Facebook-f Twitter Instagram Podcast Youtube Tiktok Linkedin-in Pinterest Envelope Share
SHARE YOUR STORY!
  • About
    • Meet Our Contributors
    • Meet Our Partners
    • Meet the Patient Worthy Team
    • Collaborative Content On Patient Worthy
  • Diseases
  • Share Your Story
    • Patient Worthy Content Submission Guidelines
    • Patient Worthy Writing Prompts
    • Submit Your Story
    • Patient Stories
  • Resources
    • Library
    • Events
    • Patient Worthy FAQs
  • Podcast
  • Contact
Menu
  • About
    • Meet Our Contributors
    • Meet Our Partners
    • Meet the Patient Worthy Team
    • Collaborative Content On Patient Worthy
  • Diseases
  • Share Your Story
    • Patient Worthy Content Submission Guidelines
    • Patient Worthy Writing Prompts
    • Submit Your Story
    • Patient Stories
  • Resources
    • Library
    • Events
    • Patient Worthy FAQs
  • Podcast
  • Contact
  • Join PW

Blog

  1. Home>
  2. 2016>
  3. June>
  4. 22>
  5. Rare Disease>
  6. It’s Halfway Through 2016 and We Want to Share Some Awesomeness with You!

It’s Halfway Through 2016 and We Want to Share Some Awesomeness with You!

Patient Worthy Contributor

  • June 22, 2016
  • Amyloidosis, Ankylosing Spondylitis, Cystic Fibrosis, Dysautonomia, Dystonia, Lyme Disease, Narcolepsy, POTS, Rare Disease

We are halfway through 2016 and we want to thank you Patient Worthians, old and new, for reading, sharing your stories, and supporting our patient contributors and writers!

As a thank-you, we wanted to highlight for you some of our most popular articles. Check them out below:

  1. 7 Bizarre Ways You Know You Have POTS
  2. Traumatic Experience and Grief that Comes with Chronic Illness
  3. This Mom’s Video Could Make CVID Awareness Go Viral
  4. Losing 150 lbs and Living with Dystonia
  5. Unwelcomed Advice After My Dystonia Diagnosis
  6. Move Over Barbie. This is the Model Little Girls Should Idolize
  7. Ohio Twins with Cystic Fibrosis Spreading Awareness
  8. How This Young Woman is Fighting 8 Years of Lyme Disease
  9. Why Being Mixed Race Sucks When You Have Amyloidosis
  10. This Mom’s Narcolepsy Story Will Make You Hold Your Tongue

We at Patient Worthy are dedicated to bringing you guys the best and most relevant content to your rare condition. Let us know if you’d like to add to the conversation by clicking here!

PW_Ad_3_41516

Patient Worthy Contributor

Patient Worthy Contributor

All Posts

Featured


Picture of Family


Metastatic Breast Cancer: Navigating Grief


Picture of Ralph Family walking


Rethinking What It Means to Live With Acromegaly


Illustration of mentor program members


The Let’s Chat CAR T One-on-One Mentor Program: Speaking with Someone Who Understands What You Are Going Through

SHARE YOUR STORY!
We believe rare disease patients are people, not a diagnosis. Through education, awareness and some humor, we help patients, caregivers and support persons by providing relevant and often inspirational news and stories.
Our goals are to share stories, cultivate strong community, provide the latest medical findings, connect people and pioneer production of patient worthy information. Help us attain these goals by telling us a little bit about yourself!

Let’s Work Together!

Partner With Us
Submit a Story

Keep Up to Date

Subscribe to Our Newsletter
Check Out Rare Events
Get Inspired By Our Memes

Learn More

About Us
Rare Diseases and Conditions
Terms of Use
Privacy Notice
Privacy Policy for CA Residents
EU/UK Privacy Notice
Data Privacy Framework: Consumer Privacy Policy
Consumer Health Data Privacy Policy
Cookie Notice

Facebook-f Twitter Instagram Podcast Youtube Tiktok Linkedin-in Pinterest Envelope

© Copyright 2024 Patient Worthy

Sign Up With a Patient Worthy Account and Share Your Rare Story

- OR -

Sign Up For Our Patient Panel

Make a difference, share your experiences and get paid. Opt-in and join Patient Worthy's panel for paid opportunities such as surveys, market research, patient advisory panels and more.

More Info

We're Happy You're Here!

What best describes you when it comes to rare disease? (check all that apply)

What rare disease(s)/conditions are most important to you?

Visit Home Page or

Thank you for signing up for a Patient Worthy Account!

Have a rare disease story to share? Let us know

Share Story

- OR -

Sign Up For Our Patient Panel

Make a difference, share your experiences and get paid. Opt-in and join Patient Worthy's panel for paid opportunities such as surveys, market research, patient advisory panels and more.

More Info