5 maneras de hacer 2016 un año mejor #NewYearNewYou
Alexis Rosen fue diagnosticado con la enfermedad de Lyme crónica después de mucha confusión y mes de la búsqueda de respuestas. Ha comenzado ya la terapia con antibióticos IV. Después…
Meme Motivation – The Strength is in YOUR hands
Rare Disease Battles – Why Subliminal Activism Matters
Raising Awareness...Activism...Advocacy... Those are just some of the words we use to demand action from anyone whether it be world leaders, industries, friends or family. Every day we engage in…
Editor’s Choice: Man Races to Breathe, Odd Lymie Behaviors and Narcolepsy Video Series
Happy Friday Patient Worthians! This week we are highlighting a story of a man with cystic fibrosis, racing to breathe and spread awareness of exercise therapy for those with CF.…
Meme Motivation – Make The Choice to Act!
Remember Me?
Remember me? I’m the girl with big ambitions who refuses to allow my illnesses to get in the way. Within two months of being diagnosed with Postural Orthostatic Tachycardia Syndrome (POTS),…
Meme Motivation – Lines and Borders Need Not Contain You
Reciviendo mi primer diagnóstico de una enfermedad rara (Video Serie)
Bienvenidos a la primera de muchos articulos relacionados con la Video Serie de Patient Worthy! Tuvimos el placer de entrevistar al contribuyente de PatientWorthy Kathryn Ferguson, una madre y una…
366 talking tips – Background Checking Your Doc
366 Talking Tips – Sharing Your Treatment Goals
Obama+ A.C.A.+ Republicans = Brent Brown?
Just when things are getting nastier and nastier on the campaign trails for both Republican and Democratic Presidential candidates, and much to the the dismay of his Far Right Republican…
366 Talking Tips – Be Honest About Your Comfort Level
Man with Cystic Fibrosis Races to Help Others – Part 2
“We all get along and race together. The family life, the company, the team, the social life, we are very much in this together.” – Manny Goguen Manny Goguen, a…
Your Life Has a Purpose Past Your Rare Disease
Este Shake Anti-inflamatorio sabe a helado
Años antes de que me diagnosticaron la enfermedad de Lyme en etapa tardía crónica, que habían sido diagnosticados erróneamente con una enfermedad en el pecho, los ganglios linfáticos crónicamente inflamados,…
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