New Podcast Episode: The Power of Resiliency, feat. Multiple Myeloma Patient Advocate Keisha Hickson
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New Podcast Episode: The Power of Resiliency, feat. Multiple Myeloma Patient Advocate Keisha Hickson

Patient Worthy's award-winning podcast "Wait, How Do You Spell That? A Rare Disease Podcast" is back with a new episode. This week, Colby is sitting down with professional speaker and…

Continue Reading New Podcast Episode: The Power of Resiliency, feat. Multiple Myeloma Patient Advocate Keisha Hickson
New Podcast Episode: Epilepsy and Unmet Need, feat. The LGS Foundation and Ovid Therapeutics
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New Podcast Episode: Epilepsy and Unmet Need, feat. The LGS Foundation and Ovid Therapeutics

Patient Worthy's award-winning podcast "Wait, How Do You Spell That? A Rare Disease Podcast" is back with a new episode. This week, Colby is sitting down with Dr. Tracy Dixon-Salazar,…

Continue Reading New Podcast Episode: Epilepsy and Unmet Need, feat. The LGS Foundation and Ovid Therapeutics
New Podcast Episode: 50 Years of Supporting the TSC Community, feat. TSC Alliance President and CEO Kari Rosbeck
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New Podcast Episode: 50 Years of Supporting the TSC Community, feat. TSC Alliance President and CEO Kari Rosbeck

Patient Worthy's award-winning podcast "Wait, How Do You Spell That? A Rare Disease Podcast" is back with a new episode. This week, Colby is sitting down with Kari Rosbeck, the…

Continue Reading New Podcast Episode: 50 Years of Supporting the TSC Community, feat. TSC Alliance President and CEO Kari Rosbeck
New Podcast Episode: The Importance of IPF Clinical Trials, feat. Patient Advocate Murray Walz
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New Podcast Episode: The Importance of IPF Clinical Trials, feat. Patient Advocate Murray Walz

Patient Worthy's award-winning podcast "Wait, How Do You Spell That? A Rare Disease Podcast" is back with a new episode. This week, Colby is sitting down with Murray Walz, a…

Continue Reading New Podcast Episode: The Importance of IPF Clinical Trials, feat. Patient Advocate Murray Walz
New Podcast Episode: Rare Cancer, Finances and Families, Featuring Tony Laudadio of the Tony Foundation
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New Podcast Episode: Rare Cancer, Finances and Families, Featuring Tony Laudadio of the Tony Foundation

We are excited to announce that Patient Worthy's award-winning podcast "Wait, How Do You Spell That? A Rare Disease Podcast" is back with a new episode. This week, Colby is…

Continue Reading New Podcast Episode: Rare Cancer, Finances and Families, Featuring Tony Laudadio of the Tony Foundation
New Podcast Episode: The Intersection of Motherhood and Chronic Illness feat. aHUS Patient Advocate Taylor Coffman
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New Podcast Episode: The Intersection of Motherhood and Chronic Illness feat. aHUS Patient Advocate Taylor Coffman

We are excited to announce that Patient Worthy's award-winning podcast "Wait, How Do You Spell That? A Rare Disease Podcast" is back with a new episode. This week, Colby is…

Continue Reading New Podcast Episode: The Intersection of Motherhood and Chronic Illness feat. aHUS Patient Advocate Taylor Coffman
New Podcast Episode: Going All In On Support, feat. Patient Advocates Kathi and Dave Herzog
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New Podcast Episode: Going All In On Support, feat. Patient Advocates Kathi and Dave Herzog

We are excited to announce that Patient Worthy's award-winning podcast "Wait, How Do You Spell That? A Rare Disease Podcast" is back with a new episode. This week, Colby is…

Continue Reading New Podcast Episode: Going All In On Support, feat. Patient Advocates Kathi and Dave Herzog
Patient Worthy’s Award-Winning Podcast Returns: Spotlight on Von Hippel-Lindau Disease
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Patient Worthy’s Award-Winning Podcast Returns: Spotlight on Von Hippel-Lindau Disease

After around a 10-month hiatus, we are excited to announce that Patient Worthy's award-winning podcast "Wait, How Do You Spell That? A Rare Disease Podcast" is back in action with…

Continue Reading Patient Worthy’s Award-Winning Podcast Returns: Spotlight on Von Hippel-Lindau Disease

Patient Involvement in Genomic Research: Unpacking the “Genetics Unzipped” Podcast Episode S3.08

  While genomic research presents the unique opportunity of combating diseases and gene malfunctions at the source, the practice has been incredibly controversial. Some people worry about the ethics of…

Continue Reading Patient Involvement in Genomic Research: Unpacking the “Genetics Unzipped” Podcast Episode S3.08