The Effects of Race on Pulmonary Arterial Hypertension Outcomes
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The Effects of Race on Pulmonary Arterial Hypertension Outcomes

According to a story from consultant360.com, a recent study was conducted in order to determine if racial ancestry had any impacts on outcomes in the rare disease pulmonary arterial hypertension…

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India Has Introduced a New Rare Disease Policy Draft, But it Doesn’t Benefit all Rare Patients
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India Has Introduced a New Rare Disease Policy Draft, But it Doesn’t Benefit all Rare Patients

India first drafted a national rare disease policy back in 2017. Unfortunately, it was never enacted due to budgeting and implementation issues. This draft included suggestions such as a corpus…

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Seelos Therapeutics Proposes New Treatment for Sanfilippo Syndrome
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Seelos Therapeutics Proposes New Treatment for Sanfilippo Syndrome

Seelos Therapeutics has won a meeting with the European Medicines Agency (EMA) to advance its therapy, trehalose, for the treatment of neuro-degenerative diseases, specifically Sanfilippo syndrome. At this meeting, which…

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A 1,000 Patient Trial for Acute Lymphoblastic Leukemia and Other Hematologic Malignancies is Now Enrolling
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A 1,000 Patient Trial for Acute Lymphoblastic Leukemia and Other Hematologic Malignancies is Now Enrolling

The Platform Notable's automated technology platform was created to help predict which patients would respond better to which therapies. As no patient is the same, this study is paramount. Notable…

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As the ACA Faces Another Court Challenge, Patient Groups Urge Quick Action
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As the ACA Faces Another Court Challenge, Patient Groups Urge Quick Action

According to a story from newsroom.heart.org, one of the most substantial domestic policy achievements of the Obama administration was the passage of the Affordable Care Act (ACA). Since its passage,…

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Let’s Talk Spoonies and Compression Socks!
Compression socks come in all different styles and patterns so even though this image is from a stock website, we have no way of knowing these guys AREN'T wearing compression socks.

Let’s Talk Spoonies and Compression Socks!

I've been hearing people buzz about compression socks/stockings for a while, but I've never invested in a pair myself. They're basically what they sound like-- socks or stockings that... compress.…

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Searching for the Cause of Lung Disease in Systemic Juvenile Idiopathic Arthritis
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Searching for the Cause of Lung Disease in Systemic Juvenile Idiopathic Arthritis

  According to a recent article in MedPage Today’s 2019 year-end review, the number of life-threatening lung diseases in systemic juvenile idiopathic arthritis (sJIA) patients has been increasing. sJIA is…

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