Fashion blogger Yavanna Keogh who runs Makeupmonster just took to social media the devastating news of her son's recent diagnosis, first reported by Mirror. Yavanna and her partner from Dublin,…
Corbus Pharmaceuticals has received the Development Award presented by the Cystic Fibrosis Foundation, along with $25 million to support an upcoming study, reports Financial Buzz. Corbus plans to test out…
According to Yahoo! News UK, cancer survival rates have increased over the passed ten years. However, the progress hasn't been evenly distributed across the board of varying cancers. According to…
Dena Winchester, a sophomore at Rutgers University, faces the struggles that come with her condition by advocating for change, reports New Jersey Jewish News. After she was diagnosed with lipodystrophy…
Researchers at UC-Davis Veterinary Medical Teaching Hospital look to utilize dogs and cats to help find rare disease treatments, reported The Daily Beast. Recently, two bulldogs, Darla and Spanky, with…
Getting back to the workplace post-cancer treatment is known to be good for cancer survivors, as they establish a normal routine again, but with that said, there are many factors…
After contracting an incredibly rare disease, 19-year-old star athlete, Brooke Kellett, was suddenly paralyzed, reports KY 3 News. The doctors diagnosed her with Guillain-Barre syndrome, a disease that attacks the…
While Miguel Cervantes stunned everyone during his Alexander Hamilton audition in Chicago, he couldn't help but think of his baby girl. She had just been hospitalized for something unknown at…
Alondra, a 14-year-old freshman in high school weighs only 65 pounds. This is a seemingly easy giveaway that she was sick, but initially the weight loss was attributed to her…
Ovarian cancer diagnosis is extremely rare in women under the age of 20, yet Kronenwetter teenager, Khiana Bradsaw, was diagnosed at the young age of 13-years-old, reports ABC 9 News…
Meisyn Ellison, a 13-year-old in Utah, adopted from China, battles the debilitating effects of her rare disease and now seeks to find her biological parents in hopes to give doctors…
Jahkee Johnson, a 16-year-old from Cedar Grove High School, is exceptional and accomplished for many reasons, beyond the fact that he tackles challenges and goal without the help of legs,…
Ever since New Brunswick 3-year-old, Zaccari, was born, they knew he needed a new kidney. CTV News Atlantic originally reported that Zaccari was born with congenital nephrotic syndrome, a rare…
For the longest of time, written wills were the go-to method for granting a patients end-of-life wishes, yet now videos are becoming more prominently used, originally reported by Times Herald-Record. Today…
Mary O'Callaghan has experienced more loss in the past decade than anyone should have to face in multiple lifetimes. Originally reported by the Telegraph & Argus UK, Mary lost both…
Michael Mavis, a fitness trainer from Granville, Michigan, recently experienced flu like symptoms leading to paralysis, later learning it was much more than a mild sickness, reported Grand Rapids Patch.…
Michelle Myers, a mother of seven and American citizen who has never been out of the country, suffers from a rare disease that causes her to wake up with different…
Keeping a smile on 13-year-old Bryce Fisher's face is starting to get difficult. When all of his friends are going to school and involving themselves in fun activities, Bryce has…
Natalie Grant, a critically acclaimed Christian artist, gets a Grammy nomination when she needed it the most. The Tennessean shared her story of undergoing voice threatening thyroid surgery to remove…
The Mercury News originally reported that a new cannabis based drug found success with reducing epileptic episodes in patients with Lennox-Gastaut Syndrome. They hope to have the drug available on…
Prince William has taken the last several months to get out and educate himself in worlds he's unfamiliar with. Today reported his recent venture to observing robotic surgery, which came…
February 28th has become an internationally recognized day for Rare Disease awareness and advocacy. Originally reported by Rare DR, Marquette University, in conjunction with Harmony 4 Hope, H4H, will put…
Lydia, a 16-year-old student at Ng'iya Girls High, was sent home permanently due to her rare disorder, reports Daily Nation. Lydia suffers from a disease called Cord Ischemia, and the…
Bridget Ames is a delightful, bright, smiling ball of energy who was told all the odds would be against her at a young age. Originally reported by Cape Cod Times,…
The Westmorland Gazette reports that a new drug called Perjeta, has been given the thumbs up to treat women with metastatic breast cancer in England. Metastatic breast cancer is when one's…
Sign Up With a Patient Worthy Account and Share Your Rare Story
- OR -
Make a difference, share your experiences and get paid. Opt-in and join Patient Worthy's panel for paid opportunities such as surveys, market research, patient advisory panels and more.
- OR -
Make a difference, share your experiences and get paid. Opt-in and join Patient Worthy's panel for paid opportunities such as surveys, market research, patient advisory panels and more.
