Since the birth of industrialization, societies have wrestled with the effects of pollution. Whether it contaminates the air, water, or soil, it can negatively impact human health, and scientists are…
Helen Edgar, 41, was diagnosed with a rare disease that doctors failed to catch soon enough before her unexpected death. Her family won a settlement of £415,000 in High Court.…
Layne Rodgers is a longtime Astros fan. When he went to the World Series to see his favorite team, he had no way of predicting what would happen next. Just…
Do you love cheese? Have an irrational fear of cats? Are able to wiggle your nose? As humans, we share more than a few surface-level characteristics with the common house…
Jessica Brown is gearing up to turn 11 years old on December 20th, and her mother, Jemma, is urging people to show her some birthday love. Jessica suffers from neurofibromatosis,…
Tourette syndrome (TS) is a rare, and widely misunderstood neurological condition. It causes involuntary vocalizations or movements, which are called tics. This can appear in many forms: repetitive throat clearing…
Allan-Herndon-Dudley Syndrome can be incredibly tricky to treat, due to the blood brain barrier. New research may change the equation and eventually lead to treatment. Read the original story at Science…
Alex Pasichnyk is a 12-year-old girl from Canada, who enjoys playing piano and swimming. Last June, her life was suddenly interrupted by a rare disease. Alex has to leave her…
Happy Thanksgiving Patient Worthians! While you're still digesting, take a look at what we have in store for you this week. If you have EDS, we have some exercise tips…
Living with a chronic illness is hard enough. When you have juvenile idiopathic arthritis, you learn to manage pain and health issues at an age when most of your peers…
What do restored clawfoot tubs, spelunking meetups, and first-grade school pictures have in common? They can all be found on social media sites on the internet. But other than connecting…
For people with postural orthostatic tachycardia syndrome (POTS), everyday activities can sap a lot of strength. POTS is a form of dysautonomia that is characterized by a shortage of blood…
No one knows how difficult living with hypereosinophilic syndrome (HES) is unless you walk in the shoes of those who have it, treat it, or have a loved one who…
A rare disease patient is getting the recognition she deserves for her fearless outlook on death and her refusal to submit to affliction. On Sunday, the winners were announced for…
People find love in endless different ways. Some people meet their romantic partner through dating apps and singles groups, others meet at work or social gatherings. One place you don't…
Jessica Gilbert uses her rare neurological disorder as fuel for her creativity. The Converse College student suffers from misophonia, which translates into "the hatred of sound." People who suffer from…
Researchers at the University of Sydney have discovered something big: molecules unique to the blood of people who have Multiple Sclerosis (MS). MS, a chronic neurological disease that affects the…
Even as we advance in science and medicine, human organs are still complicated and largely mysterious. They're affected by lots of external factors, changing with temperature, pH, and access to…
Next time you order up fries, you might want to think twice before sprinkling on the sodium chloride—but not for the obvious health reasons. Sodium is a no-no for people…
28-year-old Emily Rogers was training for a half marathon in Hamilton a few years ago, when she started having trouble breathing. She never could have predicted what would follow. The…
“What would I give if I could live out of these waters? What would I pay to spend a day warm on the sand? Bet'cha on land they understand Bet…
On January 12-14, 2018 leading minds from around the world will convene in Orlando, Florida for the annual Heme Biosynthesis and the Porphyrias Recent Advances Conference. Yes, it's a mouthful,…
Kallman syndrome is a rare genetic condition that either delays puberty or stops it entirely. Its symptoms include a lack of secondary sex characteristics-- pubic hair that doesn't appear, testes…
Hello, I am Nicole Campanella, 65 years young and I share my body with lupus and now, osteoporosis. My entire life, there were symptoms of lupus or some sort of…
Move over Black Friday and Cyber Monday, the most important gifting day of the year serves a greater purpose. It's called Giving Tuesday, and for the past five years this…
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