According to a publication from EurekAlert, researchers from the University of Oklahoma College of Medicine (OUCM) recently published a study in the journal Gastroenterology suggesting how cachexia is triggered in…
According to a story from Find Me Cure, June is myasthenia gravis awareness month. Dr. Kemi Olawaiye-Dampson was first diagnosed with the disease after she gave birth to her first…
Ten-year-old Pennsylvania boy Josh Shorb has been hard at work raising money -- and awareness -- for a very rare disease he has, in an ultimate show of paying it…
According to a publication from the Arizona BioIndustry Association, Dr. Rachna Shroff and a team of researchers from the Arizona Cancer Center are studying the use of nab-paclitaxel (a pancreatic…
According to a story from Pharmaceutical Technology, the drug developer FibroGen's phase 3 clinical trial testing pamrevlumab as a treatment for idiopathic pulmonary fibrosis could be in trouble. While the…
According to a publication from the BBC, researchers with King's College London believe they've identified early biomarkers for Parkinson's disease that could help physicians predict who will be affected up…
According to a story from Newswise, scientists affiliated with the Huntsman Cancer Institute (HCI) of the University of Utah have found in recent lab studies that the experimental drug selinexor…
Sun's out, school's closed, summer's in full swing -- let's set aside some time to talk about juvenile idiopathic arthritis in the month of July! What is JIA? Juvenile idiopathic…
Researchers are studying gene replacement therapy in rare diseases at UT Southwestern Medical Center. Many rare diseases are caused from a defect in a single gene, so replacing the defective…
According to a story from metro.co.uk, many rare diseases and chronic conditions do not necessarily make a person look sick a lot of the time. This can make it harder…
According to a press release from the California Institute for Regenerative Medicine (CIRM), the Institute's governing body has approved a grant of nearly $12 million to University of California, San…
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Kris Newby and her husband were unaware that they both had been bitten by ticks while on vacation on a small ”Vineyard” island. An article that appeared recently in…
According to a story from mirror.co.uk, Jack Ruddock, aged four, had always been an endearing and good spirited child, but his life took a dramatic turn when he was hospitalized…
According to a story from cmfblog.org.uk, caregiving could be another career field that will ultimately see automation replace human workers. While it may seem difficult and even a bit creepy…
According to a story from Healio, a recent study found that sarcoidosis patients that were diagnosed with the disease when they were older tended to have more severe disease and…
According to a story from Markets Insider, the biopharmaceutical company Camurus has recently issued an announcement indicating that the US Food and Drug Administration (FDA) has accepted the company's Investigational…
According to a story from The Columbian, twins Jill Noe and Whitney Bliesner had developed a deep bond during their childhood days growing up in Oregon. However, they did not…
According to a story from BBC, nine year old Sam Short has been trying an experimental drug for three years that aims to improve his growth. This is because he…
According to a story from globenewswire.com, the gene and cell therapy company Abeona Therapeutics, Inc. has recently announced that its experimental gene therapy ABO-202 has earned Fast Track designation from…
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Each year over eighteen thousand people in the United States are diagnosed with diffuse large B-cell lymphoma (DLBCL) a common type of non-Hodgkin lymphoma. A recent FDA news release…
Anita Lawson was paying the doctor a visit for her annual checkup in 2003 when she was told something that surprised her: she had anemia. She had some issues with…
According to a story from seas.harvard.edu, Harvard freshman Kavya Kopparapu was reading a story about the late Senator John McCain's diagnosis with glioblastoma, a deadly brain cancer. She was stunned…
According to a story from ScienceBlog, the results of an international research study which was led by a team of scientists in Oakland, California and Munich, Germany, has led to…
Emily Dover This is Emily Dover's story. At birth- perfectly healthy newborn, smaller than her siblings (8 pounds) 1 week- was having trouble sleeping and began crying in pain 4…
In May 2016, I was diagnosed with a rare genetic neurological disease called adrenoleukodystrophy (ALD). Sadly, it's incurable and there's no medication to ease my condition. Since then, my life…
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