In a late July 2023 news release, global healthcare company Grifols shared that positive topline data was now available from a Phase 4 clinical study evaluating XEMBIFY (immune globulin…
Rare Disease Day each year on February 28th provides a time for the rare disease community to reflect on the progress of the year, the continued gaps in rare disease…
Speakers: Dawn Helfrich RN, MSN, APN Annette Gregory To register for this live event, click here. For information on PI Webinar Wednesdays with this PW collaborator, click here. And to register, click…
Speakers: Carla Duff ARNP, CPNP-PC, MSN, CCRP, IgCN Carl Schlacht To register for this live event, click here. For information on PI Webinar Wednesdays with this PW collaborator, click here. And to…
Speakers: Wendy Holz, RN, MSN, CPNP Traci Davies To register for this live event, click here. For information on PI Webinar Wedenesdays with this PW collaborator, click here. And to register,…
Speakers: Carl Schlacht Carla Duff, ANP To register for this webinar, click here. To read more about PI Webinar Wednesdays, click here. Acknowledgment: This event post is sponsored by CSL Behring and is…
For millions of Americans who are affected by rare diseases, hope and health lies in the availability of plasma donations. One use of the donated plasma involves the extraction of…
Speakers: Darlene Madore MSN, APRN, CPNP-PC, BSN, RN Janet Richards To register for this live event, click here. For information on PI Webinar Wednesdays with this PW collaborator, click here. And to…
Speakers: Michelle Tran, DNP, FNP Annette Gregory To register for this live event, click here. For information on PI Webinar Wednesdays with this PW collaborator, click here. And to register, click here.…
Speakers: Dawn Helfrich, RN, MSN, APN Lori Collins To register for this live event, click here. For information on PI Webinar Wednesdays with this PW collaborator, click here. And to register, click…
Speakers: Michelle Tran, DNP, FNP Annette Gregory To register for this live event, click here. For information on PI Webinar Wednesdays with this PW collaborator, click here. And to register, click here.…
Speakers: Carla Duff, ARNP, CPNP-PC, MSN, CCRP, IgCN Annette Gregory To register for this live event, click here. For information on PI Webinar Wednesdays with this PW collaborator, click here. And to register, click…
Speakers: Dawn Helfrich, RN, MSN, APN Annette Gregory To register for this live event, click here. For information on PI Webinar Wednesdays with this PW collaborator, click here. And to register, click here. Acknowledgment:…
Speakers: Linda Anastasia, RN, BSN, CPN, IgCN Janet Richards To register for this live event, click here. For information on PI Webinar Wednesdays with this PW collaborator, click here. And to register, click here.…
Speakers: Carla Duff, ARNP, CPNP-PC, MSN, CCRP, IgCN Melaine Ziegler To register for this live event, click here. For information on PI Webinar Wednesdays with this PW collaborator, click here. And to register, click…
Speakers: Carla Duff, ARNP, CPNP-PC, MSN, CCRP, IgCN Lori Collins To register for this live event, click here. For information on PI Webinar Wednesdays with this PW collaborator, click here. And to register, click…
Speakers: Mary Hintermeyer, APNP, BSN, MSN Annette Gregory To register for this live event, click here. For information on PI Webinar Wednesdays with this PW collaborator, click here. And to register, click here. Acknowledgment:…
Speakers: Linda Anastasia, RN, BSN, CPN, IgCN Carl Schlacht To register for this live event, click here. For information on PI Webinar Wednesdays with this PW collaborator, click here. And to register, click here.…
Speakers: Carla Duff, ARNP, CPNP-PC, MSN, CCRP, IgCN Carl Schlacht To register for this live event, click here. For information on PI Webinar Wednesdays with this PW collaborator, click here. And to register, click…
Speakers: Darlene Madore, MSN, APRN, CPNP-PC, BSN, RN Eric Nixon To register for this live event, click here. For information on PI Webinar Wednesdays with this PW collaborator, click here. And to register, click…
Speakers: Carla Duff, ARNP, CPNP-PC, MSN, CCRP, IgCN Stacy Ahearn To register for this live event, click here. For information on PI Webinar Wednesdays with this PW collaborator, click here. And to register, click…
If you’re lucky enough to find a job that you’re passionate about, it’s easy to see “work” as anything but. Still, love your job or not, it’s important to know…
Happy Friday Patient Worthians! You might notice that the headline has a lot of acronyms in it... ah, welcome to the rare disease world! We DO have answers for what all of that…
Happy Friday Patient Worthians! Did you know it was World PI Week this week? We have a post on the role pets have with PI. We also have a story on a…
April 22nd through April 29th is World PI Week, dedicated to bringing awareness to Primary Immunodeficiencies (PI). If you want to participate, World PI Week has some great information for…
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