According to a recent article published in Science Daily, twenty years of research is being challenged by a team of Cambridge University scientists. The new findings of the team of…
According to a recent article, Connie Lee Batlevi, MD, PhD, who is a medical oncologist, recently shared her experiences and knowledge pertaining to the treatment of follicular lymphoma. Follicular Lymphoma…
For as long as she can remember, Nancy Yu has been entranced by the intersection of science and technology. In fact, as she describes it, she imagines a world in…
How do cytotoxic T lymphocytes (TILs) play a role in ovarian cancer outcomes? What underlying biological activities or cellular interactions help stimulate TILs to destroy or damage cancerous cells? According…
In June 2021, Health Canada approved TRIKAFTA (elexacaftor/tezacaftor/ivacaftor) for patients with cystic fibrosis (CF), with at least one F508del mutation, aged 12+. According to a news release from late…
According to a recent article from Physician’s Weekly, two trials recently published are showing the results of striving to improve the management and outcomes in nonalcoholic steatohepatitis (NASH) and…
On December 2, 2021, Ultimovacs ASA ("Ultimovacs") announced via news release that its universal cancer vaccine, UV1, received Orphan Drug designation from the FDA. UV1 is designed for those…
Human beings are wired to run away from things that are painful and difficult. I sure as heck did the first 5 years of my dystonia diagnosis. It often seems that…
Welcome to the Rare Classroom, a new series from Patient Worthy. Rare Classroom is designed for the curious reader who wants to get informed on some of the rarest, most…
Cancer recurrence as a result of drug resistance has been an ongoing battle. Far too many patients start treatment, experience great results, and then suddenly have their tumor reappear. Quickly…
In 2019, Connor Dobbyn, now 13, was diagnosed with Sanfilippo syndrome type C, also known as mucopolysaccharidosis III (MPS III). After his diagnosis, his parents came to recognize that there…
When we are injured, new cells flow to the injury site and replace the body’s damaged cells. This process is called “cell migration.” According to a recent article in Science…
According to a recent article, a young girl’s struggle with mitochondrial disease has led to a mitochondrial donation bill finally being brought to vote in Parliament in Australia. Mitochondrial Diseases…
European patients with recurrent or advanced endometrial carcinoma have a new treatment option, as the European Commission (EC) has approved KEYTRUDA plus LENVIMA. Approval is specifically for adult patients whose…
A recent article in Medical Life Sciences alerts physicians to be aware of a deadly skin cancer. It is called cytotoxic cutaneous T-cell lymphoma (CTCL). According to an article in…
Doctor Jeffrey Miner, who is a member of the Alport Syndrome Foundation's (ASF) Scientific Advisory Research Network, was just awarded a Ro1 grant worth 2.25 million dollars for his research in Alport…
10-year-old Lyla McCarty has always dreamed of owning her own bakery. You see, Lyla has complex regional pain syndrome (CRPS) and often experiences periods of prolonged and intense pain. But…
According to an article posted by Morningstar, IMV Inc. has dosed the first patient in its Phase 1b trial of maveropepimut-S (MVP-S), which will investigate safety in patients with hormone…
Jon Aquino, a thirty-seven-year-old nurse, and his family were on vacation in New Jersey last August when he became seriously ill. Jon was immediately rushed to a Camden, New Jersey…
A new approach to evaluating the value and efficacy of treatment was developed by associate professor Meredith Regan ScD of Harvard’s Medical School and Dana Farber Institute. A recent article…
A new method to differentiate between two gynecologic tumors, malignant epithelial ovarian tumors (MEOTs) and borderline epithelial ovarian tumors (BEOTs), has been created by Chinese scientists from the Suzhou Institute…
CONTENT WARNING: Severe skin wounds and damage Working in rare disease is always hard- It means working in suffering and grief, but even with all our experience, we had to…
According to a recent article, a study shows the risk of getting nasopharyngeal carcinoma (NPC) varies considerably in different ethnic groups among Asian Americans. Nasopharyngeal Carcinoma (NPC) Nasopharyngeal carcinoma…
According to a recent article from Medscape, older patients being treated for Graves' disease should not be deterred from thyroidectomies, as they result in low rates of hypoparathyroidism. Graves’…
A recent article emphasized the importance of being educated about our eyes. As one of the most essential organs in the body, it’s important to know some key facts. Eye…
Sign Up With a Patient Worthy Account and Share Your Rare Story
- OR -
Make a difference, share your experiences and get paid. Opt-in and join Patient Worthy's panel for paid opportunities such as surveys, market research, patient advisory panels and more.
- OR -
Make a difference, share your experiences and get paid. Opt-in and join Patient Worthy's panel for paid opportunities such as surveys, market research, patient advisory panels and more.
