We write a lot about rare diseases that affect people but what about the rare diseases among animals? If you own a horse, you've likely heard of Equine Infectious Anemia…
According to a new study, people who suffer from rare disease are more prone to suffer from levels of anxiety, depression, pain and fatigue. The findings are proof that special…
2017 was a challenging year for 10-year-old Zach Pickard, but at first glance of his smile and rolling laughter, you would never expect it. Zach is among 144 children in…
A young boy suffering from a rare disease was faced with a bundle of surprises, including a surprise trip to Disney World, just in time for the holidays. The Burlington…
The world of rare disease is seeing a ray of sunshine with a viable partnership. Two powerhouses of patient advocacy are uniting together to bring about change, awareness and cure-searching.…
Every Christmas, Ray Sherbourne takes on the role of old Saint Nick, and he even has the authentic white beard to prove it, as originally reported in The Landmark. After…
Rare diseases sufferers are the unsung heroes who often fall into the shadows behind more common cancers, but some scripted and reality shows are casting a spotlight on them. In…
Skylar Marie came into the world as a beautiful healthy baby. It wasn't until 2 months later that her and her family's world would change forever. She was diagnosed with…
Drug research is taking a plunge to the underwater abyss. The nation's opioid crisis has been declared a national public health emergency. Along with the Department of Defense, the University…
Maria Menounos's talent has graced the TV screen, American journalism and occasionally, the world of professional wrestling. With WWE, she serves as a hardcore ambassador to the company. She's a…
There rare disease world has another rising hope in research and development. Her name is Christina Waters, and she is the founder and CEO of Rare Science, a California non-profit…
It's been two years since the Zika outbreak and now, two-year-olds born with microcephaly due to the infernal outbreak, are still suffering through long-term problems. Children who developed health problems…
Daniel Downing received a personal visit from certain alien robots from outer space. The Transformers Autobots came to town to hang out with the 5-year-old terminally ill boy who has…
At six years old, Benny was unable to sit up, roll over and scoot like other babies his age. Missing all the major milestones, his mother Jennie knew that something…
When she was only 16 months, Poppy was diagnosed with neurofibromatosis (NF). After 60 intense rounds of chemotherapy, she has now lost sight in one eye. NF is a rare…
An Ottowa family is overjoyed after some good news. They have just been informed that their insurance company is offering to cover $120,000 worth of treatment to cover their son's…
London's renowned Great Ormond Street Hospital (GOSH) has hit a milestone with the construction of the Zayed Centre for Research into Rare Disease in Children. The building just recently reached its…
A woman had the misfortune of losing her daughter to a rare disease caused by a reaction to medication. Now, she's speaking out to raise awareness for this debilitating condition.…
A recent study at Sanford Burnham Prebys Medical casts a ray of hope in treating multiple hereditary exostoses (MHE). MHE is a rare genetic disorder characterized by multiple noncancerous bone…
A 9-year-old boy, whose family has decided to remain anonymous, is finding relief after suffering from an incurable skin disease. According to his father, the boy was near death and…
Samuel Augustine was born 15 weeks early at Jackson Memorial Hospital with breathing problems and question marks surrounding his health. He was born with microcephaly and instantly placed on a…
Miracle workers at Queens University are working on a revolutionary method to treat patients with Lyme disease. Lyme disease is an infectious disease that springs from a tick bite's bacteria.…
Michele Holbrook is a runner-- if you spotted her jogging on the street, you wouldn't believe that her body was plagued by more than 20 tumors due to a rare…
Gideon hides it well with his infectious smile, but for over two years, he fought bravely for his life. It started when he was a mere 6-year-old toddler. Gideon had…
A five-year-old boy who spent the majority of his life battling neuroblastoma can now rest in peace. Jacob Jones passed away at a hospice with his mother and father sitting…
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