Here at Patient Worthy, we know how hard it can be trying to find information online about rare diseases. Blogs about personal experiences can highlight the worst aspects of a…
In 2013, the British Lung Foundation (BLF) released a Patient Charter for people living with IPF, or idiopathic pulmonary fibrosis. In it, they outline the five basic rights of people with…
We are halfway through 2016 and we want to thank you Patient Worthians, old and new, for reading, sharing your stories, and supporting our patient contributors and writers! As a…
Getting a diagnosis of idiopathic pulmonary fibrosis, or IPF, has got to be scary. It's a progressive disease and the only "cure" is a successful lung transplant (which obviously carries severe…
Miry Constantini-Souroujon is a professor in the Department of Natural Sciences at the Open University, Israel. She has spent three decades studying myasthenia gravis (MG) and ways to treat it. Here, we…
Parado frente a una multitud de gente hablando sobre su HFHo puede ser intimidante. Imagina que esa multitud fuese un panel de doctores y científicos que son parte de la…
Sign Up With a Patient Worthy Account and Share Your Rare Story
- OR -
Make a difference, share your experiences and get paid. Opt-in and join Patient Worthy's panel for paid opportunities such as surveys, market research, patient advisory panels and more.
- OR -
Make a difference, share your experiences and get paid. Opt-in and join Patient Worthy's panel for paid opportunities such as surveys, market research, patient advisory panels and more.
