• About
    • Meet Our Contributors
    • Meet Our Partners
    • Meet the Patient Worthy Team
    • Collaborative Content On Patient Worthy
  • Diseases
  • Share Your Story
    • Patient Worthy Content Submission Guidelines
    • Patient Worthy Writing Prompts
    • Submit Your Story
    • Patient Stories
  • Resources
    • Library
    • Events
    • Patient Worthy FAQs
  • Podcast
  • Contact
Menu
  • About
    • Meet Our Contributors
    • Meet Our Partners
    • Meet the Patient Worthy Team
    • Collaborative Content On Patient Worthy
  • Diseases
  • Share Your Story
    • Patient Worthy Content Submission Guidelines
    • Patient Worthy Writing Prompts
    • Submit Your Story
    • Patient Stories
  • Resources
    • Library
    • Events
    • Patient Worthy FAQs
  • Podcast
  • Contact
  • Join PW
Click Here To Share Your Story with Spinal Muscular Atrophy (SMA)
Click Here to Read More And Take Action!
Click Here To Share Your Story With MASH

caregiver story

  1. Home>
  2. caregiver story>
  3. Page 2
Sebastien Recalls His Mother’s Breast Cancer Journey – Part 2

Sebastien Recalls His Mother’s Breast Cancer Journey – Part 2

  • Post author:Patient Worthy Contributor
  • Post published:June 17, 2025
  • Post category:Breast Cancer

Editor’s Note: This is the second part of an ongoing story. The third and final part will be published Tuesday, June 25th. To read part one, click here. The initial…

Continue Reading Sebastien Recalls His Mother’s Breast Cancer Journey – Part 2
Caroline Menzia’s Caregiver Story with FOXG1 Syndrome

Caroline Menzia’s Caregiver Story with FOXG1 Syndrome

  • Post author:Patient Worthy Contributor
  • Post published:June 13, 2025
  • Post category:Lennox-Gastaut syndrome

Disclaimer: The views and opinions expressed in this article are those of the author and do not necessarily reflect the official policy or position of Patient Worthy. At just 5…

Continue Reading Caroline Menzia’s Caregiver Story with FOXG1 Syndrome
Sebastien Recalls His Mother’s Breast Cancer Journey – Part 1

Sebastien Recalls His Mother’s Breast Cancer Journey – Part 1

  • Post author:Patient Worthy Contributor
  • Post published:June 10, 2025
  • Post category:Breast Cancer

Editor's Note: This is the first part of an ongoing story. The second part will be published Tuesday, June 17th. The fluorescent lights of the hospital room hummed, a stark…

Continue Reading Sebastien Recalls His Mother’s Breast Cancer Journey – Part 1
Noah’s PPA2-Deficiency and Kathleen’s Caregiver Journey

Noah’s PPA2-Deficiency and Kathleen’s Caregiver Journey

  • Post author:Patient Worthy Contributor
  • Post published:June 5, 2025
  • Post category:Rare Disease

Three hundred and ten: The number of days we had prior to our lives forever changing. On April 13, 2022, it was a day like any other. My husband and…

Continue Reading Noah’s PPA2-Deficiency and Kathleen’s Caregiver Journey
For Jaicion: A Mother’s Strength, A Son’s Light, All in the Face of SMA

For Jaicion: A Mother’s Strength, A Son’s Light, All in the Face of SMA

  • Post author:Patient Worthy Contributor
  • Post published:May 22, 2025
  • Post category:Werdnig-Hoffmann disease

My name is Elena, mother to Jaicion. In 2021, I was pregnant with Jaicion, and the doctors ran tests that they would run on any mother-to-be. My doctor called me…

Continue Reading For Jaicion: A Mother’s Strength, A Son’s Light, All in the Face of SMA
The Ruminations of a Grin2b Mom

The Ruminations of a Grin2b Mom

  • Post author:PW Collaborator
  • Post published:March 10, 2025
  • Post category:GRIN disorder

Patient Worthy is grateful to present this article by way of the CureGRIN Foundation.  CureGRIN is a foundation founded and run by parents who are committed to improving the lives of people…

Continue Reading The Ruminations of a Grin2b Mom
A Geriatrician Gets Frontline Experience as a Caregiver

A Geriatrician Gets Frontline Experience as a Caregiver

  • Post author:Rose Duesterwald
  • Post published:December 16, 2021
  • Post category:Motor neuron disease

At first, Dr. Rebecca Elon began to notice her husband’s personality changes and an occasional lapse in judgment. These incidents occurred in 2013. Although Dr. Elon’s husband, William Adler III…

Continue Reading A Geriatrician Gets Frontline Experience as a Caregiver
  • Go to the previous page
  • 1
  • 2
The Mentor She Wished She Had - How Elizabeth Became a Lifeline for EB
Finding Strength Together: Scott and Katie’s Journey with Advanced Kidney
You Are Not Alone: Empowering the Advanced Kidney Cancer Community
Finding Light Through Story-The Power of Ambassadorship in the Endometrial Cancer Community
We believe rare disease patients are people, not a diagnosis. Through education, awareness and some humor, we help patients, caregivers and support persons by providing relevant and often inspirational news and stories.
Our goals are to share stories, cultivate strong community, provide the latest medical findings, connect people and pioneer production of patient worthy information. Help us attain these goals by telling us a little bit about yourself!

Let’s Work Together!

Partner With Us
Submit a Story

Keep Up to Date

Subscribe to Our Newsletter
Check Out Rare Events
Get Inspired By Our Memes

Learn More

About Us
Rare Diseases and Conditions
Terms of Use
Privacy Notice
Privacy Policy for CA Residents
EU/UK Privacy Notice
Data Privacy Framework: Consumer Privacy Policy
Consumer Health Data Privacy Policy
Cookie Notice

Facebook-f Twitter Instagram Podcast Youtube Tiktok Linkedin-in Pinterest Envelope

© Copyright 2024 Patient Worthy

Sign Up With a Patient Worthy Account and Share Your Rare Story

- OR -

Sign Up For Our Patient Panel

Make a difference, share your experiences and get paid. Opt-in and join Patient Worthy's panel for paid opportunities such as surveys, market research, patient advisory panels and more.

More Info

We're Happy You're Here!

What best describes you when it comes to rare disease? (check all that apply)

What rare disease(s)/conditions are most important to you?

Visit Home Page or

Thank you for signing up for a Patient Worthy Account!

Have a rare disease story to share? Let us know

Share Story

- OR -

Sign Up For Our Patient Panel

Make a difference, share your experiences and get paid. Opt-in and join Patient Worthy's panel for paid opportunities such as surveys, market research, patient advisory panels and more.

More Info