Community is Essential for Lambert-Eaton Myasthenia Syndrome Patients During the Pandemic

Quarantine during COVID-19 has been difficult for everyone. It's socially isolating, mentally draining, and physically limiting. We all find community different places. But no matter where we find it, it…

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Case Study: Guillain-Barre Syndrome in a Patient with Severe COVID-19
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Case Study: Guillain-Barre Syndrome in a Patient with Severe COVID-19

In a case study published on dovepress.com, a 17 year old girl diagnosed with COVID-19 developed Guillain-Barre syndrome, a neurological disease causing muscle weakness, as her symptoms progressed. While COVID-19…

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Long COVID/Myalgic Encephalomyelitis Continues to Receive Criticism from Psychiatrists
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Long COVID/Myalgic Encephalomyelitis Continues to Receive Criticism from Psychiatrists

According to a story from insidesources.com, many in the chronic fatigue syndrome/myalgic encephalomyelitis community has been very grateful for the news that the National Institutes of Health (NIH) has committed…

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“Long COVID” Has Brought New Attention to Myalgic Encephalomyelitis
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“Long COVID” Has Brought New Attention to Myalgic Encephalomyelitis

According to a story from PR Newswire, Solve M.E. is gathering virtually on Capitol Hill for its 5th Annual Advocacy Week, starting April 19th. A record number of people are…

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Doctor Urges His Colleagues to Apply Lessons from COVID-19 to Rare Diseases
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Doctor Urges His Colleagues to Apply Lessons from COVID-19 to Rare Diseases

  In a recent contribution to MSN, Dr. Christopher Austin, director of the NIH Advancing Translational Sciences, compared the medical community’s record-breaking approach to the COVID-19 pandemic with current efforts…

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Tips on Taking Care of Your Lungs with COVID-19 (from a successful Cystic Fibrosis patient)
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Tips on Taking Care of Your Lungs with COVID-19 (from a successful Cystic Fibrosis patient)

Note: This guide was originally published on cysticfibrosis.com Written by Imogene The cystic fibrosis community is at high risk for serious complications from COVID-19. Through a recent survey of the…

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Discussing the New COVID-19 Variants
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Discussing the New COVID-19 Variants

For nearly one year now, COVID-19 has dominated our headlines. In 2020, news emerged of SARS-CoV-2, a virus causing a global pandemic. Now, in February 2021, there are 110 million…

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