Why We Need to Focus on Adherence, Not Compliance: Reporting from the WFH Congress
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Why We Need to Focus on Adherence, Not Compliance: Reporting from the WFH Congress

We often hear the term noncompliance when talking about patient-doctor relationships for individuals with hemophilia. In essence, it means the hemophilia patient hasn’t done what the doctor has asked them…

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A Haemophilia A Treatment has Been Shown to Help More Patients Than Previously Thought
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A Haemophilia A Treatment has Been Shown to Help More Patients Than Previously Thought

A drug called Hemlibra that is currently only approved for treating a subset of patients with haemophilia A has been found to be effective for wider use, reports Hemophilia News…

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A New Study Has Identified Why Patients With Hemophilia Have Such High Rates of Prosthetic Joint Infection and What Can be Done About It
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A New Study Has Identified Why Patients With Hemophilia Have Such High Rates of Prosthetic Joint Infection and What Can be Done About It

  The Orthopaedic Institute for Children (OIC) has found that improving the education of patients with hemophilia leads to a large reduction in rates of prosthetic joint infection, reports Bioportfolio.…

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Patient Deaths While Taking Hemlibra Have Been Linked to Other Causes, Investigators Say
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Patient Deaths While Taking Hemlibra Have Been Linked to Other Causes, Investigators Say

According to a story from biopharmadive.com, the pharmaceutical company Roche is reporting a total of five deaths of patients with hemophilia A that have taken the company's product Hemlibra. While…

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The Tradition of Chinese Paper Cutting is Restoring the Dignity of Hemophilia Patients
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The Tradition of Chinese Paper Cutting is Restoring the Dignity of Hemophilia Patients

According to a story from sixthtone.com, patients with hemophilia living in China are using paper cutting to help restore their dignity and reclaim control of their lives. Hemophilia is a…

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Sanofi Acquires Hemophilia Treatment Developer Bioverativ for $11.6 Billion
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Sanofi Acquires Hemophilia Treatment Developer Bioverativ for $11.6 Billion

A huge deal is underway as Sanofi looks to acquire Bioverativ for $11.6 billion with hope to enhance and strength their rare disease presence, reports Genetic Engineering & Biotechnology News.…

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The Results of This New Trial Could Be Good News For Hemophilia Patients
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The Results of This New Trial Could Be Good News For Hemophilia Patients

According to a story from the National Hemophilia Foundation, the Swedish pharmaceutical company Orphan Biovitrum announced that its first patient was registered for a new phase 4 clinical trial. The…

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