Consumers with Allergies, EoE Worry When FDA Relaxes Food Labeling Guidelines
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Consumers with Allergies, EoE Worry When FDA Relaxes Food Labeling Guidelines

  Stacey Saiontz is many things: a worker, a wife, a mother. But right now, she is concerned. As an allergy parent, or a parent whose child has severe food…

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Those with Disabilities and Rare Medical Conditions in Canada are Excluded from Financial Relief During Covid-19

Kimberly Underhay Kimberly Underhay is a Canadian who has survived cancer. She has also been diagnosed with osteoarthritis and has to use a walker. Her disabilities have left her unable…

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Sixty Year Old Multiple Myeloma Patient in Wuhan, China Treated Successfully with Tocilizumab for COVID-19

  Dr. Changcheng Zheng of the University of Science, China, recently spoke to Cancer Network about a case study indicating that tocilizumab (Actemra) could effectively treat people with multiple myeloma…

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ICYMI: A New Survey Seeks Answers About How COVID-19 is Impacting Rare Disease Patients in the United States
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ICYMI: A New Survey Seeks Answers About How COVID-19 is Impacting Rare Disease Patients in the United States

By Natalie Homan from In The Cloud Copy In the United States, a disease is considered “rare” if it affects less than 200,000 Americans at any given time. Diseases can…

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Gilead Donates 940,000 Remdesivir Doses
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Gilead Donates 940,000 Remdesivir Doses

Multiple biotechnology and pharmaceutical companies have joined in the fight against COVID-19. But one, Gilead Sciences, has been at the forefront of both progress and controversy. The company developed remdesivir,…

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Industry Leaders Team Up to Advocate for Rare Disease Patients Despite the COVID-19 Pandemic
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Industry Leaders Team Up to Advocate for Rare Disease Patients Despite the COVID-19 Pandemic

By Natalie Homan from In The Cloud Copy Two businesses that advocate for patients with rare and orphan diseases announced recently that they are teaming up to help patients get…

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