Lyme Disease – Page 6 – Patient Worthy

My Life with Lyme

Post author:Patient Worthy Contributor
Post published:May 8, 2017
Post category:Lyme Disease Rare Disease

"I have chronic Lyme Disease and it's chronic because it took so long to get it treated." William and Mary student Alexis Plofchan is the subject of a seven-minute documentary directed by…

https://pixabay.com/en/dog-boxer-sitting-woods-canine-340477/

Why Can My Dog Get a Lyme Disease Vaccine and I Can’t?

Post author:Al Pendleton
Post published:May 1, 2017
Post category:Lyme Disease Rare Disease Timely

Ever since Andrew Wakefield and his cohorts published an article in The Lancet that warned of the measles, mumps, and rubella vaccine being linked to autism and bowel obstructions, the…

https://pixabay.com/en/forest-birch-spring-sunbeam-2165356/

A Lyme Disease Outbreak is Imminent – So Why Isn’t a Vaccine?

Post author:Jean Martell
Post published:April 25, 2017
Post category:Lyme Disease Rare Disease Timely

For most of us, a nice stroll in the woods is a leisurely activity for relaxing or light cardio. But for disease ecologist Richard Ostfeld, a walk in the New York…

https://pixabay.com/en/water-bug-giant-water-bug-toe-biter-1292227/

Bitten by a Tick at 10: Her Years-Long Battle with Lyme Disease

Post author:Alexa Lee
Post published:March 31, 2017
Post category:Dysautonomia Lyme Disease POTS

The tick bit Margie when she was 10, marking the start of a battle with Lyme disease, a battle that continues to this day, into Margie’s 50s. Hers is a story…

https://pixabay.com/en/tick-common-wood-bock-ixodes-ricinus-1450271/

Be On the Lookout for Lyme Disease and Its Many Disguises

Post author:Erica Zahn
Post published:March 16, 2017
Post category:Lyme Disease Rare Disease

Ladies and gentlemen, it's that time of year again, when I put on my superhero cape, I ascend to the top of the highest mountain, and at the top of…

Source: pixabay

The Uncertainties of the Affordable Care Act and Your Rare Disease Coverage

Post author:Patient Worthy Contributor
Post published:February 28, 2017
Post category:Dysautonomia Lyme Disease POTS Rare Disease

With the new administration, questions of coverage, the ACA and how it effects those of us affected by rare disease have been causing major concern. Today at the 2017 Legislative…

Pixabay

6 Tips to Survive Lyme Treatment

Post author:Patient Worthy Contributor
Post published:February 8, 2017
Post category:Lyme Disease

Hopefully, everyone in the Lyme community knows of Yolanda Foster and her family's battle with Lyme. If not her, then perhaps Avril Lavigne. If not her, then maybe they know…

The emotions that come along with a chronic neurological illness can be a whirlwind.

Las 6 emociones que tendras cuando se te es diagnosticado con una enfermedad neurologica

Post author:Patient Worthy Contributor
Post published:January 19, 2017
Post category:Dysautonomia Lyme Disease POTS

Ser diagnosticado con una enfermedad neurológica crónica puede ser vindicación después de años de incontables visitas de especialistas, pruebas e investigaciones. Sin embargo, existe todavía un tipo de período de…

Editor’s Choice: What is Your Resolution This New Year?

Post author:Patient Worthy Contributor
Post published:December 30, 2016
Post category:Dysautonomia Dystonia Lyme Disease Myasthenia Gravis POTS Rare Disease

Happy Almost-New-Year Patient Worthians! What is your new year resolution? As someone living with a chronic illness, mine is to get back to my cardiologist for that much-needed check-up I've…

La pregunta más grande después de un diagnóstico de Lyme: ¿qué sigue?

Post author:Patient Worthy Contributor
Post published:December 24, 2016
Post category:Lyme Disease Rare Disease

Para ponerse al día en el viaje de la enfermedad de Lyme de Alexis, echa un vistazo a la parte 1 de su historia aquí. "En mi línea de trabajo,…

Yolanda Foster: Un abogado de la enfermedad de Lyme bienvenida

Post author:Patient Worthy Contributor
Post published:December 13, 2016
Post category:Lyme Disease

No soy un fan de la televisión de la realidad. Pero yo soy un fan cojonudo de Yolanda Foster, un ama de casa real de Beverly Hills. Aunque ella y…

[Source: pixabay.com]

Massachusetts Declares a War on Lyme

Post author:Erica Zahn
Post published:December 6, 2016
Post category:Lyme Disease

Growing up in the New York City area, the fear of ticks was drummed into me. The tiny little buggers could hitchhike home with us tucked in the waistband of…

Editor’s Choice: Thanksgiving Gratitude in the Face of Rare Disease

Post author:Patient Worthy Contributor
Post published:November 25, 2016
Post category:Acromegaly Ehlers-Danlos Syndrome Lyme Disease Rare Disease

Happy Thanksgiving Patient Worthians! We hope you are recovering from big meals and continuing to spend time with family this weekend. Editor's choice this week focuses on gratitude expressed by our…

Source: Pixabay

5 Reasons to Be Thankful This Thanksgiving

Post author:Patient Worthy Contributor
Post published:November 24, 2016
Post category:Lyme Disease

At this time last year, I was 89 lbs and at the beginning stages of recovery from a year of IV and oral antibiotics for the treatment of Lyme disease.…

Alexis and her husband

What I Learned in Lyme Recovery

Post author:Patient Worthy Contributor
Post published:October 19, 2016
Post category:Lyme Disease Rare Disease

I am beyond excited to report I have begun the process of recovery from late stage, chronic Lyme disease. A year ago, I was reading through articles, clicking on everything…

Source: pixabay.com

How to Use Your Creativity to Support Lyme Disease

Post author:Sabina Kennedy
Post published:October 13, 2016
Post category:Lyme Disease Rare Disease

When I think of creativity and crafty talent, Etsy is one of my first fleeting thoughts. I view all the shops on the website, and wonder, “How I wish I…

Editor’s Choice: What NOT to Ask, Sorry Not Sorry

Post author:Patient Worthy Contributor
Post published:August 12, 2016
Post category:Dystonia Lyme Disease Myasthenia Gravis Rare Disease

Welcome to this week's Editor's Choice! When you have a rare disease like dystonia, you come across a ton of different reactions from people in regards to your illness. One…

Hopeful News for Massachusetts Lyme Sufferers

Post author:Patient Worthy Contributor
Post published:August 9, 2016
Post category:Lyme Disease Rare Disease

As someone who went through long-term antibiotic treatment, I can speak to the tremendous financial strain it had on my family. Well, if you live in Massachusetts, new legislative action…

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What Every Spoonie’s Pantry Should Have

Post author:Patient Worthy Contributor
Post published:August 8, 2016
Post category:Dysautonomia Lyme Disease POTS Rare Disease

Because I have chronic inflammation due to Lyme disease and POTS, I'm constantly taking supplements and eating the right food to reduce that inflammation. Yes, that means I have to…

5 Reactions When I Tell Friends I Have Lyme

Post author:Patient Worthy Contributor
Post published:August 4, 2016
Post category:Lyme Disease Rare Disease

Over the last eight months, I've been in post-treatment Lyme life, allowing me to be more social. With that comes the dreaded social interactions where I have to explain why I'm tired, am…

Why Scrubs Continues to Impress in the Rare Disease World

Post author:Patient Worthy Contributor
Post published:August 2, 2016
Post category:Amyloidosis Lyme Disease Rare Disease

It's no secret that Scrubs helped me get through Lyme treatment, as it is surprisingly profound. In Season 5, Episode 6 there is a very pleasant older woman who has…

Editor’s Choice: Clean Eating, Triggers, and Deadly Mistakes

Post author:Patient Worthy Contributor
Post published:July 29, 2016
Post category:Lyme Disease Myasthenia Gravis Rare Disease

Welcome to this week's Editor's Choice! Mysthenia Gravis has to be treated delicately, as it's unpredictable and often incredibly painful. That's why the blogger we've highlighted below wants you to…

NIH Finally Funding Lyme Research the Way it Should Be

Post author:Patient Worthy Contributor
Post published:July 25, 2016
Post category:Lyme Disease Rare Disease

I love my mom. She's on Facebook, obviously. Since I got sick, she's always sharing the latest Lyme news (obviously). She's the best and incredibly supportive of a disease that some…

Don’t Let Bell’s Palsy Steal Your Smile

Post author:PW Blogger
Post published:July 18, 2016
Post category:Lyme Disease Rare Disease Sarcoidosis

You're sitting across the table with a friend having a nice conversation over dinner, when you notice something's wrong: half of your friend's face is drooping. Because you're not a…

Pixabay

This Smoothie Bowl Makes Lyme Life a Little More Tolerable

Post author:Patient Worthy Contributor
Post published:July 13, 2016
Post category:Lyme Disease

Having chronic Lyme pretty much means I am chronically fatigued, choking down so much food to try and gain energy from it, to no avail. But, I have gotten to…

My Life with Lyme

Why Can My Dog Get a Lyme Disease Vaccine and I Can’t?

A Lyme Disease Outbreak is Imminent – So Why Isn’t a Vaccine?

Bitten by a Tick at 10: Her Years-Long Battle with Lyme Disease

Be On the Lookout for Lyme Disease and Its Many Disguises

The Uncertainties of the Affordable Care Act and Your Rare Disease Coverage

6 Tips to Survive Lyme Treatment

Editor’s Choice: What is Your Resolution This New Year?

La pregunta más grande después de un diagnóstico de Lyme: ¿qué sigue?

Yolanda Foster: Un abogado de la enfermedad de Lyme bienvenida

Editor’s Choice: Thanksgiving Gratitude in the Face of Rare Disease

5 Reasons to Be Thankful This Thanksgiving

What I Learned in Lyme Recovery

How to Use Your Creativity to Support Lyme Disease

Editor’s Choice: What NOT to Ask, Sorry Not Sorry

Hopeful News for Massachusetts Lyme Sufferers

What Every Spoonie’s Pantry Should Have

5 Reactions When I Tell Friends I Have Lyme

Why Scrubs Continues to Impress in the Rare Disease World

Editor’s Choice: Clean Eating, Triggers, and Deadly Mistakes

NIH Finally Funding Lyme Research the Way it Should Be

Don’t Let Bell’s Palsy Steal Your Smile

This Smoothie Bowl Makes Lyme Life a Little More Tolerable

Metastatic Breast Cancer: Navigating Grief

Rethinking What It Means to Live With Acromegaly

The Let’s Chat CAR T One-on-One Mentor Program: Speaking with Someone Who Understands What You Are Going Through

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