Kate Middleton Visits Boys with Hunter Syndrome and Dystonic Cerebral Palsy
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Kate Middleton Visits Boys with Hunter Syndrome and Dystonic Cerebral Palsy

  East Anglia's Children's Hospices in Norfolk, U.K., has recently opened up its new facilities after renovations. To celebrate this opening, Kate Middleton, the Duchess of Cambridge, visited and spoke…

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NeuroGen to Host No-Charge Outpatient Stem Cell Therapy Consultation Camp in Chandigarh
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NeuroGen to Host No-Charge Outpatient Stem Cell Therapy Consultation Camp in Chandigarh

According to a publication from NewZNew, the NeuroGen Brain and Spine Institute in India plans on hosting an outpatient stem cell therapy consultation camp in Chandigarh on the last day…

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New Bill Could Allow Easier Access to Complex Rehabilitation Technology for Rare Disease Patients

H.R. 2408 H.R. 2408 is a new piece of federal legislation otherwise known as the "Ensuring Access to Quality Complex Rehabilitation Technology Act." Essentially, this act creates a new category…

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Researchers are Working Hard to Understand GNAO1 Mutations: A Condition so Rare it Doesn’t Yet have a Name

"When only 100 people in the world share your child’s specific gene mutation, it is hard to find anyone who understands, including doctors." Rare diseases are at a disadvantage when…

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Kinetic Kids Provides Kids with Cerebral Palsy and Other Conditions the Chance to Play on a Team

Kinetic Kids is a nonprofit which was originally formed to keep children who needed physical therapy active outside of their actual physical therapy sessions by giving them the opportunity to…

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For Children With Debilitating Illness, the Wait for Medical Equipment Can be Agonizing
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For Children With Debilitating Illness, the Wait for Medical Equipment Can be Agonizing

According to a story from the Los Angeles Daily News, for children with debilitating rare illnesses like cerebral palsy, epilepsy, or muscular dystrophy, it can often take a long time…

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An Irish Hospital Had To Apologize Again After Mishandling The Birth of A Girl With Cerebral Palsy
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An Irish Hospital Had To Apologize Again After Mishandling The Birth of A Girl With Cerebral Palsy

According to a story from The Irish Times, the South Tipperary General Hospital issued a second apology in court after providing insufficient care to a girl named Katie Manton, who…

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