What the heck is a nanoparticle? It sounds very Twilight Zone-ish, and in some ways, nanoparticles are just that. The thing is, nanoparticles are the movers and shakers of the biologic…
Alright, folks: Get out your calendars! Or more appropriately, pull up your calendar on your phone! Now, go to May 22nd. It's a Sunday. How does your day look? Free?…
Behçet’s disease. If you’ve never heard of it, it’s a disease that causes blood vessel inflammation. If you have heard of it—or actually have Behçet’s—you’re probably well aware of the resulting…
Hay algunas enfermedades locas en el mundo de hoy, y el angioedema hereditario, o AEH, es uno de ellos. Para ver los síntomas en la acción, usted puede tener que…
Wilson Disease: the rare, autosomal (meaning it occurs in both men and women), recessive (meaning that an individual must inherit one copy of the mutated allele from each parent to…
Have you ever gone to WebMD's symptom checker for a simple pain in your stomach or a weird patch on your skin? I know I have, and more often than…
You've been wondering for months about your child's random symptoms and pain. Nothing you ever knew about kids and growing up helped you understand what was going on. Even your doctor was…
The human body is still a mystery in so many ways to doctors and scientists. Despite having more knowledge and research to draw from, there are still illnesses that confound researchers and…
Myasthenia gravis (MG) is not exactly a common disease, but it affects young adult women most, so the question of pregnancy matters a lot. If you're noticing any unusual breathing problems,…
¿Cómo obtuvieron sus rayas los pacientes con ICV? Las cebras son vistos como único. Se encuentran sólo en determinados lugares con ambientes específicos; hacen alarde de rayas que son icónicos…
Toronto street artist, Victor Fraser, is on a mission—and that mission recently took him to Paris. In the wake of the November 2015 terrorist attacks that left 130 dead and…
It’s a scenario that turns veins into ice: your certified healthy infant’s belly swells to the size of a basketball and doctors say he has less than 48-hours to live.…
“Fatal granulomatous disease of childhood.” How’s that for a stunner? In a November 2012 overview article published in the medical journal Hematology/Oncology Clinics of North America (which can be found—with…
Editor's Note: Kara LaFrance is an artist and graphic designer fighting acromegaly. She had a late diagnosis at 28 which led to surgery, radiation and ongoing medication therapy. Pain is a…
I love stories where people get what’s coming to ‘em! No, I don’t mean bad-guys comeuppance stories (although I DO enjoy an occasional one). I’m talking stories of deserving individuals…
One of the toughest parts of living with Sjögren’s syndrome is you can’t always toddle down the road to your local Sjögren’s patient get-together. There are no flashing neon signs…
above photo by Sandro Georgi Photography Kristina was symptomatic when she was around 12 or 13 but she wasn’t diagnosed with narcolepsy until over a decade later at 24. She thinks…
Imagine que es un increíblemente feliz y activa 8 años de edad, que ama los deportes. Ahora imagina las rodillas y los tobillos hasta la hinchazón. Se mira hacia abajo…
When she was two years old, Terry was diagnosed with tyrosinemia, a rare metabolic disorder makes the body unable to break down the amino acid tyrosine. Tyrosine is an important building block of…
First things first. If you're in the U.S., Sjogren's is pronounced thus: SHOW-grin's. And because the physician it's named after was Swedish, there should be little dots above the "o": Sjögren's.…
It's hard to relate. It's hard to relate to people trying to relate. I always like to say, "Perspective is reality." Now, you're probably thinking, No, reality is reality. Yes,…
Although I’m no “spring chicken,” I still grapple daily with the reality that innocent babies get sick and die, or that they don't die, but they languish and suffer; it’s…
There's a pretty large handful of primary immunodeficiency disorders, but we're only going to focus on one: chronic granulomatous disease (CGD). I know what you're thinking... What the heck is…
Nothing beats a live, in-person connection when it comes to feeling understood—especially when you just want to meet someone who understands your disease because, “YOU HAVE IT, TOO!?!” But, let’s…
De acuerdo con la Fundación de Fibrosis Quística, cerca de 30.000 personas viven con FQ en los EE.UU. y casi 1.000 nuevos casos son diagnosticados cada año. La fibrosis quística…
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