers, listen up! Love ‘em all ya want—shower your own dog, your neighbor’s dog, a random dog in the park—with all the kisses, hugs, and…
For many like myself, the holidays can be bittersweet, and sometimes hard. Everyday, I am thankful for the people who are a part of my life. Sometimes though, I cannot…
Hey, how’d you like to be able to wear shorts anytime you want, even in the dead of winter? Sounds good, right? How about being able to eat as much…
As someone struggling with chronic illness, you are probably no stranger to the stomach problems that come along with treatment or just a reality of your disease. By now, you might…
Don't forget to share this quiz with your friends and family to see what are they thankful for this Holiday Season!
Macy's Thanksgiving Day Parade, time with family, food, Charlie Brown, and yes, more food. What else could we be talking about but.... Thanksgiving! I'm sure you have plenty to be…
I love desserts. Its “stressed” spelled backwards. There is just something relieving about being able to sink your teeth into something sweet. But when diagnosed with a chronic illness, often…
Cuando te encuentras navegando Tumblr o desplazando paso los tweets, nunca te preguntas, ¿Que es un Spoonie?, bueno pues es hora de saber. Primero que nada, un “Spoonie” es un…
Tis the season when gratitude is in the air (can you smell it?). Wait, that may be the pumpkin pie. Anyway, Thanksgiving is a time of reflection. A time where…
¿Dedo Mutilado? ¿Contusión ósea severa? ¿Espalda rota? No, este no es un catálogo de lesiones de El Club de la Lucha – estas son algunas de las lesiones que el…
A nadie le gustan las vacunas A nadie le gustan los ataques de angioedema hereditario. No es ningún secreto que las personas que están sufriendo un ataque de AEH no…
La iniciativa llamado el Patient-Focused Drug Development Initiative de la Administración Nacional de Alimentos y Fármacos (FDA por sus siglas en Ingles) ha anunciado la lista de enfermedades a las…
Chronic illness will forever affect a patient’s outlook on life. Sometimes, the outlook depends on how the patient physically feels in that moment. After my previously dependable health went downhill…
Because it's the month of #NERVEmber, we are highlighting CRPS and other nerve pain conditions. Diseases like CRPS and POTS often go unnoticed in the community at large. We are honored to bring awareness…
Meet one of the latest Immune Deficiency Foundation (IDF) Teen Council members, Baylee Gregory! Baylee was diagnosed with Combined Variable Immune Deficiency (CVID). Though any diagnosis is difficult, Baylee is…
If you or someone you know has Ehlers-Danlos syndrome (EDS), you probably know a great deal about it, making you part of a very small population. Not many people have an understanding…
If you’re a regular PatientWorthy reader, chances are you’ve been on the receiving end of this loaded statement from at least one doctor: “We’re going to need to run some…
Why is it that a disease discovered 127 years ago still falls so low under the radar? Not just that, but a disease affecting 4 million people in the United…
Lo admito; De las docenas de veces que he visto a la película "The Princess Bride", nunca me detuve a pensar en el actor Andre Roussimoff. Él es el tipo…
Not long ago, I started following some press about an adorable tween named, Maddie, from Lawndale, NC, who is living with Behçet’s disease, and I’m just smitten! At the ripe…
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