Patient Worthy Contributor – Page 69

Fighter > Victim – Always Fight

Post author:Patient Worthy Contributor
Post published:April 5, 2016
Post category:Rare Disease

Motivate Don’t Stagnate

Post author:Patient Worthy Contributor
Post published:April 5, 2016
Post category:Rare Disease

How to Get the Most Out of a Phone Call With Your INSURANCE Co.

Post author:Patient Worthy Contributor
Post published:April 5, 2016
Post category:Rare Disease

Living with a rare disease? Struggle with insurance coverage? Phone calls with your medical insurance company are THE WORST! But, a necessary evil. After years of struggling with insurance coverage and payment, Patient…

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La increíble nueva tecnología que todos aquellos con fibrosis quística querrá

Post author:Patient Worthy Contributor
Post published:April 5, 2016
Post category:Cystic Fibrosis

Nosotros aqui en PatientWorthy siempre estamos en la busqueda de nuevas manera para hacer mas facil la vida con una enfermedad cronica. Nos dimos cuenta sobre esta nueva tecnologia que podria ser como…

King of Comedy Laughed in the Face of Sarcoidosis

Post author:Patient Worthy Contributor
Post published:April 4, 2016
Post category:Rare Disease Sarcoidosis

Bernie Mac was a King of Comedy, but he was also living with sarcoidosis. April is sarcoidosis awareness month. What better time to honor one of the kings of comedy with…

Meme Monday Infographic – Sjögren’s and Mastocytosis

Post author:Patient Worthy Contributor
Post published:April 4, 2016
Post category:Rare Disease

Sjögren's Disease and Mastocytosis are two very different illnesses, but have one thing in common: they are VERY rare. The infographic below provides information about what the disease is, prevalence…

Myelodysplastic Syndrome Takes Moses

Post author:Patient Worthy Contributor
Post published:April 4, 2016
Post category:Myelodysplastic syndromes Rare Disease

He was suffering from the rare myelodysplastic syndrome (MDS) and fell victim to acute leukumia. The former executive director of Uganda Wildlife Authority (UWA), Moses Mapesa passed away on the morning of March…

So I Don’t Have To Pee in a Cup?!

Post author:Patient Worthy Contributor
Post published:April 4, 2016
Post category:Addison's Disease Cushing Disease Rare Disease

Measuring Late-night Salivary Cortisol (LNSC) is an alternative to blood and urine for both research and diagnostic use. No wonder patients are opting for salivary cortisol testing over blood and…

7 maneras extrañas que sabes que tienes el síndrome de taquicardia postural ortostática (POTS)

Post author:Patient Worthy Contributor
Post published:April 4, 2016
Post category:Dysautonomia Lyme Disease POTS

Antes de que me diagnosticaran oficialmente con el síndrome de taquicardia postural ortostática (POTS, por sus siglas en ingles), pensaba que los síntomas extraños eran una parte de mí ser.…

366 talking tips – Partnership Language

Post author:Patient Worthy Contributor
Post published:April 2, 2016
Post category:Rare Disease

366 Talking Tips – Golden Rules

Post author:Patient Worthy Contributor
Post published:April 2, 2016
Post category:Rare Disease

366 Talking Tips – Stop Talking!

Post author:Patient Worthy Contributor
Post published:April 2, 2016
Post category:Rare Disease

Rare Disease Meme – Lifestyle

Post author:Patient Worthy Contributor
Post published:April 2, 2016
Post category:Rare Disease

Rare Disease Meme – Coffee: A cup with of benefits

Post author:Patient Worthy Contributor
Post published:April 2, 2016
Post category:Rare Disease

Drum Roll Please and the Winner is …

Post author:Patient Worthy Contributor
Post published:April 1, 2016
Post category:Acromegaly Rare Disease

Congratulations to Kristin, the winner of a $500 travel stipend to get to the 2016 Acromegaly Community Bi-annual Meeting! Patient Worthy is so excited to meet you Kristin! We are excited to…

Editor’s Choice: 3 Powerful Messages From Inspiring Women

Post author:Patient Worthy Contributor
Post published:April 1, 2016
Post category:Acromegaly Cystinosis Dysautonomia Lyme Disease POTS Rare Disease

It's officially April and it's officially the WEEKEND! PW Contributor Alexis writes of how her experience with PTSD relates to going through the process of diagnosis and treatment of chronic…

Rare Disease Meme – Silence and Reflection

Post author:Patient Worthy Contributor
Post published:April 1, 2016
Post category:Rare Disease

Rare Disease Meme – Habit

Post author:Patient Worthy Contributor
Post published:April 1, 2016
Post category:Rare Disease

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4 Year Old with Super Cool Glasses and Myasthenia Gravis

Post author:Patient Worthy Contributor
Post published:April 1, 2016
Post category:Myasthenia Gravis Rare Disease

When Myasthenia Gravis is diagnosed in a child, it is called juvenile myasthenia gravis (JMG). But for 4 year old Julius Chatman, the diagnosis was ocular myasthenia gravis. A very rare case,…

366 Talking Tips – Watch Your Mouth!

Post author:Patient Worthy Contributor
Post published:April 1, 2016
Post category:Rare Disease

Rare Disease Meme – Pain and Sickness

Post author:Patient Worthy Contributor
Post published:April 1, 2016
Post category:Rare Disease

#SarcoidosisAwareness: Treatment

Post author:Patient Worthy Contributor
Post published:April 1, 2016
Post category:Rare Disease

we may look different on the outside, but each one of us is unique on the inside, and that holds true more so when it comes to treatment options. I'm…

Consejos sobre cómo hacer que las inyecciones para su hijo no sean traumaticas

Post author:Patient Worthy Contributor
Post published:April 1, 2016
Post category:CAPS FCAS Neonatal onset multisystem inflammatory disease Rare Disease

Los tratamientos para enfermedades autoinflamatorias comúnmente requieren un paciente para recibir inyecciones debajo de la piel, lo que puede ser difícil si usted es el padre de un niño pequeño…

Rare Disease Meme – Simplicity

Post author:Patient Worthy Contributor
Post published:April 1, 2016
Post category:Rare Disease

4 Way Too Common Narcolepsy Misconceptions

Post author:Patient Worthy Contributor
Post published:March 31, 2016
Post category:Narcolepsy

Epilepsy and Narcolepsy are related False. Epilepsy and Narcolepsy are NOT related. Sometimes, narcolepsy can be misdignosed as epilepsy. A narcoleptic experiencing symptoms of cataplexy can be mistaken for a seizure. But it…

Fighter > Victim – Always Fight

Motivate Don’t Stagnate

How to Get the Most Out of a Phone Call With Your INSURANCE Co.

La increíble nueva tecnología que todos aquellos con fibrosis quística querrá

King of Comedy Laughed in the Face of Sarcoidosis

Meme Monday Infographic – Sjögren’s and Mastocytosis

Myelodysplastic Syndrome Takes Moses

So I Don’t Have To Pee in a Cup?!

366 talking tips – Partnership Language

366 Talking Tips – Golden Rules

366 Talking Tips – Stop Talking!

Rare Disease Meme – Lifestyle

Rare Disease Meme – Coffee: A cup with of benefits

Drum Roll Please and the Winner is …

Editor’s Choice: 3 Powerful Messages From Inspiring Women

Rare Disease Meme – Silence and Reflection

Rare Disease Meme – Habit

4 Year Old with Super Cool Glasses and Myasthenia Gravis

366 Talking Tips – Watch Your Mouth!

Rare Disease Meme – Pain and Sickness

#SarcoidosisAwareness: Treatment

Consejos sobre cómo hacer que las inyecciones para su hijo no sean traumaticas

Rare Disease Meme – Simplicity

4 Way Too Common Narcolepsy Misconceptions

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