Facebook-f Twitter Instagram Podcast Youtube Tiktok Linkedin-in Pinterest Envelope Share
CLICK HERE TO SHARE YOUR STORY!
  • About
    • Meet Our Contributors
    • Meet Our Partners
    • Meet the Patient Worthy Team
    • Collaborative Content On Patient Worthy
  • Diseases
  • Share Your Story
    • Patient Worthy Content Submission Guidelines
    • Patient Worthy Writing Prompts
    • Submit Your Story
    • Patient Stories
  • Resources
    • Library
    • Events
    • Patient Worthy FAQs
  • Podcast
  • Contact
Menu
  • About
    • Meet Our Contributors
    • Meet Our Partners
    • Meet the Patient Worthy Team
    • Collaborative Content On Patient Worthy
  • Diseases
  • Share Your Story
    • Patient Worthy Content Submission Guidelines
    • Patient Worthy Writing Prompts
    • Submit Your Story
    • Patient Stories
  • Resources
    • Library
    • Events
    • Patient Worthy FAQs
  • Podcast
  • Contact
  • Join PW

Daily Archives: June 8, 2016

  1. Home>
  2. 2016>
  3. June>
  4. 8
Estos hermanos comparten el mismo desorden misterioso, y les esta amenazando la vida

Estos hermanos comparten el mismo desorden misterioso, y les esta amenazando la vida

  • Post author:Patient Worthy Contributor
  • Post published:June 8, 2016
  • Post category:CVID/Rare Disease

Su hermano dijo que el diagnóstico era imposible; Ella no estaba tan segura En febrero de 2006, Sheryl Stein, de Arlington, Virginia, sabía que algo estaba mal. Ella sufría de…

Continue Reading Estos hermanos comparten el mismo desorden misterioso, y les esta amenazando la vida
6 Ways to Know You Have Lyme Disease
Source: pixabay.com

6 Ways to Know You Have Lyme Disease

  • Post author:James Ernest Cassady
  • Post published:June 8, 2016
  • Post category:Lyme Disease

How do I know if I have Lyme disease? The Center for Disease Control has a helpful infographic showing the most common symptoms from 2001 to 2010. In order from most…

Continue Reading 6 Ways to Know You Have Lyme Disease
Hereditary Angioedema Presenting as Recurrent Acute Pancreatitis
[Source: Pixabay.com]

Hereditary Angioedema Presenting as Recurrent Acute Pancreatitis

  • Post author:James Ernest Cassady
  • Post published:June 8, 2016
  • Post category:HAE/Rare Disease

2006: "HAE is almost never suspected as a potential cause of acute pancreatitis." - PubMed.gov 2007: "Pancreatitis is rarely a complication of an acute HAE attack." - The Journal of…

Continue Reading Hereditary Angioedema Presenting as Recurrent Acute Pancreatitis
Did You Walk Your AS Off on Ankylosing Spondylitis Day?
[Source: pixabay.com]

Did You Walk Your AS Off on Ankylosing Spondylitis Day?

  • Post author:Donald Blake
  • Post published:June 8, 2016
  • Post category:Rare Disease

C’mon! Get your friends moving and start walking. We’re taking steps to cure the world of a painful spine disease that can afflict its victims in early adulthood. May 7th…

Continue Reading Did You Walk Your AS Off on Ankylosing Spondylitis Day?
One Man Proves There’s Actually Some Good in the World
Alexas_Fotos / Pixabay

One Man Proves There’s Actually Some Good in the World

  • Post author:Lady Kehveen Abernathy
  • Post published:June 8, 2016
  • Post category:Myasthenia Gravis

Happy June!—a month dedicated to spreading awareness about myasthenia gravis (MG) and other neuromuscular diseases. MG affects nearly 20 people in every 100,000 around the world. One of those people…

Continue Reading One Man Proves There’s Actually Some Good in the World
Ohio Twins with Cystic Fibrosis Spreading Awareness

Ohio Twins with Cystic Fibrosis Spreading Awareness

  • Post author:Patient Worthy Contributor
  • Post published:June 8, 2016
  • Post category:Cystic Fibrosis

Press release: 2nd June 2016 Xenia twins urge local community to take the Strawfie Challenge for cystic fibrosis awareness When Heather Scott and Nathan Young received the diagnosis that their daughter Adriana…

Continue Reading Ohio Twins with Cystic Fibrosis Spreading Awareness

Featured


Picture of Family


Metastatic Breast Cancer: Navigating Grief


Picture of Ralph Family walking


Rethinking What It Means to Live With Acromegaly


Illustration of mentor program members


The Let’s Chat CAR T One-on-One Mentor Program: Speaking with Someone Who Understands What You Are Going Through

CLICK HERE TO SHARE YOUR STORY!
We believe rare disease patients are people, not a diagnosis. Through education, awareness and some humor, we help patients, caregivers and support persons by providing relevant and often inspirational news and stories.
Our goals are to share stories, cultivate strong community, provide the latest medical findings, connect people and pioneer production of patient worthy information. Help us attain these goals by telling us a little bit about yourself!

Let’s Work Together!

Partner With Us
Submit a Story

Keep Up to Date

Subscribe to Our Newsletter
Check Out Rare Events
Get Inspired By Our Memes

Learn More

About Us
Rare Diseases and Conditions
Terms of Use
Privacy Notice
Privacy Policy for CA Residents
EU/UK Privacy Notice
Data Privacy Framework: Consumer Privacy Policy
Consumer Health Data Privacy Policy
Cookie Notice

Facebook-f Twitter Instagram Podcast Youtube Tiktok Linkedin-in Pinterest Envelope

© Copyright 2024 Patient Worthy

Sign Up With a Patient Worthy Account and Share Your Rare Story

- OR -

Sign Up For Our Patient Panel

Make a difference, share your experiences and get paid. Opt-in and join Patient Worthy's panel for paid opportunities such as surveys, market research, patient advisory panels and more.

More Info

We're Happy You're Here!

What best describes you when it comes to rare disease? (check all that apply)

What rare disease(s)/conditions are most important to you?

Visit Home Page or

Thank you for signing up for a Patient Worthy Account!

Have a rare disease story to share? Let us know

Share Story

- OR -

Sign Up For Our Patient Panel

Make a difference, share your experiences and get paid. Opt-in and join Patient Worthy's panel for paid opportunities such as surveys, market research, patient advisory panels and more.

More Info