Editor’s Choice: Events on Events on Events! Help Raise Sjogren’s Awareness and BOS Awareness

Happy Friday Patient Worthians! April is Sjogren's Awareness Month! There was also a whole day dedicated to Bohring-Opitz Syndrome. The MDS Foundation has another upcoming event as well. Lastly, last month…

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Murder in the Royal Family: How Researchers Discovered Hemophilia in Queen Victoria’s Bloodline
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Murder in the Royal Family: How Researchers Discovered Hemophilia in Queen Victoria’s Bloodline

Royalty, murder, lots and lots of blood – sounds like elements from the plot of a Victorian-era thriller. Actually, this story comes straight from hemophilia history. Science Magazine published a…

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Editor’s Choice: Pharma Freebies, Gadgets, & Nightmares

Happy Friday Patient Worthians! PW Contributor Nolan is back in our Video Series with his details on dystonia treatment. We also have some cool info on EDS gadgets! What do pharmaceutical companies mean…

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The Power of Connecting: It’s Better Than Vacation!

Have a rare disease? Have you ever been to a national patient conference? These are invaluable opportunities to connect with others who share your challenges and concerns! Imagine being in…

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