How Many of these Celebrities with Rare Diseases Can You Name?
source: pixabay.com

How Many of these Celebrities with Rare Diseases Can You Name?

If you have a rare disease, chances are, sometimes you feel all alone in your experience. When you look around, there are people all over the world fighting similar battles.…

Continue Reading How Many of these Celebrities with Rare Diseases Can You Name?
Survey Says: European Doctors Need to Learn More About Idiopathic Pulmonary Fibrosis Treatment
slon_dot_pics / Pixabay

Survey Says: European Doctors Need to Learn More About Idiopathic Pulmonary Fibrosis Treatment

If there was a proven medication to slow the progress of a chronic and deadly lung disease with no cure, why wouldn't you take it? That's the question that researchers…

Continue Reading Survey Says: European Doctors Need to Learn More About Idiopathic Pulmonary Fibrosis Treatment
Scientists Develop New Treatment to Combat Rare Childhood Brain Cancer
Source: Pixabay

Scientists Develop New Treatment to Combat Rare Childhood Brain Cancer

University of California, San Francisco scientists have developed a new vaccine that treats diffuse intrinsic pontine glioma (DIPG), a rare childhood brain tumor. To learn more about DIPG, click here. Great…

Continue Reading Scientists Develop New Treatment to Combat Rare Childhood Brain Cancer
Looking for Romantic Gift Ideas? This Woman Gave Her Soul Mate Her Kidney
Source: Pixabay

Looking for Romantic Gift Ideas? This Woman Gave Her Soul Mate Her Kidney

It was a classic story of boy-on-dialysis-waiting-for-a-kidney-transplant meets girl. The year was 1997. Larry Wetsch's kidneys were in dire state, hardening due to a rare disease called glomerulonephritis. Glomerulonephritis happens when…

Continue Reading Looking for Romantic Gift Ideas? This Woman Gave Her Soul Mate Her Kidney
Drug Clinical Trial Reports Back Positive Results for Rare Bone Disease
Source: Pixabay

Drug Clinical Trial Reports Back Positive Results for Rare Bone Disease

Great news for the rare disease community! Ultragenyx Pharmaceuticals reported back positive results from its phase 3 study of the treatment drug burosumab in adults with X-linked hypophosphatemia (XLH). XLH…

Continue Reading Drug Clinical Trial Reports Back Positive Results for Rare Bone Disease
Close Menu