Allowing yourself to be hopeful, allowing yourself the opportunity to shape your future through the lens of hope, will make your rare disease fight that much easier. Fighting a rare…
April is right around the corner, and for those living with or caring for someone diagnosed with Sarcoidosis, you know very well that it's going to be National Sarcoidosis Awareness Month.…
never lose hope, for hope is an infinite feeling and disappointment is never everlasting.
Chronic Lyme is as the name indicates...chronic. But it definitely was at it's worst during tough antibiotic treatment. I was recently talking to my girlfriend who is currently going through…
Messages of hope relate to people in different ways. One may see it as an exact description of their life at the very moment they come across it, others may…
Ever feel like you have 1,097,652,876,821 things to acknowledge and take care of and literally none of those things are something you actually want to do? Well let's take a huge…
Rare Conect explica la vida de Annie Kwakkel que nació con cistinosis,una enfermedad genética que afecta aproxima a 1 en 100,00 a 200,000 recién nacidos en todo el mundo. Hoy…
Sometimes, when it comes to dealing with pressures out attitude toward others will inevitably fluctuate. This doesn't mean we mean to do it, it's just a reflection of our current…
As with other PW memes, this meme is aimed at getting you motivated, getting you pumped to find the silver lining in the earth shattering, life altering shit-storm that is…
CysticLife.org, una red en línea para la comunidad de la fibrosis quística (FQ), se está embarcando en un esfuerzo de recaudación de fondos para apoyar la investigación histórica impulsado por…
Yo soy hispanohablante de nacimiento pero me he convertido en una persona plurilingüe. Hablo Inglés, español y portugués y estoy aprendiendo a hablar francés ahora. La importancia de saber hablar más de un…
One Thursday night, I was completely emotionally wiped out. There was something that went down in my family and I spent that evening on the phone and in tears. I’m…
Oh Canadá, la gente piensa que eres todo "por favor y gracias", y el jarabe de arce, pero conozco la verdad: Eres un luchador y esa lucha es más evidente…
10 cosas que he aprendido viviendo con el síndrome de Ehlers-Danlos 1. No es tan malo ser espontáneo Cuando era más joven yo tenía planes y listas para toda mi…
Our lives were forever changed on March 29th, 2004 – the day my son Tailen was born. There isn’t a day that goes by that I don’t wish that we…
Happy Easter Weekend Patient Worthians! And if you don't celebrate it, Passover is only a month away. If you don't celebrate either one, then why not celebrate life?! This week we…
As you know from my previous posts, I am an anti-inflammatory nut. But as of late, I have gotten a sweet tooth- ya introduce sugar once, and it's all down…
PatientWorthy está asociando con CysticLife.org para poner de relieve algunos de los miembros en su increíble comunidad! CysticLife.org surgió de un blog iniciado por paciente con FQ, Ronnie Sharpe, para…
When people hear the word “trauma” they often think of a car crash, assault, witnessing a robbery and sudden violent acts that alter our lives. Throughout my own life I…
Patient Worthy is very excited to introduce our newest Patient Worthy Patient Contributor, Amber! Amber is funny, and will be contributing regularly about life with celiac disease, vestibular neuritis, and cervical dystonia.…
As we close out the first week of the #PWMemeWeek contest, we have gotten a few submissions that are notably awesome! Not gonna spill any beans yet but y'all better…
I have early onset cervical dystonia. CD is a neurological condition that causes the muscles in my neck and shoulders to spasm involuntarily. For some people, it gets progressively worse…
Podría ser una historia de una novela de espías: Si bien se están pasando mensajes codificados, un extraño intenta infiltrarse e interrumpir la comunicación. Parte de la misión involucra el…
Today's talking tip meme makes us take a step back and think about how we approach compassion. It's not easy to be compassionate toward others if we don't show ourselves compassion when…
Socially active, super smart and patient worthy Dr. Kim Becher we applaud you! Patient Worthy found an awesome blog sponsored by the American Academy of Family Physicians (AAFP), Fresh Perspectives:…
© Copyright 2024 Patient Worthy
Sign Up With a Patient Worthy Account and Share Your Rare Story
- OR -
Make a difference, share your experiences and get paid. Opt-in and join Patient Worthy's panel for paid opportunities such as surveys, market research, patient advisory panels and more.
- OR -
Make a difference, share your experiences and get paid. Opt-in and join Patient Worthy's panel for paid opportunities such as surveys, market research, patient advisory panels and more.
