Patient Worthy Contributor – Page 69

366 talking tips – Importance of talking hobbies with your doctor

Post author:Patient Worthy Contributor
Post published:April 14, 2016
Post category:Rare Disease

Mastocytosis Awareness Meme

Post author:Patient Worthy Contributor
Post published:April 14, 2016
Post category:Rare Disease

Pixabay

5 lecciones que nos trae esta madre con fibrosis quística en el 2016

Post author:Patient Worthy Contributor
Post published:April 14, 2016
Post category:Cystic Fibrosis Rare Disease

La familia Corr ha tenido un año difícil. Resistente, seguro, pero igual de feliz. Ellos han estado adaptando a la vida con su hija mayor año Harriet. Poco después del…

Meme Motivation – Believe in Yourself!

Post author:Patient Worthy Contributor
Post published:April 13, 2016
Post category:Rare Disease

Sjogren’s Awareness Meme

Post author:Patient Worthy Contributor
Post published:April 13, 2016
Post category:Rare Disease

Meme Motivation – Daily Battle for Consistency

Post author:Patient Worthy Contributor
Post published:April 13, 2016
Post category:Rare Disease

Opening a can of biscuits can be a terrifying ordeal but feeling like one... ooofff. Just in case you didn't know what a busted can of biscuits feels or looks…

“La Vecina” tiene un destino inspirador con la fibrosis quística y el Ejercicio

Post author:Patient Worthy Contributor
Post published:April 13, 2016
Post category:Cystic Fibrosis Rare Disease

Si alguna vez hubo una "girl next door", Ashley Coleman seria la manifestacion de esta idea, una mujer joven y bella, de ojos brillantes, rubia y muy activa! Ella tiene…

366 talking tips – A Doctor’s Thoughtfulness

Post author:Patient Worthy Contributor
Post published:April 12, 2016
Post category:Rare Disease

366 talking tips – Doctor’s appointments are like plays

Post author:Patient Worthy Contributor
Post published:April 12, 2016
Post category:Rare Disease

366 Talking Tips – Kindness

Post author:Patient Worthy Contributor
Post published:April 12, 2016
Post category:Rare Disease

Que tienen el alcohol y la fibrosis quística en común? Esta en los genes

Post author:Patient Worthy Contributor
Post published:April 12, 2016
Post category:Cystic Fibrosis

Ayer leí un artículo publicado en la fibrosis quística Noticias Hoy por Patricia Silva, PhD, que fue causante de mucha reflexión. Los científicos han descubierto que hay una comunidad compartida…

4 Times Grey’s Anatomy Featured Rare Disease and We Loved it

Post author:Patient Worthy Contributor
Post published:April 11, 2016
Post category:Rare Disease

Eleven seasons have come and gone (we are mid 12 now) and I remain a hard core Grey's Anatomy fan. I remember back in college for a public speaking class I…

Acromegaly, Goliath and the Book that Inspired Me

Post author:Patient Worthy Contributor
Post published:April 11, 2016
Post category:Acromegaly Rare Disease

I am a huge Malcolm Gladwell fan. Published in 2013, Gladwell's David and Goliath: Underdogs, Misfits, and the Art of Battling Giants speaks to those who are at a cross roads, feeling defeated,…

Meme Motivation – Prepare For a Wild Ride

Post author:Patient Worthy Contributor
Post published:April 11, 2016
Post category:Rare Disease

Monday Rare Disease PSA – It’s NOT all in my head

Post author:Patient Worthy Contributor
Post published:April 11, 2016
Post category:Rare Disease

When it comes to getting a rare disease diagnosis, not one person will ever tell it you it was a walk in the park. As Kathryn (a gold level patient…

Meme – The Solo Path is Full of People

Post author:Patient Worthy Contributor
Post published:April 11, 2016
Post category:Rare Disease

366 Talking Tips – When Doctors Diagnose Stress

Post author:Patient Worthy Contributor
Post published:April 11, 2016
Post category:Rare Disease

Meme – Five Sarcoidosis Facts

Post author:Patient Worthy Contributor
Post published:April 11, 2016
Post category:Rare Disease

5 maneras de hacer 2016 un año mejor #NewYearNewYou

Post author:Patient Worthy Contributor
Post published:April 11, 2016
Post category:Lyme Disease Rare Disease

Alexis Rosen fue diagnosticado con la enfermedad de Lyme crónica después de mucha confusión y mes de la búsqueda de respuestas. Ha comenzado ya la terapia con antibióticos IV. Después…

Meme Motivation – The Strength is in YOUR hands

Post author:Patient Worthy Contributor
Post published:April 10, 2016
Post category:Rare Disease

Meme Motivation – Sarcoidosis Biker

Post author:Patient Worthy Contributor
Post published:April 9, 2016
Post category:Rare Disease

Rare Disease Battles – Why Subliminal Activism Matters

Post author:Patient Worthy Contributor
Post published:April 8, 2016
Post category:Rare Disease

Raising Awareness...Activism...Advocacy... Those are just some of the words we use to demand action from anyone whether it be world leaders, industries, friends or family. Every day we engage in…

366 Talking Tips – Doctor’s Promises

Post author:Patient Worthy Contributor
Post published:April 8, 2016
Post category:Rare Disease

Editor’s Choice: Man Races to Breathe, Odd Lymie Behaviors and Narcolepsy Video Series

Post author:Patient Worthy Contributor
Post published:April 8, 2016
Post category:Cystic Fibrosis Lyme Disease Narcolepsy pulmonary arterial hypertension Rare Disease

Happy Friday Patient Worthians! This week we are highlighting a story of a man with cystic fibrosis, racing to breathe and spread awareness of exercise therapy for those with CF.…

Meme Motivation – Make The Choice to Act!

Post author:Patient Worthy Contributor
Post published:April 8, 2016
Post category:Rare Disease

366 talking tips – Importance of talking hobbies with your doctor

Mastocytosis Awareness Meme

5 lecciones que nos trae esta madre con fibrosis quística en el 2016

Meme Motivation – Believe in Yourself!

Sjogren’s Awareness Meme

Meme Motivation – Daily Battle for Consistency

“La Vecina” tiene un destino inspirador con la fibrosis quística y el Ejercicio

366 talking tips – A Doctor’s Thoughtfulness

366 talking tips – Doctor’s appointments are like plays

366 Talking Tips – Kindness

Que tienen el alcohol y la fibrosis quística en común? Esta en los genes

4 Times Grey’s Anatomy Featured Rare Disease and We Loved it

Acromegaly, Goliath and the Book that Inspired Me

Meme Motivation – Prepare For a Wild Ride

Monday Rare Disease PSA – It’s NOT all in my head

Meme – The Solo Path is Full of People

366 Talking Tips – When Doctors Diagnose Stress

Meme – Five Sarcoidosis Facts

5 maneras de hacer 2016 un año mejor #NewYearNewYou

Meme Motivation – The Strength is in YOUR hands

Meme Motivation – Sarcoidosis Biker

Rare Disease Battles – Why Subliminal Activism Matters

366 Talking Tips – Doctor’s Promises

Editor’s Choice: Man Races to Breathe, Odd Lymie Behaviors and Narcolepsy Video Series

Meme Motivation – Make The Choice to Act!

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