Patient Worthy Contributor – Page 70

366 talking tips – Partnership Language

Post author:Patient Worthy Contributor
Post published:April 2, 2016
Post category:Rare Disease

366 Talking Tips – Golden Rules

Post author:Patient Worthy Contributor
Post published:April 2, 2016
Post category:Rare Disease

366 Talking Tips – Stop Talking!

Post author:Patient Worthy Contributor
Post published:April 2, 2016
Post category:Rare Disease

Rare Disease Meme – Lifestyle

Post author:Patient Worthy Contributor
Post published:April 2, 2016
Post category:Rare Disease

Rare Disease Meme – Coffee: A cup with of benefits

Post author:Patient Worthy Contributor
Post published:April 2, 2016
Post category:Rare Disease

Drum Roll Please and the Winner is …

Post author:Patient Worthy Contributor
Post published:April 1, 2016
Post category:Acromegaly Rare Disease

Congratulations to Kristin, the winner of a $500 travel stipend to get to the 2016 Acromegaly Community Bi-annual Meeting! Patient Worthy is so excited to meet you Kristin! We are excited to…

Editor’s Choice: 3 Powerful Messages From Inspiring Women

Post author:Patient Worthy Contributor
Post published:April 1, 2016
Post category:Acromegaly Cystinosis Dysautonomia Lyme Disease POTS Rare Disease

It's officially April and it's officially the WEEKEND! PW Contributor Alexis writes of how her experience with PTSD relates to going through the process of diagnosis and treatment of chronic…

Rare Disease Meme – Silence and Reflection

Post author:Patient Worthy Contributor
Post published:April 1, 2016
Post category:Rare Disease

Rare Disease Meme – Habit

Post author:Patient Worthy Contributor
Post published:April 1, 2016
Post category:Rare Disease

Pixabay

4 Year Old with Super Cool Glasses and Myasthenia Gravis

Post author:Patient Worthy Contributor
Post published:April 1, 2016
Post category:Myasthenia Gravis Rare Disease

When Myasthenia Gravis is diagnosed in a child, it is called juvenile myasthenia gravis (JMG). But for 4 year old Julius Chatman, the diagnosis was ocular myasthenia gravis. A very rare case,…

366 Talking Tips – Watch Your Mouth!

Post author:Patient Worthy Contributor
Post published:April 1, 2016
Post category:Rare Disease

Rare Disease Meme – Pain and Sickness

Post author:Patient Worthy Contributor
Post published:April 1, 2016
Post category:Rare Disease

#SarcoidosisAwareness: Treatment

Post author:Patient Worthy Contributor
Post published:April 1, 2016
Post category:Rare Disease

we may look different on the outside, but each one of us is unique on the inside, and that holds true more so when it comes to treatment options. I'm…

Consejos sobre cómo hacer que las inyecciones para su hijo no sean traumaticas

Post author:Patient Worthy Contributor
Post published:April 1, 2016
Post category:CAPS FCAS Neonatal onset multisystem inflammatory disease Rare Disease

Los tratamientos para enfermedades autoinflamatorias comúnmente requieren un paciente para recibir inyecciones debajo de la piel, lo que puede ser difícil si usted es el padre de un niño pequeño…

Rare Disease Meme – Simplicity

Post author:Patient Worthy Contributor
Post published:April 1, 2016
Post category:Rare Disease

4 Way Too Common Narcolepsy Misconceptions

Post author:Patient Worthy Contributor
Post published:March 31, 2016
Post category:Narcolepsy

Epilepsy and Narcolepsy are related False. Epilepsy and Narcolepsy are NOT related. Sometimes, narcolepsy can be misdignosed as epilepsy. A narcoleptic experiencing symptoms of cataplexy can be mistaken for a seizure. But it…

Rare Disease Meme – You Know You’re Sick When

Post author:Patient Worthy Contributor
Post published:March 31, 2016
Post category:Rare Disease

Orphan Eye Disease Drug News: When Your Eyes are Affected

Post author:Patient Worthy Contributor
Post published:March 31, 2016
Post category:Behçet's Intracranial Hypertension Rare Disease Stargardt Disease

Discovery Phase Drugs for Orphan Eye Diseases IVMED-100- 80- 90 are currently without generic drug names. They are under development for the treatment of orphan eye diseases by iVeena, LLC who has 6…

#SarcoidosisAwareness: Cause

Post author:Patient Worthy Contributor
Post published:March 31, 2016
Post category:Rare Disease

RESEARCHERS BELIEVE SARCOIDOSIS IS ASSOCIATED WITH AN ABNORMAL IMMUNE SYSTEM RESPONSE, BUT WHAT TRIGGERS THIS RESPONSE IS NOT KNOWN. NOR DO DOCTORS KNOW WHETHER HEREDITY, ENVIRONMENT, OR LIFESTYLE AFFECTS THE…

#SarcoidosisAwareness: Fact!

Post author:Patient Worthy Contributor
Post published:March 31, 2016
Post category:Rare Disease

VTP-43742 enters Phase I for Ankylosing Spondylitis

Post author:Patient Worthy Contributor
Post published:March 31, 2016
Post category:Ankylosing Spondylitis Rare Disease Timely

Vitae Pharmaceuticals Announces Positive Top-Line Results From Initial Phase 1 Study of First-in-Class RORyt Inhibitor VTP-43742 in Autoimmune Disorders back in September. Vitae Pharmaceuticals, Inc. (“Vitae”) is developing VTP-43742 for…

Te diagnosticaron con una enfermedad rara: 4 cosas que puedes hacer si no hablas inglés

Post author:Patient Worthy Contributor
Post published:March 31, 2016
Post category:Rare Disease

¿Y ahora qué? Llegaste al doctor para hacerte un chequeo y sales con un diagnostico que cambia tu vida entera. Sea, Distonía, Acromegalia, Angioedema Hereditario (AEH) o la enfermedad de…

Rare Disease Meme: Doing Your Best

Post author:Patient Worthy Contributor
Post published:March 30, 2016
Post category:Rare Disease

if you give it your all, no one will be able to say that you didn't try hard enough. That applies across many possible situations but for rare disease patients,…

Rare Disease Meme – One Love

Post author:Patient Worthy Contributor
Post published:March 30, 2016
Post category:Rare Disease

focus on the good and the good will be highlighted more often than not.

Rare Disease Meme: Open up to Hope

Post author:Patient Worthy Contributor
Post published:March 30, 2016
Post category:Rare Disease

Allowing yourself to be hopeful, allowing yourself the opportunity to shape your future through the lens of hope, will make your rare disease fight that much easier. Fighting a rare…

366 talking tips – Partnership Language

366 Talking Tips – Golden Rules

366 Talking Tips – Stop Talking!

Rare Disease Meme – Lifestyle

Rare Disease Meme – Coffee: A cup with of benefits

Drum Roll Please and the Winner is …

Editor’s Choice: 3 Powerful Messages From Inspiring Women

Rare Disease Meme – Silence and Reflection

Rare Disease Meme – Habit

4 Year Old with Super Cool Glasses and Myasthenia Gravis

366 Talking Tips – Watch Your Mouth!

Rare Disease Meme – Pain and Sickness

#SarcoidosisAwareness: Treatment

Consejos sobre cómo hacer que las inyecciones para su hijo no sean traumaticas

Rare Disease Meme – Simplicity

4 Way Too Common Narcolepsy Misconceptions

Rare Disease Meme – You Know You’re Sick When

Orphan Eye Disease Drug News: When Your Eyes are Affected

#SarcoidosisAwareness: Cause

#SarcoidosisAwareness: Fact!

VTP-43742 enters Phase I for Ankylosing Spondylitis

Te diagnosticaron con una enfermedad rara: 4 cosas que puedes hacer si no hablas inglés

Rare Disease Meme: Doing Your Best

Rare Disease Meme – One Love

Rare Disease Meme: Open up to Hope

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