Patient Worthy Contributor – Page 72

366 Talking Tips – Communicate Your Feelings

Post author:Patient Worthy Contributor
Post published:April 6, 2016
Post category:Rare Disease

Rocky road isn’t just an ice cream

Post author:Patient Worthy Contributor
Post published:April 6, 2016
Post category:Rare Disease

Manny and Race CF at Worcester 2014

Man with Cystic Fibrosis Races to Help Others – Part 1

Post author:Patient Worthy Contributor
Post published:April 6, 2016
Post category:Cystic Fibrosis Rare Disease

“My biggest passion in life right now is our team and just trying to help those with CF to be active.”- Manny Goguen Twenty-four-year-old Manny Goguen, a man living with…

Participate don’t Procrastinate

Post author:Patient Worthy Contributor
Post published:April 6, 2016
Post category:Rare Disease

Choose Silver Linings

Post author:Patient Worthy Contributor
Post published:April 6, 2016
Post category:Rare Disease

Si usted tiene fibrosis quística, ¿estás loco a no querer un trasplante?

Post author:Patient Worthy Contributor
Post published:April 6, 2016
Post category:Cystic Fibrosis Rare Disease

Leí un artículo recientemente por Andrew Smith que me ha desconcertado, no por él, sino más bien los hechos alarmantes que discutí acerca de las personas con fibrosis quística (FQ)…

Fighter > Victim – Always Fight

Post author:Patient Worthy Contributor
Post published:April 5, 2016
Post category:Rare Disease

Motivate Don’t Stagnate

Post author:Patient Worthy Contributor
Post published:April 5, 2016
Post category:Rare Disease

How to Get the Most Out of a Phone Call With Your INSURANCE Co.

Post author:Patient Worthy Contributor
Post published:April 5, 2016
Post category:Rare Disease

Living with a rare disease? Struggle with insurance coverage? Phone calls with your medical insurance company are THE WORST! But, a necessary evil. After years of struggling with insurance coverage and payment, Patient…

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La increíble nueva tecnología que todos aquellos con fibrosis quística querrá

Post author:Patient Worthy Contributor
Post published:April 5, 2016
Post category:Cystic Fibrosis

Nosotros aqui en PatientWorthy siempre estamos en la busqueda de nuevas manera para hacer mas facil la vida con una enfermedad cronica. Nos dimos cuenta sobre esta nueva tecnologia que podria ser como…

King of Comedy Laughed in the Face of Sarcoidosis

Post author:Patient Worthy Contributor
Post published:April 4, 2016
Post category:Rare Disease Sarcoidosis

Bernie Mac was a King of Comedy, but he was also living with sarcoidosis. April is sarcoidosis awareness month. What better time to honor one of the kings of comedy with…

Meme Monday Infographic – Sjögren’s and Mastocytosis

Post author:Patient Worthy Contributor
Post published:April 4, 2016
Post category:Rare Disease

Sjögren's Disease and Mastocytosis are two very different illnesses, but have one thing in common: they are VERY rare. The infographic below provides information about what the disease is, prevalence…

Myelodysplastic Syndrome Takes Moses

Post author:Patient Worthy Contributor
Post published:April 4, 2016
Post category:Myelodysplastic syndromes Rare Disease

He was suffering from the rare myelodysplastic syndrome (MDS) and fell victim to acute leukumia. The former executive director of Uganda Wildlife Authority (UWA), Moses Mapesa passed away on the morning of March…

So I Don’t Have To Pee in a Cup?!

Post author:Patient Worthy Contributor
Post published:April 4, 2016
Post category:Addison's Disease Cushing Disease Rare Disease

Measuring Late-night Salivary Cortisol (LNSC) is an alternative to blood and urine for both research and diagnostic use. No wonder patients are opting for salivary cortisol testing over blood and…

7 maneras extrañas que sabes que tienes el síndrome de taquicardia postural ortostática (POTS)

Post author:Patient Worthy Contributor
Post published:April 4, 2016
Post category:Dysautonomia Lyme Disease POTS

Antes de que me diagnosticaran oficialmente con el síndrome de taquicardia postural ortostática (POTS, por sus siglas en ingles), pensaba que los síntomas extraños eran una parte de mí ser.…

366 talking tips – Partnership Language

Post author:Patient Worthy Contributor
Post published:April 2, 2016
Post category:Rare Disease

366 Talking Tips – Golden Rules

Post author:Patient Worthy Contributor
Post published:April 2, 2016
Post category:Rare Disease

366 Talking Tips – Stop Talking!

Post author:Patient Worthy Contributor
Post published:April 2, 2016
Post category:Rare Disease

Rare Disease Meme – Lifestyle

Post author:Patient Worthy Contributor
Post published:April 2, 2016
Post category:Rare Disease

Rare Disease Meme – Coffee: A cup with of benefits

Post author:Patient Worthy Contributor
Post published:April 2, 2016
Post category:Rare Disease

Drum Roll Please and the Winner is …

Post author:Patient Worthy Contributor
Post published:April 1, 2016
Post category:Acromegaly Rare Disease

Congratulations to Kristin, the winner of a $500 travel stipend to get to the 2016 Acromegaly Community Bi-annual Meeting! Patient Worthy is so excited to meet you Kristin! We are excited to…

Editor’s Choice: 3 Powerful Messages From Inspiring Women

Post author:Patient Worthy Contributor
Post published:April 1, 2016
Post category:Acromegaly Cystinosis Dysautonomia Lyme Disease POTS Rare Disease

It's officially April and it's officially the WEEKEND! PW Contributor Alexis writes of how her experience with PTSD relates to going through the process of diagnosis and treatment of chronic…

Rare Disease Meme – Silence and Reflection

Post author:Patient Worthy Contributor
Post published:April 1, 2016
Post category:Rare Disease

Rare Disease Meme – Habit

Post author:Patient Worthy Contributor
Post published:April 1, 2016
Post category:Rare Disease

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4 Year Old with Super Cool Glasses and Myasthenia Gravis

Post author:Patient Worthy Contributor
Post published:April 1, 2016
Post category:Myasthenia Gravis Rare Disease

When Myasthenia Gravis is diagnosed in a child, it is called juvenile myasthenia gravis (JMG). But for 4 year old Julius Chatman, the diagnosis was ocular myasthenia gravis. A very rare case,…

366 Talking Tips – Communicate Your Feelings

Rocky road isn’t just an ice cream

Man with Cystic Fibrosis Races to Help Others – Part 1

Participate don’t Procrastinate

Choose Silver Linings

Si usted tiene fibrosis quística, ¿estás loco a no querer un trasplante?

Fighter > Victim – Always Fight

Motivate Don’t Stagnate

How to Get the Most Out of a Phone Call With Your INSURANCE Co.

La increíble nueva tecnología que todos aquellos con fibrosis quística querrá

King of Comedy Laughed in the Face of Sarcoidosis

Meme Monday Infographic – Sjögren’s and Mastocytosis

Myelodysplastic Syndrome Takes Moses

So I Don’t Have To Pee in a Cup?!

366 talking tips – Partnership Language

366 Talking Tips – Golden Rules

366 Talking Tips – Stop Talking!

Rare Disease Meme – Lifestyle

Rare Disease Meme – Coffee: A cup with of benefits

Drum Roll Please and the Winner is …

Editor’s Choice: 3 Powerful Messages From Inspiring Women

Rare Disease Meme – Silence and Reflection

Rare Disease Meme – Habit

4 Year Old with Super Cool Glasses and Myasthenia Gravis

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