By Natalie Homan from In The Cloud Copy Rochelle was a 28-year-old mom of two when she went to sleep one night feeling perfectly normal. A few hours later, she…
Chive Charities is a 501(c)3 non-profit organization committed to providing patient advocacy and support. They have raised money for a young girl with a mutated CAMK2B gene to receive intensive physical therapy at…
by Danielle Bradshaw from In The Cloud Copy A year-long study has shown that Tracleer greatly reduces the skin-related symptoms of scleroderma. The results also showed that although it helped…
by Jodee Redmond from In the Cloud Copy Emma Larson’s parents were not particularly concerned when their daughter wasn’t standing or walking by her first birthday. They figured that plenty of children had not reached…
May is recognized annually as Cystic Fibrosis (CF) Awareness Month. Each year, this rare disease community comes together in order to help spread awareness about cystic fibrosis among the general…
When Shellye Horowitz was younger, she had a clear link to the rare disease community: her father. He had hemophilia and, much like many patients, relied on blood clotting factor…
Researchers at the University of Houston have been investigating lupus nephritis and discovered that there are race-specific urinary biomarkers. Hugh Roy and his team have found that there are specific…
Bronchiectasis News covers a potentially beneficial treatment for patients with bronchiectasis: bubble-positive expiratory pressure, or Bubble-PEP. These devices help clear mucus from the lungs. Although other forms of airway clearance…
According to BioTechniques, American researchers have taken a new, hands-on approach to learning more about cytomegalovirus-induced microcephaly. Although cytomegalovirus has been linked to microcephaly, the topic is somewhat under researched.…
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