The Struggles of being a Rare Disease Patient in China

The State of Rare Diseases in China The Illness Challenge Foundation (ICF) is an organization devoted to easing the burdens that rare disease patients living in China face. They accomplish this…

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How Changing to Outcome-Based Reimbursement Models is Better for Rare Disease Patients

Shifting Contracts Over the years the United States healthcare system has shifted more toward reimbursement models that are outcome-based instead of service-based. In essence, this means that instead of paying…

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First Patient Enrolled in Phase 2 Trial for Experimental RRMS Drug
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First Patient Enrolled in Phase 2 Trial for Experimental RRMS Drug

According to a publication from Multiple Sclerosis News Today, German biotechnology company Immunic Therapeutics has successfully enrolled the first participant for its phase 2 clinical trial for experimental relapsing-remitting multiple…

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Study Shows We Need Better Awareness of Pediatric Onset Multiple Sclerosis to Improve Patient Care
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Study Shows We Need Better Awareness of Pediatric Onset Multiple Sclerosis to Improve Patient Care

Multiple Sclerosis (MS) was long believed to be an illness that could only affect adults. In fact, the pediatric form of this disease was not discovered until just over 10…

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Study Confirms Multiple Sclerosis is Twice as Prevalent as We Thought
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Study Confirms Multiple Sclerosis is Twice as Prevalent as We Thought

For years the accepted estimate of multiple sclerosis (MS) patients living in the United States was 400,000. A recent study, funded by the National Multiple Sclerosis Society (NMSS) has confirmed that number is…

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New Orphan Drug Designation for Potential Spinocerebellar Ataxia Treatment
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New Orphan Drug Designation for Potential Spinocerebellar Ataxia Treatment

Spinocerebellar Ataxia (SCA) refers to a group of neurodegenerative disorders. Ataxias are a component of the nervous system which control movement. SCA occurs when the ataxias in the brain or spinal…

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How Planning a Wedding Solved the Riddle of a Sister’s Mysterious Illness
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How Planning a Wedding Solved the Riddle of a Sister’s Mysterious Illness

The Heritage Florida Jewish News reported a story about one sister's journey to her Gaucher Disease diagnosis, thanks to her older sister's wedding prep. What is Gaucher Disease? Gaucher disease…

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‘Digital Therapeutics’ Offers Interesting New Options for Treating Some Neurological Disorders
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‘Digital Therapeutics’ Offers Interesting New Options for Treating Some Neurological Disorders

Join us into the future for a moment as we take you through some exciting new developments in health tech! Just last week, the FDA cleared reSET, a mobile app that…

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A Failed Drug Could Now be Used to Treat Inflammatory Bowel Disease?
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A Failed Drug Could Now be Used to Treat Inflammatory Bowel Disease?

In 2013 researchers discovered something interesting about the protein BH4. They found that by inhibiting the protein they could reduce patient's pain. A drug was created called Quartet, and it…

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Iowa Doctors Hesitant to Certify Medical Cannabis Patients
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Iowa Doctors Hesitant to Certify Medical Cannabis Patients

According to the Des Moines Register, Iowa has a new medical marijuana program rolling out on December 1st, but many doctors in the state have reservations about enrolling patients. Iowa's…

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A Real-Life Dallas Buyers Club? Cutting Long Lines and Buying Prescription Drugs Online
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A Real-Life Dallas Buyers Club? Cutting Long Lines and Buying Prescription Drugs Online

In the movie "Dallas Buyers Club" the main character, Ron Woodroof, contracts HIV/AIDs and starts getting drugs from an organization that imports medicine from Mexico. Similarly, many London patients are…

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