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Author: Patient Worthy Contributor

This author has written 2557 articles
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Meme Motivation – Make The Choice to Act!

Meme Motivation – Make The Choice to Act!

  • Post author:Patient Worthy Contributor
  • Post published:April 8, 2016
  • Post category:Rare Disease

Continue Reading Meme Motivation – Make The Choice to Act!
Meme Motivation – Live Free

Meme Motivation – Live Free

  • Post author:Patient Worthy Contributor
  • Post published:April 8, 2016
  • Post category:Rare Disease

Continue Reading Meme Motivation – Live Free
Remember Me?

Remember Me?

  • Post author:Patient Worthy Contributor
  • Post published:April 8, 2016
  • Post category:Dysautonomia/POTS/Rare Disease

Remember me? I’m the girl with big ambitions who refuses to allow my illnesses to get in the way. Within two months of being diagnosed with Postural Orthostatic Tachycardia Syndrome (POTS),…

Continue Reading Remember Me?
Meme Motivation – Lines and Borders Need Not Contain You

Meme Motivation – Lines and Borders Need Not Contain You

  • Post author:Patient Worthy Contributor
  • Post published:April 8, 2016
  • Post category:Rare Disease

Continue Reading Meme Motivation – Lines and Borders Need Not Contain You
Reciviendo mi primer diagnóstico de una enfermedad rara (Video Serie)

Reciviendo mi primer diagnóstico de una enfermedad rara (Video Serie)

  • Post author:Patient Worthy Contributor
  • Post published:April 8, 2016
  • Post category:CAPS/Rare Disease

Bienvenidos a la primera de muchos articulos relacionados con la Video Serie de Patient Worthy! Tuvimos el placer de entrevistar al contribuyente de PatientWorthy Kathryn Ferguson, una madre y una…

Continue Reading Reciviendo mi primer diagnóstico de una enfermedad rara (Video Serie)
366 talking tips – Background Checking Your Doc

366 talking tips – Background Checking Your Doc

  • Post author:Patient Worthy Contributor
  • Post published:April 7, 2016
  • Post category:Rare Disease

Continue Reading 366 talking tips – Background Checking Your Doc
366 Talking Tips – Sharing Your Treatment Goals

366 Talking Tips – Sharing Your Treatment Goals

  • Post author:Patient Worthy Contributor
  • Post published:April 7, 2016
  • Post category:Rare Disease

Continue Reading 366 Talking Tips – Sharing Your Treatment Goals
366 Talking Tips – Stick With The Plan

366 Talking Tips – Stick With The Plan

  • Post author:Patient Worthy Contributor
  • Post published:April 7, 2016
  • Post category:Rare Disease

Continue Reading 366 Talking Tips – Stick With The Plan
Obama+ A.C.A.+ Republicans = Brent Brown?

Obama+ A.C.A.+ Republicans = Brent Brown?

  • Post author:Patient Worthy Contributor
  • Post published:April 7, 2016
  • Post category:Rare Disease

Just when things are getting nastier and nastier on the campaign trails for both Republican and Democratic Presidential candidates, and much to the the dismay of his Far Right Republican…

Continue Reading Obama+ A.C.A.+ Republicans = Brent Brown?
366 Talking Tips – Be Honest About Your Comfort Level

366 Talking Tips – Be Honest About Your Comfort Level

  • Post author:Patient Worthy Contributor
  • Post published:April 7, 2016
  • Post category:Rare Disease

Continue Reading 366 Talking Tips – Be Honest About Your Comfort Level
366 Talking Tips – A Doctor’s Empathy

366 Talking Tips – A Doctor’s Empathy

  • Post author:Patient Worthy Contributor
  • Post published:April 7, 2016
  • Post category:Rare Disease

Continue Reading 366 Talking Tips – A Doctor’s Empathy
Man with Cystic Fibrosis Races to Help Others – Part 2
Manny and his family

Man with Cystic Fibrosis Races to Help Others – Part 2

  • Post author:Patient Worthy Contributor
  • Post published:April 7, 2016
  • Post category:Cystic Fibrosis/Rare Disease

“We all get along and race together. The family life, the company, the team, the social life, we are very much in this together.” – Manny Goguen Manny Goguen, a…

Continue Reading Man with Cystic Fibrosis Races to Help Others – Part 2
Dead Poets Dream Big

Dead Poets Dream Big

  • Post author:Patient Worthy Contributor
  • Post published:April 7, 2016
  • Post category:Rare Disease

Continue Reading Dead Poets Dream Big
Your Life Has a Purpose Past Your Rare Disease

Your Life Has a Purpose Past Your Rare Disease

  • Post author:Patient Worthy Contributor
  • Post published:April 7, 2016
  • Post category:Rare Disease

Continue Reading Your Life Has a Purpose Past Your Rare Disease
#SarcoidosisAwareness

#SarcoidosisAwareness

  • Post author:Patient Worthy Contributor
  • Post published:April 7, 2016
  • Post category:Rare Disease

Continue Reading #SarcoidosisAwareness

Este Shake Anti-inflamatorio sabe a helado

  • Post author:Patient Worthy Contributor
  • Post published:April 7, 2016
  • Post category:Rare Disease

Años antes de que me diagnosticaron la enfermedad de Lyme en etapa tardía crónica, que habían sido diagnosticados erróneamente con una enfermedad en el pecho, los ganglios linfáticos crónicamente inflamados,…

Continue Reading Este Shake Anti-inflamatorio sabe a helado
Embrace People Who Refuse to be Helpful

Embrace People Who Refuse to be Helpful

  • Post author:Patient Worthy Contributor
  • Post published:April 6, 2016
  • Post category:Rare Disease

Continue Reading Embrace People Who Refuse to be Helpful
#SarcoidosisAwareness

#SarcoidosisAwareness

  • Post author:Patient Worthy Contributor
  • Post published:April 6, 2016
  • Post category:Rare Disease

Continue Reading #SarcoidosisAwareness
Can YOU Get the Quality Health Care of the One Percenters?

Can YOU Get the Quality Health Care of the One Percenters?

  • Post author:Patient Worthy Contributor
  • Post published:April 6, 2016
  • Post category:Rare Disease

I often find myself perusing the interwebs while at work (strictly for research purposes ?) and, like an informed citizen, I was catching up on some news. I stumbled on this lovely…

Continue Reading Can YOU Get the Quality Health Care of the One Percenters?
366 Talking Tips – Communicate Your Feelings

366 Talking Tips – Communicate Your Feelings

  • Post author:Patient Worthy Contributor
  • Post published:April 6, 2016
  • Post category:Rare Disease

Continue Reading 366 Talking Tips – Communicate Your Feelings
Rocky road isn’t just an ice cream

Rocky road isn’t just an ice cream

  • Post author:Patient Worthy Contributor
  • Post published:April 6, 2016
  • Post category:Rare Disease

Continue Reading Rocky road isn’t just an ice cream
Man with Cystic Fibrosis Races to Help Others – Part 1
Manny and Race CF at Worcester 2014

Man with Cystic Fibrosis Races to Help Others – Part 1

  • Post author:Patient Worthy Contributor
  • Post published:April 6, 2016
  • Post category:Cystic Fibrosis/Rare Disease

“My biggest passion in life right now is our team and just trying to help those with CF to be active.”- Manny Goguen Twenty-four-year-old Manny Goguen, a man living with…

Continue Reading Man with Cystic Fibrosis Races to Help Others – Part 1
Participate don’t Procrastinate

Participate don’t Procrastinate

  • Post author:Patient Worthy Contributor
  • Post published:April 6, 2016
  • Post category:Rare Disease

Continue Reading Participate don’t Procrastinate
Choose Silver Linings

Choose Silver Linings

  • Post author:Patient Worthy Contributor
  • Post published:April 6, 2016
  • Post category:Rare Disease

Continue Reading Choose Silver Linings
Si usted tiene fibrosis quística, ¿estás loco a no querer un trasplante?

Si usted tiene fibrosis quística, ¿estás loco a no querer un trasplante?

  • Post author:Patient Worthy Contributor
  • Post published:April 6, 2016
  • Post category:Cystic Fibrosis/Rare Disease

Leí un artículo recientemente por Andrew Smith que me ha desconcertado, no por él, sino más bien los hechos alarmantes que discutí acerca de las personas con fibrosis quística (FQ)…

Continue Reading Si usted tiene fibrosis quística, ¿estás loco a no querer un trasplante?
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The Mentor She Wished She Had - How Elizabeth Became a Lifeline for EB
Finding Strength Together: Scott and Katie’s Journey with Advanced Kidney
You Are Not Alone: Empowering the Advanced Kidney Cancer Community
Finding Light Through Story-The Power of Ambassadorship in the Endometrial Cancer Community
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