Sanofi is Making Strides in Lysosomal Storage Disease Research

Sanofi There are an estimated 350 million rare disease patients across the world. Many conditions still don't have treatments. However, there are scientists dedicating their lives solely to this endeavor.…

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Chloroquine was Touted to Treat Coronavirus. Now, This Sjögren’s Syndrome Patient Can’t Find It
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Chloroquine was Touted to Treat Coronavirus. Now, This Sjögren’s Syndrome Patient Can’t Find It

According to a story from Buzzfeed News, Sharon Greenstein, who lives with the rare autoimmune disease known as Sjögren's syndrome, can no longer find the drug that she uses for…

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New Research Discovers Childhood Neurodegenerative Disorder
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New Research Discovers Childhood Neurodegenerative Disorder

Researchers from the Murdoch Children’s Research Institute (MCRI) have recently discovered a previously unknown and uncharted neurodegenerative disorder. This rare disorder, which has not yet been named, affects children. It…

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I Am Patient: Why We’re Staying Home

  Patient Worthy's main focus is to share information and help patients in any way we can.  We recently saw this video and thought that it was relevant for our followers. Created by Snow Companies, it is a virtually co-created user-generated video…

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